Skip to main content

Research Repository

See what's under the surface


The OMERACT emerging leaders program: The good, the bad, and the future (2019)
Journal Article
Flurey, C. A., Tugwell, P. S., Black, R. J., Halls, S., Page, M. J., Robson, J. C., …Richards, B. (2019). The OMERACT emerging leaders program: The good, the bad, and the future. Journal of Rheumatology, 46(8), 1047-1052. https://doi.org/10.3899/jrheum.181126

The Journal of Rheumatology Copyright © 2019. All rights reserved. Objective. To describe the experience of the first OMERACT Emerging Leaders Program (ELP). Methods. A Delphi process identified positive aspects, areas for improvement, and future dir... Read More about The OMERACT emerging leaders program: The good, the bad, and the future.

An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group (2017)
Journal Article
Furst, D. E., March, L. M., Tugwell, P. S., Beaton, D. E., Verstappen, S. M., Flurey, C. A., …Pohl, C. (2017). An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group. Journal of Rheumatology, 44(11), 1734-1739. https://doi.org/10.3899/jrheum.161200

Copyright © 2017. All rights reserved. Objective: The importance of contextual factors (CF) for appropriate patient-specific care is widely acknowledged. However, evidence in clinical trials on how CF influence outcomes remains sparse. The 2014 Outco... Read More about An OMERACT initiative toward consensus to identify and characterize candidate contextual factors: Report from the contextual factors working group.

Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group (2017)
Journal Article
Tugwell, P. S., Guillemin, F., Buchbinder, R., Beaton, D. E., Hofstetter, C., Pohl, C., …Flurey, C. A. (2017). Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group. Journal of Rheumatology, 44(11), 1727-1733. https://doi.org/10.3899/jrheum.160975

Copyright © 2017. All rights reserved. Objective: Despite advances integrating patient-centered outcomes into rheumatologic studies, concerns remain regarding their representativeness across diverse patient groups and how this affects equity. The Out... Read More about Health equity considerations for developing and reporting patient-reported outcomes in clinical trials: A report from the omeract equity special interest group.

‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach (2017)
Journal Article
Kirwan, J., Rodham, K., White, A., Noddings, R., Flurey, C. A., & Hewlett, S. (2018). ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach. Sociology of Health and Illness, 40(1), 115-129. https://doi.org/10.1111/1467-9566.12628

© 2017 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the im... Read More about ‘Everyone assumes a man to be quite strong’: Men, masculinity and rheumatoid arthritis: A case-study approach.

Coping Strategies, Psychological Impact, and Support Preferences of Men With Rheumatoid Arthritis: A Multicenter Survey (2017)
Journal Article
Flurey, C. A., Hewlett, S., Rodham, K., White, A., Noddings, R., & Kirwan, J. (2018). Coping Strategies, Psychological Impact, and Support Preferences of Men With Rheumatoid Arthritis: A Multicenter Survey. Arthritis Care and Research, 70(6), 851-860. https://doi.org/10.1002/acr.23422

© 2017 The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of American College of Rheumatology. Objective: To investigate the existence and distribution of 2 typologies (termed “factors”) of men with rheumatoid art... Read More about Coping Strategies, Psychological Impact, and Support Preferences of Men With Rheumatoid Arthritis: A Multicenter Survey.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Flurey, C., Sadlonova, M., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article
Kirwan, J. R., Flurey, C. A., Hewlett, S., Rodham, K., White, A., & Noddings, R. (2017). “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis. Arthritis Care and Research, 69(3), 330-337. https://doi.org/10.1002/acr.22951

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article
Kirwan, J. R., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. (2016). Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study. BMJ Open, 6(10), https://doi.org/10.1136/bmjopen-2016-012051

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article
Hewlett, S. E., Flurey, C., Van Tuyl, L. H., Sadlonova, M., Davis, B., Flurey, C. A., …Boers, M. (2016). Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12. Journal of Rheumatology, 43(1), 203-207. https://doi.org/10.3899/jrheum.141113

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures (2015)
Journal Article
Tugwell, P. S., Singh, J. A., Duruöz, M. T., Sreih, A. G., Flurey, C., Maxwell, L. J., …Guillemin, F. (2015). Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures. Journal of Rheumatology, 42(12), 2448-2459. https://doi.org/10.3899/jrheum.141168

© Copyright 2015 The Journal of Rheumatology. All rights reserved. Objective. The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome mea... Read More about Toward ensuring health equity: Readability and cultural equivalence of OMERACT patient-reported outcome measures.

“We all keep schtum”: The experiences and coping styles of men with RA (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, November). “We all keep schtum”: The experiences and coping styles of men with RA. Presented at ACR/ARHP Annual Meeting 2015

“We all keep schtum”: The experiences and coping styles of men with RA

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission (2015)
Presentation / Conference
Van Tuyl, L., Sadlonova, M., Hewlett, S., Davis, B., Flurey, C., Goel, N., …Boers, M. (2015, June). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission. Poster presented at EULAR 2015

Background: Guidelines suggest treatment in rheumatoid arthritis (RA) should be targeted at remission, in close consultation with the patient. Our recent qualitative study of the patient perspective on remission in RA identified reduction or absence... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission.

“Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, June). “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study. Presented at EULAR 2015

Background: Research on coping with RA reflects the preponderance of women with the condition (70%). In other long term conditions research suggests men need their own health strategy. Objectives: To explore the experiences and coping styles of me... Read More about “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article
Flurey, C., Van Tuyl, L. H., van Tuyl, L. H. D., Hewlett, S., Sadlonova, M., Davis, B., …Boers, M. (2015). The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'. Annals of the Rheumatic Diseases, 74(6), 1004-1010. https://doi.org/10.1136/annrheumdis-2013-204798

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review (2015)
Journal Article
Kirwan, J., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. R. (2016). Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review. Journal of Health Psychology, 21(10), 2168-2182. https://doi.org/10.1177/1359105315572452

© SAGE Publications. Rheumatoid arthritis is a chronic disease affecting fewer men than women. We systematically reviewed the literature on impact and self-management of rheumatoid arthritis in men. A total of 28 papers were included and grouped into... Read More about Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review.

The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates (2015)
Journal Article
Flurey, C. A., Kirwan, J. R., Hadridge, P., Richards, P., Grosskleg, S., & Tugwell, P. (2015). The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates. Journal of Rheumatology, 42(10), 1982-1992. https://doi.org/10.3899/jrheum.150113

Copyright © 2015. All rights reserved. Objective. To identify the major features of OMERACT meetings as valued by frequent participants and to explore whether there are groups of participants with different opinions. Methods. Using Q methodology (a q... Read More about The spirit of OMERACT: Q methodology analysis of conference characteristics valued by delegates.