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Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians

Coggins, Jessica; McCabe, Candida; Walsh, Nicola; Pearson, Jennifer; Rolls, Catherine; Collins, Catherine; Llewellyn, Alison

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians Thumbnail


Authors

Candy McCabe Candy.Mccabe@uwe.ac.uk
Professor of Clinical Research and Practice

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Nicola Walsh Nicola.Walsh@uwe.ac.uk
Professor in Knowledge Mobilisation & Muscul

Jen Pearson Jen.Pearson@uwe.ac.uk
Senior Lecturer in Physiotherapy (MSK and LTC)

Catherine Rolls

Catherine Collins

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Alison Llewellyn Alison.Llewellyn@uwe.ac.uk
Associate Professor in Clinical Research



Abstract

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movement of the painful limb. However, evidence suggests a lack of defined therapy pathways for CRPS. Aims: The current study aims to explore CRPS therapy management in centres of excellence in England, and outside of these settings, to understand what facilitates and hinders best practice. The overall aim is to develop a draft stratified package of care to expedite patient access to optimal CRPS therapy across the management pathway. Methods and Analysis: Semi-structured interviews will be conducted with therapists working in CRPS centres of excellence and with therapists in other settings. Observations of therapy interventions in CRPS centres of excellence and interviews with patients who have received this care, will also help to identify potential key care package components. Interview data will be analysed using thematic analysis, mapped to the Theoretical Domains Framework (TDF), and Intervention Mapping Adapt (IMA) framework. Observations will be described and documented using the TDF headings. Conclusion: A triangulation protocol for qualitative health research will be used to integrate all data. Online stakeholder events will be held using consensus methods to agree a draft package of care for future implementation following further refinement, testing and evaluation. Clinical Trial Registration: The trial was registered with ISRCTN registry on 24 February 2022 (ISRCTN16917807).

Citation

Coggins, J., McCabe, C., Walsh, N., Pearson, J., Rolls, C., Collins, C., & Llewellyn, A. (2023). Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians. Musculoskeletal Care, 21(3), 871-877. https://doi.org/10.1002/msc.1764

Journal Article Type Article
Acceptance Date Mar 18, 2023
Online Publication Date Mar 28, 2023
Publication Date Sep 30, 2023
Deposit Date Mar 23, 2023
Publicly Available Date Sep 27, 2023
Journal Musculoskeletal Care
Print ISSN 1478-2189
Electronic ISSN 1557-0681
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 21
Issue 3
Pages 871-877
DOI https://doi.org/10.1002/msc.1764
Keywords Care package, complex regional pain syndrome, therapy
Public URL https://uwe-repository.worktribe.com/output/10580292
Publisher URL https://onlinelibrary.wiley.com/doi/10.1002/msc.1764
Additional Information The trial was registered with ISRCTN registry on 24 February 2022 (ISRCTN16917807).

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