All Outputs (175)

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission (2017)
Journal Article
Wells, G. A., Smolen, J. S., Hetland, M. L., Hill, C. L., Sadlonova, M., Van Tuyl, L. H., …Boers, M. (2017). The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission. Annals of the Rheumatic Diseases, 76(5), 855-861. https://doi.org/10.1136/annrheumdis-2016-209835

© 2017, BMJ Publishing Group. All rights reserved. Background: Guidelines suggest treatment in rheumatoid arthritis (RA) to target remission, in close consultation with the patient. Our recent qualitative study of the patients' perspective on remissi... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient-perceived remission.

Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure (2017)
Journal Article
Kirwan, J. R., Halls, S., Dures, E., Pollock, J., Baker, G., Edmunds, A., & Hewlett, S. (2018). Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure. Rheumatology, 57(2), 263-272. https://doi.org/10.1093/rheumatology/kex085

© The Author 2017. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. Objective. To qualitatively develop and test a set of candidate items for a new RA stiffness patientreported outcome measu... Read More about Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure.

Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review (2017)
Journal Article
Salmon, V. E., Hewlett, S., Walsh, N., Kirwan, J. R., & Cramp, F. A. (2017). Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review. Physical Therapy Reviews, 22(1-2), 12-22. https://doi.org/10.1080/10833196.2016.1277454

© 2017 Informa UK Limited, trading as Taylor & Francis Group. Background: Fatigue is a major symptom of rheumatoid arthritis (RA) and the need for effective interventions is evident. Programmes based upon physical activity (PA) have been shown to i... Read More about Physical activity interventions for fatigue in rheumatoid arthritis: a systematic review.

“You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis (2017)
Journal Article
Kirwan, J. R., Flurey, C. A., Hewlett, S., Rodham, K., White, A., & Noddings, R. (2017). “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis. Arthritis Care and Research, 69(3), 330-337. https://doi.org/10.1002/acr.22951

© 2016, The Authors. Arthritis Care & Research published by Wiley Periodicals, Inc. on behalf of the American College of Rheumatology. Objective: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) p... Read More about “You Obviously Just Have to Put on a Brave Face”: A Qualitative Study of the Experiences and Coping Styles of Men With Rheumatoid Arthritis.

Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study (2017)
Journal Article
Tillett, W., Dures, E., Hewlett, S., Lord, J., Bowen, C., & McHugh, N. (2017). Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study. Patient, 10(4), 455-462. https://doi.org/10.1007/s40271-017-0221-4

© 2017, The Author(s). Background: Psoriatic arthritis (PsA) is a variable and complex inflammatory condition. Symptoms can compromise physical function, reduce quality of life, and accrue significant health costs. Commonly used patient-reported outc... Read More about Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study.

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study (2017)
Journal Article
Kirwan, J., Wilson, O., Dures, E., Quest, E., & Hewlett, S. (2017). The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study. Journal of Foot and Ankle Research, 10(1), https://doi.org/10.1186/s13047-017-0188-3

© 2017 The Author(s). Background: Although foot problems are common in rheumatoid arthritis (RA), the consequences of foot problems from the patient perspective have not been fully explored. The aims of this study were to explore the experience of fo... Read More about The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: A qualitative study.

Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study (2016)
Journal Article
Kirwan, J. R., Flurey, C. A., Flurey, C. A., Hewlett, S., Rodham, K., White, A., …Kirwan, J. (2016). Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study. BMJ Open, 6(10), https://doi.org/10.1136/bmjopen-2016-012051

© Published by the BMJ Publishing Group Limited. Objective To identify typologies of experiences and coping strategies of men with rheumatoid arthritis (RA). Design Q-methodology (a qualitative and quantitative approach to grouping people according t... Read More about Identifying different typologies of experiences and coping strategies in men with rheumatoid arthritis: A Q-methodology study.

International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials (2016)
Journal Article
Christensen, R., Callis Duffin, K., Elmamoun, M., Grieb, S. D., Shea, J. A., De Wit, M., …Ogdie, A. (2017). International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. Annals of the Rheumatic Diseases, 76(4), 673-680. https://doi.org/10.1136/annrheumdis-2016-210242

© 2017 Published by the BMJ Publishing Group Limited. Objective To identify a core set of domains (outcomes) to be measured in psoriatic arthritis (PsA) clinical trials that represent both patients' and physicians' priorities. Methods We conducted (1... Read More about International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials.

Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey (2016)
Journal Article
Morris, M., Ambler, N., Caesley, J., Peterson, A., Fraser, I., Dures, E., …Pollock, J. (2017). Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey. Musculoskeletal Care, 15(3), 175-185. https://doi.org/10.1002/msc.1159

Copyright © 2016 John Wiley & Sons, Ltd. Objectives: Psychological support for inflammatory arthritis is recommended in rheumatology treatment guidelines. Previous research found that high numbers of patients would access such support but that prov... Read More about Patients’ Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey.

Biologic interventions for fatigue in rheumatoid arthritis (2016)
Journal Article
Almeida, C., Choy, E. H., Hewlett, S., Kirwan, J. R., Cramp, F., Chalder, T., …Christensen, R. (2016). Biologic interventions for fatigue in rheumatoid arthritis. Cochrane Database of Systematic Reviews, 6, Article CD008334. https://doi.org/10.1002/14651858.CD008334.pub2

BACKGROUND: Fatigue is a common and potentially distressing symptom for patients with rheumatoid arthritis (RA), with no accepted evidence-based management guidelines. Evidence suggests that biologic interventions improve symptoms and signs in RA... Read More about Biologic interventions for fatigue in rheumatoid arthritis.

Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages (2016)
Journal Article
Hagel, S., Bode, C., Hewlett, S., Nicklin, J., Bode, C., Carmona, L., …Gossec, L. (2016). Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages. Rheumatology, 55(6), 1009-1016. https://doi.org/10.1093/rheumatology/kew011

© The Author 2016. Objective. Cross-cultural translation of patient-reported outcome measures (PROMs) is a lengthy process, often performed professionally. Cognitive interviewing assesses patient comprehension of PROMs. The objective was to evaluate... Read More about Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

The coping styles and preferences for self-management services of men with rheumatoid arthritis (2016)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2016, April). The coping styles and preferences for self-management services of men with rheumatoid arthritis. Presented at Rheumatology 2016, Glasgow, Scotland, UK

The coping styles and preferences for self-management services of men with rheumatoid arthritis

Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures (2016)
Journal Article
Sanderson, T., Kirwan, J., Almeida, C., Morris, M., Noddings, R., & Hewlett, S. (2016). Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures. Patient, 9(2), 103-115. https://doi.org/10.1007/s40271-015-0130-3

© 2015, Springer International Publishing Switzerland. Background: The assessment of rheumatoid arthritis (RA) is dominated by core sets and indices that have been developed by RA professionals. Previous research developed a set of eight priority tre... Read More about Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures.

A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations (2016)
Journal Article
Clarke, J., Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2016). A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations. BMC Musculoskeletal Disorders, 17(1), 129-137. https://doi.org/10.1186/s12891-016-0984-0

© 2016 Dures et al. Background: Self-management of inflammatory arthritis (IA) requires patients to address the impact of symptoms, treatment, and the psychosocial consequences of a long term condition. There are several possible mechanisms for facil... Read More about A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set (2016)
Journal Article
Bykerk, V. P., Bingham, C. O., Choy, E. H., Lin, D., Alten, R., Christensen, R., …Pohl, C. (2016). Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set. RMD Open, 2(1), Article e000225. https://doi.org/10.1136/rmdopen-2015-000225

Objective: To evaluate the reliability of concurrent flare identification using 3 methods (patient, rheumatologist and Disease Activity Score (DAS)28 criteria), and construct validity of candidate items representing the Outcome Measures in Rheumatolo... Read More about Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article
Hewlett, S. E., Flurey, C., Van Tuyl, L. H., Sadlonova, M., Davis, B., Flurey, C. A., …Boers, M. (2016). Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12. Journal of Rheumatology, 43(1), 203-207. https://doi.org/10.3899/jrheum.141113

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Patient preferences for psychological support in inflammatory arthritis: A multicentre survey (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). Patient preferences for psychological support in inflammatory arthritis: A multicentre survey. Annals of the Rheumatic Diseases, 75(1), 142-147. https://doi.org/10.1136/annrheumdis-2014-205636

Objectives. Inflammatory arthritis (IA) can lead to anxiety, depression, pain and fatigue. Psychological support can improve quality of life and selfmanagement; and European and American guidelines recommend support be offered. This study examined pa... Read More about Patient preferences for psychological support in inflammatory arthritis: A multicentre survey.

A survey of psychological support provision for people with inflammatory arthritis in secondary care in England (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). A survey of psychological support provision for people with inflammatory arthritis in secondary care in England. Musculoskeletal Care, 12(3), 173-181. https://doi.org/10.1002/msc.1071

© 2014 The Authors. Objectives: The consequences of inflammatory arthritis can include depression, anxiety and low mood, reducing patients' quality of life and increasing pressure on the healthcare system. Treatment guidelines recommend psychological... Read More about A survey of psychological support provision for people with inflammatory arthritis in secondary care in England.

“We all keep schtum”: The experiences and coping styles of men with RA (2015)
Presentation / Conference
Flurey, C., Hewlett, S., White, A., Rodham, K., Noddings, R., & Kirwan, J. (2015, November). “We all keep schtum”: The experiences and coping styles of men with RA. Presented at ACR/ARHP Annual Meeting 2015, San Francisco

“We all keep schtum”: The experiences and coping styles of men with RA

Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary (2015)
Journal Article
Bartlett, S. J., Bykerk, V. P., Cooksey, R., Choy, E. H., Alten, R., Christensen, R., …Bingham, C. O. (2015). Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary. Journal of Rheumatology, 42(11), 2185-2189. https://doi.org/10.3899/jrheum.141169

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. The Outcome Measures in Rheumatology (OMERACT) Rheumatoid Arthritis (RA) Flare Group was established to develop an approach to identify and measure RA flares. An overview o... Read More about Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary.