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Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol (2023)
Journal Article
Chapman, L. S., Redmond, A. C., Flurey, C. A., Richards, P., Smith, T. O., Arnold, J. B., …Siddle, H. J. (2023). Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol. Trials, 24(1), 65. https://doi.org/10.1186/s13063-023-07104-7

Background: Foot and ankle involvement is common in rheumatic and musculoskeletal diseases (RMDs). High-quality evidence is lacking to determine the effectiveness of treatments for these disorders. Heterogeneity in the outcomes used across clinical t... Read More about Developing an outcome measures in rheumatology (OMERACT) core set of outcome measures for foot and ankle disorders in rheumatic and musculoskeletal diseases (COMFORT): Core domain set study protocol.

Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group (2022)
Journal Article
Khoo, T., Jones, B., Chin, A., Terrett, A., Voshaar, M., Hoogland, W., …Proudman, S. (2023). Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group. Seminars in Arthritis and Rheumatism, 58, 152152. https://doi.org/10.1016/j.semarthrit.2022.152152

Aims: The Outcome Measures in Rheumatology Trials (OMERACT) Remission in Rheumatoid Arthritis (RA) patient perspective working group has previously found that patients prioritised independence, pain, and fatigue as key domains of remission in RA. How... Read More about Defining independence: A scoping review by the OMERACT patient perspective of remission in rheumatoid arthritis group.

"I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis (2022)
Journal Article
Flurey, C. A., Pauling, J. D., Saketkoo, L. A., Denton, C. P., Galdas, P., Khanna, D., …Hughes, M. (in press). "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis. Rheumatology, keac585. https://doi.org/10.1093/rheumatology/keac585

Men with Systemic Sclerosis (SSc) have a more severe clinical phenotype and reduced survival compared to women. No previous psychosocial studies have focused solely on men with SSc. This study aimed to explore experiences, coping strategies, and supp... Read More about "I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis.

Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report (2021)
Journal Article
Jones, B., Flurey, C. A., Proudman, S., Ferreira, R. J. O., Voshaar, M., Hoogland, W., …Boers, M. (2021). Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report. Seminars in Arthritis and Rheumatism, 51(5), 1108-1112. https://doi.org/10.1016/j.semarthrit.2021.07.010

Objective: To determine how best to incorporate the patient perspective into rheumatoid arthritis remission criteria. Methods: At OMERACT 2020, several studies, including a longitudinal multi-centre study testing the validity of adding patient-valued... Read More about Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report.

OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study (2021)
Journal Article
Nielsen, S. M., Boers, M., de Wit, M., Shea, B., van der Windt, D. A., Reeves, B. C., …Christensen, R. (2021). OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study. Seminars in Arthritis and Rheumatism, 51(3), 601-606. https://doi.org/10.1016/j.semarthrit.2021.03.013

Objectives: To develop an operational definition of contextual factors (CF) [1]. Methods: Based on previously conducted interviews, we presented three CF types in a Delphi survey; Effect Modifying -, Outcome Influencing - and Measurement Affecting CF... Read More about OMERACT consensus-based operational definition of contextual factors in rheumatology clinical trials: A mixed methods study.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group (2020)
Journal Article
Nielsen, S. M., Rasmussen, M. U., Boers, M., van der Windt, D. A., de Wit, M., Woodworth, T. G., …Christensen, R. (2021). Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group. Annals of the Rheumatic Diseases, 80, 242-249. https://doi.org/10.1136/annrheumdis-2020-217895

Objectives: The Outcome Measures in Rheumatology (OMERACT) Initiative established the Contextual Factors Working Group (CFWG) to guide the understanding, identification, and handling of contextual factors for clinical trials. In clinical research, di... Read More about Towards consensus in defining and handling contextual factors within rheumatology trials: An initial qualitative study from an OMERACT working group.

Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives (2020)
Journal Article
Austin, K., Robson, J. C., Shepherd, M., Harper, L., Ndosi, M., Flurey, C., …Dures, E. (2020). Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives. Rheumatology Advances in Practice, 4(2), Article rkaa016. https://doi.org/10.1093/rap/rkaa016

© The Author(s) 2020. Objectives. CTD and systemic vasculitis impact on health-related quality of life. Treatment can be complex, involving multiple medical specialities. The aim of this study was to investigate psychological and self-management supp... Read More about Psychological and self-management support for people with vasculitis or connective tissue diseases: UK health professionals' perspectives.

Gender-related differences in systemic sclerosis (2020)
Journal Article
Hughes, M., Pauling, J. D., Armstrong-James, L., Denton, C. P., Galdas, P., & Flurey, C. (2020). Gender-related differences in systemic sclerosis. Autoimmunity Reviews, 19(4), https://doi.org/10.1016/j.autrev.2020.102494

Systemic sclerosis (SSc) is a complex autoimmune connective tissue disease which is characterised by autoimmunity, widespread tissue fibrosis of the skin and internal organs, and vasculopathic alterations. SSc is more common in women but has a more s... Read More about Gender-related differences in systemic sclerosis.

The OMERACT emerging leaders program: The good, the bad, and the future (2019)
Journal Article
Flurey, C. A., Tugwell, P. S., Black, R. J., Halls, S., Page, M. J., Robson, J. C., …Richards, B. (2019). The OMERACT emerging leaders program: The good, the bad, and the future. Journal of Rheumatology, 46(8), 1047-1052. https://doi.org/10.3899/jrheum.181126

The Journal of Rheumatology Copyright © 2019. All rights reserved. Objective. To describe the experience of the first OMERACT Emerging Leaders Program (ELP). Methods. A Delphi process identified positive aspects, areas for improvement, and future dir... Read More about The OMERACT emerging leaders program: The good, the bad, and the future.

Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group (2017)
Journal Article
Tugwell, P. S., Guillemin, F., Buchbinder, R., Beaton, D. E., Hofstetter, C., Pohl, C., …Petkovic, J. (2017). Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group. Journal of Rheumatology, 44(11), 1727-1733. https://doi.org/10.3899/jrheum.160975

Copyright © 2017. All rights reserved. Objective: Despite advances integrating patient-centered outcomes into rheumatologic studies, concerns remain regarding their representativeness across diverse patient groups and how this affects equity. The Out... Read More about Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group.

An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group (2017)
Journal Article
March, L. M., Tugwell, P. S., Beaton, D. E., Verstappen, S. M., Nielsen, S. M., Woodworth, T. G., …Pohl, C. (2017). An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group. Journal of Rheumatology, 44(11), 1734-1739. https://doi.org/10.3899/jrheum.161200

Copyright © 2017. All rights reserved. Objective: The importance of contextual factors (CF) for appropriate patient-specific care is widely acknowledged. However, evidence in clinical trials on how CF influence outcomes remains sparse. The 2014 Outco... Read More about An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group.

‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach (2017)
Journal Article
Kirwan, J., Rodham, K., White, A., Noddings, R., Flurey, C. A., & Hewlett, S. (2018). ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach. Sociology of Health and Illness, 40(1), 115-129. https://doi.org/10.1111/1467-9566.12628

© 2017 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the im... Read More about ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach.

Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey (2017)
Journal Article
Flurey, C. A., Hewlett, S., Rodham, K., White, A., Noddings, R., & Kirwan, J. (2018). Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey. Arthritis Care and Research, 70(6), 851-860. https://doi.org/10.1002/acr.23422

© 2017 The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: To investigate the existence and distribution of 2 typologies (termed “factors”) of men with rheumatoid... Read More about Coping strategies, psychological impact, and support preferences of men with Rheumatoid Arthritis: A multicenter survey.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Sadlonova, M., Van Tuyl, L. H., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article
Kirwan, J. R., Flurey, C. A., Hewlett, S., Rodham, K., White, A., & Noddings, R. (2017). “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis. Arthritis Care and Research, 69(3), 330-337. https://doi.org/10.1002/acr.22951

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article
Kirwan, J. R., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. (2016). Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study. BMJ Open, 6(10), https://doi.org/10.1136/bmjopen-2016-012051

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.