PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction

Clarke, Alex; Paraskeva, N.; White, P.; Tollow, P.; Hansen, Esther; Harcourt, D.

doi:10.1007/s13187-019-01656-6

The co-creation, initial piloting, and protocol for a cluster randomised controlled trial of a coach-led positive body image intervention for girls in sport (2023)
Journal Article
Matheson, E. L., Schneider, J., Tinoco, A., Gentili, C., Silva-Breen, H., LaVoi, N. M., …Diedrichs, P. C. (2023). The co-creation, initial piloting, and protocol for a cluster randomised controlled trial of a coach-led positive body image intervention for girls in sport. BMC Public Health, 23(1), Article 1467. https://doi.org/10.1186/s12889-023-16360-w

Background: Globally, girls disengage from sports at an earlier age and higher rate than boys. This is, in part, due to the unique body image challenges that girls face, relative to their male peers. Existing intervention efforts that aim to reduce g... Read More about The co-creation, initial piloting, and protocol for a cluster randomised controlled trial of a coach-led positive body image intervention for girls in sport.

Body confident coaching: A pilot randomized controlled trial evaluating the acceptability of a web-based body image intervention for coaches of adolescent girls (2023)
Journal Article
Schneider, K., Matheson, E. L., Tinoco, A., Gentili, C., White, P., Boucher, C., …LaVoi, N. M. (2024). Body confident coaching: A pilot randomized controlled trial evaluating the acceptability of a web-based body image intervention for coaches of adolescent girls. Journal of Applied Sport Psychology, 36(2), 231-256. https://doi.org/10.1080/10413200.2023.2212023

Coaches influence athletes’ body image, but often feel ill-equipped to address body image concerns and inadvertently perpetuate harmful body ideals. No evidence-based, empirically-tested body image intervention for coaches exists. This study evaluate... Read More about Body confident coaching: A pilot randomized controlled trial evaluating the acceptability of a web-based body image intervention for coaches of adolescent girls.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article
Zucchelli, F., Dalen, M. V., Bhatia, R., White, P., Hamlet, C., & Harcourt, D. (2023). Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?. Body Image, 45, 355-361. https://doi.org/10.1016/j.bodyim.2023.03.016

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

Evaluating the efficacy of a social media-based intervention (Warna-Warni Waktu) to improve body image among young Indonesian women: Parallel randomized controlled trial (2023)
Journal Article
Garbett, K. M., Haywood, S., Craddock, N., Gentili, C., Nasution, K., Saraswati, L. A., …Williamson, H. (2023). Evaluating the efficacy of a social media-based intervention (Warna-Warni Waktu) to improve body image among young Indonesian women: Parallel randomized controlled trial. JMIR, 25, Article e42499. https://doi.org/10.2196/42499

BACKGROUND: Body dissatisfaction is a global issue, particularly among adolescent girls and young women. Effective body image interventions exist but face barriers to scaling up, particularly in lower- and middle-income countries, such as Indonesia,... Read More about Evaluating the efficacy of a social media-based intervention (Warna-Warni Waktu) to improve body image among young Indonesian women: Parallel randomized controlled trial.

Evaluating a body image school-based intervention in India: A randomized controlled trial (2023)
Journal Article
Lewis-Smith, H., Garbett, K., Chaudhry, A., Dhillon, M., Shroff, H., White, P., & Diedrichs, P. (2023). Evaluating a body image school-based intervention in India: A randomized controlled trial. Body Image, 44, 148-156. https://doi.org/10.1016/j.bodyim.2022.12.006

Body dissatisfaction is highly prevalent among adolescents in low- and middle- income countries, including in India. However, evidence-based interventions are lacking. This study evaluated the efficacy of a school-based mixed-gender body image interv... Read More about Evaluating a body image school-based intervention in India: A randomized controlled trial.

Understanding colourism in the UK: Development and assessment of the everyday colourism scale (2022)
Journal Article
Craddock, N., Phoenix, A., White, P., Gentili, C., Diedrichs, P. C., & Barlow, F. (in press). Understanding colourism in the UK: Development and assessment of the everyday colourism scale. Ethnic and Racial Studies, 1-36. https://doi.org/10.1080/01419870.2022.2149275

This paper details the development and psychometric validation of the Everyday Colourism Scale (ECS), a measure designed to capture perceived skin shade prejudice from the ingroup (ethnic peers) and the outgroup (White people). The ECS was adapted fr... Read More about Understanding colourism in the UK: Development and assessment of the everyday colourism scale.

A comic-based body image intervention for adolescents in semi-rural Indian schools: Study protocol for a randomized controlled trial (2022)
Journal Article
Lewis-Smith, H., Hasan, F., Ahuja, L., White, P., & Diedrichs, P. C. (2022). A comic-based body image intervention for adolescents in semi-rural Indian schools: Study protocol for a randomized controlled trial. Body Image, 42, 183-196. https://doi.org/10.1016/j.bodyim.2022.05.013

Adolescents in India experience body dissatisfaction, however, empirically supported interventions are lacking. This paper describes the protocol for the development, acceptability testing, and cluster randomized controlled trial (RCT) of a six-sessi... Read More about A comic-based body image intervention for adolescents in semi-rural Indian schools: Study protocol for a randomized controlled trial.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2022). The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury. European Burn Journal, 3(1), 211-233. https://doi.org/10.3390/ebj3010019

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial (2022)
Journal Article
Garbett, K. M., Craddock, N., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Williamson, H. (2022). A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial. JMIR Research Protocols, 11(1), Article e33596. https://doi.org/10.2196/33596

Background: Despite the prevalence of body dissatisfaction among young Indonesian women and its consequential negative impacts, there are currently no evidence-based, culturally appropriate interventions to tackle this issue. Therefore, there is a ne... Read More about A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial.

An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study (2022)
Journal Article
Zucchelli, F., Donnelly, O., Rush, E., White, P., Gwyther, H., Williamson, H., & The VTCT Foundation Research Team at the Centre for Appearance Research. (2022). An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study. JMIR Formative Research, 6(1), Article e33449. https://doi.org/10.2196/33449

Background: Mobile apps may offer a valuable platform for delivering evidence-based psychological interventions for individuals with atypical appearances, or visible differences, who experience psychosocial appearance concerns such as appearance-base... Read More about An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study.

‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents (2021)
Journal Article
Craddock, N., Garbett, K. M., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Diedrichs, P. C. (2021). ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents. BMC Public Health, 21(1), Article 2102. https://doi.org/10.1186/s12889-021-11770-0

Background: Due to the prevalence and associated adverse health consequences of negative body image among adolescents globally, there is a need to develop acceptable, effective, and scalable interventions. School-based body image interventions delive... Read More about ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents.

A multi-centred sequential trial comparing PEGASUS, an intervention to promote shared decision making about breast reconstruction with usual care (2021)
Journal Article
Paraskeva, N., Tollow, P., Clarke, A., White, P., Powell, J. E., Cox, D. M., & Harcourt, D. M. (2022). A multi-centred sequential trial comparing PEGASUS, an intervention to promote shared decision making about breast reconstruction with usual care. Journal of Plastic, Reconstructive and Aesthetic Surgery, 75(4), 1342-1351. https://doi.org/10.1016/j.bjps.2021.11.033

Decision making about breast reconstruction (BR) is complex. The Patients’ Expectations and Goals: Assisting Shared Understanding of Surgery (PEGASUS) intervention aims to support shared decision making by helping women and clinicians clarify and dis... Read More about A multi-centred sequential trial comparing PEGASUS, an intervention to promote shared decision making about breast reconstruction with usual care.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2021). Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers. European Burn Journal, 2(4), 249-280

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

Patient reported psychosocial functioning following successful ptosis surgery (2021)
Journal Article
Richards, H., Jenkinson, E., White, P., & Harrad, R. (2021). Patient reported psychosocial functioning following successful ptosis surgery. Eye, 36, 1651–1655. https://doi.org/10.1038/s41433-021-01685-w

Background: Ptosis may result in increased anxiety, appearance-related distress and social avoidance, and impacts visual function. Previous work demonstrates the benefits of ptosis surgery for health-related quality of life, but there is a paucity of... Read More about Patient reported psychosocial functioning following successful ptosis surgery.

“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (in press). “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction. European Journal of Cancer Care, Article e13464. https://doi.org/10.1111/ecc.13464

Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.

Acceptability and preliminary efficacy of a school-based body image intervention in urban India: A pilot randomised controlled trial (2021)
Journal Article
Garbett, K., Lewis-Smith, H., Chaudhry, A., Schroff, H., Dhillon, M., White, P., & Diedrichs, P. C. (2021). Acceptability and preliminary efficacy of a school-based body image intervention in urban India: A pilot randomised controlled trial. Body Image, 37, 282-290. https://doi.org/10.1016/j.bodyim.2021.02.011

This pilot study evaluated the acceptability and preliminary efficacy of a culturally adapted school-based body image intervention, Dove Confident Me, for use in urban India. Two private schools in New Delhi were randomly assigned at the school level... Read More about Acceptability and preliminary efficacy of a school-based body image intervention in urban India: A pilot randomised controlled trial.

‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years (2020)
Journal Article
Jarman, H., Guest, E., Hannah, J., Sharratt, N., Williamson, H., White, P., …Slater, A. (2021). ‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years. Body Image, 36, 34-44. https://doi.org/10.1016/j.bodyim.2020.09.010

This study evaluated the effectiveness of an educational board game aimed at increasing knowledge of appearance-related issues, positive body image, media literacy, and acceptance of appearance diversity with British school children. Two hundred and... Read More about ‘Everybody’s Different: The Appearance Game’. A randomised controlled trial evaluating an appearance-related board game intervention with children aged 9-11 years.

Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort (2020)
Journal Article
Costa, B., White, P., Kiff, J. D., Davies, A., & Stock, N. M. (2021). Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort. Child: Care, Health and Development, 47(1), 31-39. https://doi.org/10.1111/cch.12813

Background: One of the most common congenital conditions in the world, cleft lip and/or palate (CL/P) has been shown to potentially impact long-term physical and developmental outcomes in affected children. However, little is known about the factors... Read More about Parent-reported socioemotional and cognitive development in children with a cleft lip and/or palate at 18 months: Findings from a UK birth cohort.

The development and validation of the Threat of Dementia Scale (2020)
Journal Article
Cheston, R., Dodd, E., Christopher, G., White, P., Wildschut, T., & Sedikides, C. (2022). The development and validation of the Threat of Dementia Scale. International Journal of Aging and Human Development, 94(4), 496-514. https://doi.org/10.1177/0091415020957388

Dementia represents a substantial threat to the self. However, to date, there is no reliable way to measure how threatened people feel by dementia. This article reports on two online studies. In Study 1, 248 participants rated statements about dement... Read More about The development and validation of the Threat of Dementia Scale.

PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction (2020)
Journal Article
Clarke, A., Paraskeva, N., White, P., Tollow, P., Hansen, E., & Harcourt, D. (2020). PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction. Journal of Cancer Education, https://doi.org/10.1007/s13187-019-01656-6

© 2020, The Author(s). Studies have found varying levels of satisfaction after breast reconstruction surgery with a substantial group of patients reporting some level of regret about their decision. The variable outcomes reported by women undergoing... Read More about PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction.

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