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All Outputs (54)

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article
Coggins, J., Grieve, S., Hart, D., Llewellyn, A., Palmer, M., Boichat, C., & McCabe, C. (2023). Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study. BMJ Open, 13(5), Article e070920. https://doi.org/10.1136/bmjopen-2022-070920

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article
Coggins, J., McCabe, C., Walsh, N., Pearson, J., Rolls, C., Collins, C., & Llewellyn, A. (2023). Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians. Musculoskeletal Care, 21(3), 871-877. https://doi.org/10.1002/msc.1764

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article
Llewellyn, A., Buckle, L., Grieve, S., Birklein, F., Brunner, F., Goebel, A., …McCabe, C. (2023). Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank. PAIN, 164(3), 543-554. https://doi.org/10.1097/j.pain.0000000000002729

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study (2021)
Journal Article
McCabe, C., Cramp, F., Gauntlett-Gilbert, J., & Davies, B. (2021). Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study. Pain and Rehabilitation, 50, 14-21

Objective Painful diabetic neuropathy (PDN) is a common complication of diabetes. This study explored the experience and impact of living with PDN. Design People with PDN were recruited through local NHS clinics and by national advertisement in di... Read More about Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study.

‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital (2021)
Journal Article
Percival, J., Abbott, K., Allain, T., Bradley, R., Cramp, F., Donovan, J. L., …Cotterill, N. (2021). ‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital. BMJ Open Quality, 10(2), Article e001380. https://doi.org/10.1136/bmjoq-2021-001380

Bladder and bowel control difficulties affect 20% and 10% of the UK population, respectively, touch all age groups and are particularly prevalent in the older (65+ years) population. However, the quality of continence care is often poor, compromising... Read More about ‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital.

Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia (2021)
Journal Article
Pattison, N., Deaton, C., McCabe, C., Coates, V., Johnston, B., Nolan, F., …Briggs, M. (2022). Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia. Journal of Clinical Nursing, 31(3-4), 353-361. https://doi.org/10.1111/jocn.15756

Background: Clinical academic nursing roles are rare, and clinical academic leadership positions even more scarce. Amongst the United Kingdom (UK) academia, only 3% of nurses who are employed within universities are clinically active. Furthermore, ac... Read More about Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia.

Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial (2021)
Journal Article
Lewis, J. S., Newport, R., Taylor, G., Smith, M., & McCabe, C. S. (2021). Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial. European Journal of Pain, 25(7), 1551-1563. https://doi.org/10.1002/ejp.1766

Background: Effective treatment of longstanding Complex Regional Pain Syndrome (CRPS) is a challenge, as causal mechanisms remain elusive. People with CRPS frequently report distorted subjective perceptions of their affected limb. Evidence of pain re... Read More about Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial.

Physical appearance and well-being in adults with incurable cancer: A thematic analysis (2020)
Journal Article
Tollow, P., Ogden, J., McCabe, C. S., & Harcourt, D. (2023). Physical appearance and well-being in adults with incurable cancer: A thematic analysis. BMJ Supportive and Palliative Care, 13(e1), e163-e169. https://doi.org/10.1136/bmjspcare-2020-002632

Objectives: Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance... Read More about Physical appearance and well-being in adults with incurable cancer: A thematic analysis.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

Beliefs, motives and gains associated with physical activity in people with osteoarthritis (2020)
Journal Article
Berry, A., McCabe, C. S., Halls, S., Muir, S., & Walsh, N. (2021). Beliefs, motives and gains associated with physical activity in people with osteoarthritis. Musculoskeletal Care, 19(1), 52-58. https://doi.org/10.1002/msc.1507

Objectives Osteoarthritis (OA) affects approximately 8.75 million people in the United Kingdom. Physical activity is recommended as a core treatment, yet 44% of people with OA are inactive. Motivation and self‐efficacy for exercise are considered to... Read More about Beliefs, motives and gains associated with physical activity in people with osteoarthritis.

What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review (2020)
Journal Article
Rolls, C., McCabe, C., Llewellyn, A., & Jones, G. T. (2020). What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review. Hand Therapy, 25(2), 45-55. https://doi.org/10.1177/1758998320910179

© The Author(s) 2020. Introduction: Complex regional pain syndrome (CRPS) is a severe chronic pain condition, the symptoms of which may develop following trauma to a limb. Despite wrist fracture being a common antecedent, estimates of the incidence o... Read More about What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review.

The contribution of motor commands to the perturbations induced by sensorimotor conflicts in fibromyalgia (2020)
Journal Article
Brun, C., McCabe, C. S., & Mercier, C. (2020). The contribution of motor commands to the perturbations induced by sensorimotor conflicts in fibromyalgia. Neuroscience, 434, 55-65. https://doi.org/10.1016/j.neuroscience.2020.03.017

Individuals with pain report higher sensory disturbances during sensorimotor conflicts compared to pain-free individuals. In the pain field, it is frequently assumed that disturbances arise from a discordance between sensory and efference copies (def... Read More about The contribution of motor commands to the perturbations induced by sensorimotor conflicts in fibromyalgia.

Bodily changes and sensory sensitivity in complex regional pain syndrome and fibromyalgia (2020)
Journal Article
Ten Brink, A. F., Peters, L., Kompouli, P., Jordan, A., McCabe, C. S., Goebel, A., & Bultitude, J. H. (2020). Bodily changes and sensory sensitivity in complex regional pain syndrome and fibromyalgia. PAIN, 161(6), 1361-1370. https://doi.org/10.1097/j.pain.0000000000001830

Complex regional pain syndrome (CRPS) and fibromyalgia are chronic pain conditions of unexplained origins. In addition to symptoms in the diagnostic criteria, patients can report changes to vision and other sensations or bodily functions. It is uncle... Read More about Bodily changes and sensory sensitivity in complex regional pain syndrome and fibromyalgia.

Successful and unsuccessful recruitment and retainment strategies in a UK multicentre drug trial for a rare chronic pain condition which performed above target (2019)
Journal Article
Bisla, J., Ambler, G., Frank, B., Gulati, S., Hocken, P., James, M., …Goebel, A. (2020). Successful and unsuccessful recruitment and retainment strategies in a UK multicentre drug trial for a rare chronic pain condition which performed above target. British Journal of Pain, 14(3), 171-179. https://doi.org/10.1177/2049463719893399

Introduction: Recruitment into trials in rare chronic pain conditions can be challenging, so such trials consequently are underpowered or fail. Methods: Drawing from our experience in conducting, to date, the largest academic trial in a rare chronic... Read More about Successful and unsuccessful recruitment and retainment strategies in a UK multicentre drug trial for a rare chronic pain condition which performed above target.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Journal Article
Armoogum, J., Harcourt, D., Foster, C., Llewellyn, A., & McCabe, C. S. (2020). The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis. European Journal of Cancer Care, 29(1), Article e13192. https://doi.org/10.1111/ecc.13192

Objective This qualitative evidence synthesis aimed to identify, review and synthesise qualitative research describing the experience of persistent pain in adult cancer survivors. Methods A systematic literature search was conducted between Dec... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.

Complex regional pain syndrome: An international survey of clinical practice (2019)
Journal Article
Grieve, S., Llewellyn, A., Jones, L., Manns, S., Glanville, V., & McCabe, C. (2019). Complex regional pain syndrome: An international survey of clinical practice. European Journal of Pain, 23(10), 1890-1903. https://doi.org/10.1002/ejp.1463

Background: Published guidelines promote best practice in complex regional pain syndrome (CRPS) treatment and management; however, these recommendations are not always applied in clinical practice. Understanding existing care internationally will hel... Read More about Complex regional pain syndrome: An international survey of clinical practice.

A multi-centre study to explore the feasibility and acceptability of collecting data for complex regional pain syndrome clinical studies using a core measurement set: Study protocol (2019)
Journal Article
Vaughan-Spickers, N., Vatine, J. J., Hirata, H., Grieve, S., Brunner, F., Buckle, L., …McCabe, C. (2019). A multi-centre study to explore the feasibility and acceptability of collecting data for complex regional pain syndrome clinical studies using a core measurement set: Study protocol. Musculoskeletal Care, https://doi.org/10.1002/msc.1408

© 2019 John Wiley & Sons, Ltd. Objectives: This international, multicentre study will inform the final data collection tools and processes which will comprise the first international, clinical research registry for complex regional pain syndrome (C... Read More about A multi-centre study to explore the feasibility and acceptability of collecting data for complex regional pain syndrome clinical studies using a core measurement set: Study protocol.

An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs (2019)
Journal Article
Llewellyn, A., Howard, C., & McCabe, C. (2019). An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs. European Journal of Oncology Nursing, 39, 47-54. https://doi.org/10.1016/j.ejon.2019.01.002

Purpose: Recent decades have seen improvements in UK breast cancer services and treatments. Despite this, it is recognised that a range of patients’ psychological and emotional needs remain unmet, both at the time of treatment and into survivorship... Read More about An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs.