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Outputs (81)

The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer (2023)
Presentation / Conference Contribution

Title: The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer
Objectives/purpose: Development of clinical recommendations to improve experiences of chronic... Read More about The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives (2022)
Presentation / Conference Contribution

Background and Aims
Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition which usually occurs following limb trauma[1] and causes significant burden to individuals and society. The UK has a small number of specialist CRPS centres... Read More about The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.

‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital (2021)
Journal Article

Bladder and bowel control difficulties affect 20% and 10% of the UK population, respectively, touch all age groups and are particularly prevalent in the older (65+ years) population. However, the quality of continence care is often poor, compromising... Read More about ‘We tend to get pad happy’: A qualitative study of health practitioners’ perspectives on the quality of continence care for older people in hospital.

Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia (2021)
Journal Article

Background: Clinical academic nursing roles are rare, and clinical academic leadership positions even more scarce. Amongst the United Kingdom (UK) academia, only 3% of nurses who are employed within universities are clinically active. Furthermore, ac... Read More about Florence Nightingale's legacy for clinical academics: A framework analysis of a clinical professorial network and a model for clinical academia.

Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial (2021)
Journal Article

Background: Effective treatment of longstanding Complex Regional Pain Syndrome (CRPS) is a challenge, as causal mechanisms remain elusive. People with CRPS frequently report distorted subjective perceptions of their affected limb. Evidence of pain re... Read More about Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial.

What are the holistic experiences of adults living long-term with the consequences of cancer and its treatment? A qualitative evidence synthesis (2020)
Journal Article

© 2020 Elsevier Ltd Purpose: The number of people living with and beyond cancer is increasing; a significant number of these people will experience the long-term and late effects of cancer and its treatment. Research into this group has been identifi... Read More about What are the holistic experiences of adults living long-term with the consequences of cancer and its treatment? A qualitative evidence synthesis.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article

Introduction:
Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.

The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome (2020)
Journal Article

Purpose of the review: Non-medical therapeutic approaches are fundamental to the management of Complex Regional Pain Syndrome (CRPS) in order to promote the best outcome for patients. This review focuses on three key approaches underpinning CRPS reha... Read More about The role of non-medical therapeutic approaches in the rehabilitation of Complex Regional Pain Syndrome.

What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review (2020)
Journal Article

© The Author(s) 2020. Introduction: Complex regional pain syndrome (CRPS) is a severe chronic pain condition, the symptoms of which may develop following trauma to a limb. Despite wrist fracture being a common antecedent, estimates of the incidence o... Read More about What is the incidence of complex regional pain syndrome (CRPS) Type I within four months of a wrist fracture in the adult population? A systematic review.

The contribution of motor commands to the perturbations induced by sensorimotor conflicts in fibromyalgia (2020)
Journal Article

Individuals with pain report higher sensory disturbances during sensorimotor conflicts compared to pain-free individuals. In the pain field, it is frequently assumed that disturbances arise from a discordance between sensory and efference copies (def... Read More about The contribution of motor commands to the perturbations induced by sensorimotor conflicts in fibromyalgia.

What are the holistic experiences of adults living long-term with the consequences of cancer and its treatment? A qualitative evidence synthesis. (2020)
Presentation / Conference Contribution

Background
The number of people living with and beyond cancer is increasing (Linden, Love, Bowman and Maher, 2016). The nature of cancer and its treatment means a significant number of these people will experience the long-term and late effects of... Read More about What are the holistic experiences of adults living long-term with the consequences of cancer and its treatment? A qualitative evidence synthesis..

Successful and unsuccessful recruitment and retainment strategies in a UK multicentre drug trial for a rare chronic pain condition which performed above target (2019)
Journal Article

Introduction: Recruitment into trials in rare chronic pain conditions can be challenging, so such trials consequently are underpowered or fail. Methods: Drawing from our experience in conducting, to date, the largest academic trial in a rare chronic... Read More about Successful and unsuccessful recruitment and retainment strategies in a UK multicentre drug trial for a rare chronic pain condition which performed above target.

What is the incidence of Complex Regional Pain Syndrome type I within four months of a wrist fracture in the adult population? A systematic review (2019)
Presentation / Conference Contribution

Background and Aims
There is wide variation in the estimated incidence of Complex Regional Pain Syndrome (CRPS) prior to the development of the 2010 Budapest diagnostic criteria. Our aim is to establish the incidence of CRPS within four months of a... Read More about What is the incidence of Complex Regional Pain Syndrome type I within four months of a wrist fracture in the adult population? A systematic review.

A multi-centre study to explore the feasibility and acceptability of collecting data for complex regional pain syndrome clinical studies using a core measurement set: Study protocol (2019)
Journal Article

© 2019 John Wiley & Sons, Ltd. Objectives: This international, multicentre study will inform the final data collection tools and processes which will comprise the first international, clinical research registry for complex regional pain syndrome (C... Read More about A multi-centre study to explore the feasibility and acceptability of collecting data for complex regional pain syndrome clinical studies using a core measurement set: Study protocol.

Protocol: An e-Delphi study to define internationally agreed core clinical outcome measures for Complex Regional Pain Syndrome clinical research studies (2019)
Presentation / Conference Contribution

Background & objectives:
Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition characterised by a wide range of sensory, motor and autonomic abnormalities, usually in a single limb. CRPS clinical studies have historically used a... Read More about Protocol: An e-Delphi study to define internationally agreed core clinical outcome measures for Complex Regional Pain Syndrome clinical research studies.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Presentation / Conference Contribution

Background
Nearly 40% of cancer survivors have persistent pain, however, little is known about their experiences1. This is increasingly recognised in psychosocial oncology and persistent pain is a National Cancer Research Institute top 10 research... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.

An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs (2019)
Journal Article

Purpose:
Recent decades have seen improvements in UK breast cancer services and treatments. Despite this, it is recognised that a range of patients’ psychological and emotional needs remain unmet, both at the time of treatment and into survivorship... Read More about An exploration of the experiences of women treated with radiotherapy for breast cancer: Learning from recent and historical cohorts to identify enduring needs.

Standards for the diagnosis and management of Complex Regional Pain Syndrome: Results of a European Pain Federation task force (2019)
Journal Article

Background: Complex Regional Pain Syndrome is a painful and disabling post-traumatic primary pain disorder. Acute and chronic CRPS are major clinical challenges. In Europe progress is hampered by significant heterogeneity in clinical practice. We sou... Read More about Standards for the diagnosis and management of Complex Regional Pain Syndrome: Results of a European Pain Federation task force.

Maintained physical activity and physiotherapy in the management of distal arm pain: A randomised controlled trial (2019)
Journal Article

Objectives: The epidemiology of distal arm pain and back pain are similar. However, management differs considerably: for back pain, rest is discouraged, whereas patients with distal arm pain are commonly advised to rest and referred to physiotherapy.... Read More about Maintained physical activity and physiotherapy in the management of distal arm pain: A randomised controlled trial.

Measurement properties of the SF-MPQ-2 neuropathic qualities subscale in persons with CRPs: Validity, responsiveness, and Rasch analysis (2018)
Journal Article

© 2018 American Academy of Pain Medicine. All rights reserved. Objectives. The purpose of this study was to conduct classical psychometric evaluation and Rasch analysis on the Neuropathic Qualities subscale of the Short-Form McGill Pain Questionnaire... Read More about Measurement properties of the SF-MPQ-2 neuropathic qualities subscale in persons with CRPs: Validity, responsiveness, and Rasch analysis.

Sensory disturbances induced by sensorimotor conflicts are higher in complex regional pain syndrome and fibromyalgia compared to arthritis and healthy people, and positively relate to pain intensity (2018)
Journal Article

© 2018 European Pain Federation - EFIC® Background: Sensorimotor conflicts are well known to induce sensory disturbances. However, explanations as to why patients with chronic pain are more sensitive to sensorimotor conflicts remain elusive. The main... Read More about Sensory disturbances induced by sensorimotor conflicts are higher in complex regional pain syndrome and fibromyalgia compared to arthritis and healthy people, and positively relate to pain intensity.

Investigating patient outcomes following an intensive multidisciplinary rehabilitation programme, for the treatment of Complex Regional Pain Syndrome (CRPS) at a UK National specialist centre for pain (2018)
Presentation / Conference Contribution

AIM OF INVESTIGATION
Complex Regional Pain Syndrome (CRPS) is a condition characterised by highly distressing, persistent pain, which is usually trauma-induced but the associated pain is out of proportion to the initiating event. A number of mechani... Read More about Investigating patient outcomes following an intensive multidisciplinary rehabilitation programme, for the treatment of Complex Regional Pain Syndrome (CRPS) at a UK National specialist centre for pain.

Goals for rehabilitation: What are the priorities of patients with Complex Regional Pain Syndrome? (2018)
Presentation / Conference Contribution

AIM OF INVESTIGATION
Established UK guidelines for the management of Complex Regional Pain Syndrome (CRPS) advocate physical and vocational rehabilitation as one of the primary pillars of care1. In this context, rehabilitation services commonly see... Read More about Goals for rehabilitation: What are the priorities of patients with Complex Regional Pain Syndrome?.

Exploring the Relationships Between Altered Body Perception, Limb Position Sense, and Limb Movement Sense in Complex Regional Pain Syndrome (2018)
Journal Article

© 2018 The Authors Chronic pain is often accompanied by patient-reported distorted body perception and an altered kinesthesia (referring to the senses of limb position and limb movement), but the association between these deficits is unknown. The obj... Read More about Exploring the Relationships Between Altered Body Perception, Limb Position Sense, and Limb Movement Sense in Complex Regional Pain Syndrome.

Motor and sensory disturbances induced by sensorimotor conflicts during passive and active movements in healthy participants (2018)
Journal Article

© 2018 Brun et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credi... Read More about Motor and sensory disturbances induced by sensorimotor conflicts during passive and active movements in healthy participants.

The German version of the Bath Body Perception Disturbance Scale (BBPDS-D): Translation, cultural adaptation and linguistic validation on patients with complex regional pain syndrome (2018)
Journal Article

© 2018, Deutsche Schmerzgesellschaft e.V. Published by Springer Medizin Verlag GmbH, ein Teil von Springer Nature - all rights reserved. Background: Besides the classical clinical manifestations, body perception disturbances are common among patients... Read More about The German version of the Bath Body Perception Disturbance Scale (BBPDS-D): Translation, cultural adaptation and linguistic validation on patients with complex regional pain syndrome.

Cost-utility of maintained physical activity and physiotherapy in the management of distal arm pain: An economic evaluation of data from a randomized controlled trial (2018)
Journal Article

© 2018 The Author(s). Published by Oxford University Press. All rights reserved. Background Arm pain is common, costly to health services and society. Physiotherapy referral is standard management, and while awaiting treatment, advice is often given... Read More about Cost-utility of maintained physical activity and physiotherapy in the management of distal arm pain: An economic evaluation of data from a randomized controlled trial.

Digital behaviour change interventions to facilitate physical activity in osteoarthritis: A systematic review (2018)
Journal Article

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Background: Digital behaviour change interventions (DBCIs) might offer an opportunity to support people with osteoarthritis (OA) to self-manage and monitor their levels of physic... Read More about Digital behaviour change interventions to facilitate physical activity in osteoarthritis: A systematic review.

Complex regional pain syndrome acute care pathways in England: Do they exist and what do they look like? (2018)
Journal Article

© The Author(s) 2018. Introduction: Complex Regional Pain Syndrome is a condition with a high degree of morbidity and health costs to the National Health Service (NHS), characterised by persistent pain, sensory, motor, trophic and autonomic signs and... Read More about Complex regional pain syndrome acute care pathways in England: Do they exist and what do they look like?.

Clinical and cost-effectiveness of the STAR care pathway compared to usual care for patients with chronic pain after total knee replacement: Study protocol for a UK randomised controlled trial (2018)
Journal Article

Background
Approximately 20% of patients experience chronic pain after total knee replacement. There is little evidence for effective interventions for the management of this pain, and current healthcare provision is patchy and inconsistent. Given... Read More about Clinical and cost-effectiveness of the STAR care pathway compared to usual care for patients with chronic pain after total knee replacement: Study protocol for a UK randomised controlled trial.

Low-dose intravenous immunoglobulin treatment for long-standing complex regional pain syndrome a randomized trial (2017)
Journal Article

© 2017 American College of Physicians. Background: Two small trials suggest that low-dose intravenous immunoglobulin (IVIg) may improve the symptoms of complex regional pain syndrome (CRPS), a rare posttraumatic pain condition.Objective: To confirm t... Read More about Low-dose intravenous immunoglobulin treatment for long-standing complex regional pain syndrome a randomized trial.

Sensory disturbances, but not motor disturbances, induced by sensorimotor conflicts are increased in the presence of acute pain (2017)
Journal Article

© 2017 Brun, Gagné, McCabe and Mercier. Incongruence between our motor intention and the sensory feedback of the action (sensorimotor conflict) induces abnormalities in sensory perception in various chronic pain populations, and to a lesser extent in... Read More about Sensory disturbances, but not motor disturbances, induced by sensorimotor conflicts are increased in the presence of acute pain.

Recommendations for a first Core Outcome Measurement set for complex regional PAin syndrome Clinical sTudies (COMPACT) (2017)
Journal Article

© 2017 by the International Association for the Study of Pain. Complex regional pain syndrome (CRPS) is a persistent pain condition that remains incompletely understood and challenging to treat. Historically, a wide range of different outcome measure... Read More about Recommendations for a first Core Outcome Measurement set for complex regional PAin syndrome Clinical sTudies (COMPACT).

Understanding the physical and mental functioning of those with persistent and resolved Complex Regional Pain Syndrome to help inform treatment approaches (2016)
Presentation / Conference Contribution

Background
Pain is bio-psychosocial in nature. Recognising the inter-relationship of physical and psychological factors in Complex Regional Pain Syndrome (CRPS) has clinical implications for treating this often poorly understood chronic pain condit... Read More about Understanding the physical and mental functioning of those with persistent and resolved Complex Regional Pain Syndrome to help inform treatment approaches.

Patient-directed therapy during in-patient stroke rehabilitation: Stroke survivors' views of feasibility and acceptability (2015)
Journal Article

© 2015 Informa UK Ltd. All rights reserved. Purpose: Patient-led therapy, in which patients work outside therapy sessions without direct supervision, is a possible way to increase the amount of therapy stroke patients' receive without increasing staf... Read More about Patient-directed therapy during in-patient stroke rehabilitation: Stroke survivors' views of feasibility and acceptability.

Investigating reports of complex regional pain syndrome: An analysis of HPV-16/18-adjuvanted vaccine post-licensure data (2015)
Journal Article

© 2015. Complex regional pain syndrome (CRPS) is a chronic pain disorder that typically follows trauma or surgery. Suspected CRPS reported after vaccination with human papillomavirus (HPV) vaccines led to temporary suspension of proactive recommendat... Read More about Investigating reports of complex regional pain syndrome: An analysis of HPV-16/18-adjuvanted vaccine post-licensure data.

'What I Really Needed Was the Truth'. Exploring the Information Needs of People with Complex Regional Pain Syndrome (2015)
Journal Article

© 2016 John Wiley & Sons, Ltd. Background: UK guidelines indicate that individuals with complex regional pain syndrome (CRPS) require information and education to support self-management. The present qualitative study explored the specific informat... Read More about 'What I Really Needed Was the Truth'. Exploring the Information Needs of People with Complex Regional Pain Syndrome.

Establishing the characteristics for patients with chronic Complex Regional Pain Syndrome: The value of the CRPS-UK Registry (2015)
Journal Article

© The British Pain Society 2014. Objective: The long-term prognosis of patients with Complex Regional Pain Syndrome (CRPS) is unknown with no reported prospective studies from the United Kingdom longer than 18 months. The CRPS-UK Network aims to stud... Read More about Establishing the characteristics for patients with chronic Complex Regional Pain Syndrome: The value of the CRPS-UK Registry.

Phase II pragmatic randomized controlled trial of patient-led therapies mMirror therapy and lower-limb exercises) during inpatient stroke rehabilitation (2015)
Journal Article

© American Society of Neurorehabilitation. Background and objective. Patient-led therapy has the potential to increase the amount of therapy patients undertake during stroke rehabilitation and to enhance recovery. Our objective was to assess the feas... Read More about Phase II pragmatic randomized controlled trial of patient-led therapies mMirror therapy and lower-limb exercises) during inpatient stroke rehabilitation.

Maintained physical activity and physiotherapy in the management of distal upper limb pain - A protocol for a randomised controlled trial (the arm pain trial) (2014)
Journal Article

Background: Distal upper limb pain (pain affecting the elbow, forearm, wrist, or hand) can be non-specific, or can arise from specific musculoskeletal disorders. It is clinically important and costly, the best approach to clinical management is uncle... Read More about Maintained physical activity and physiotherapy in the management of distal upper limb pain - A protocol for a randomised controlled trial (the arm pain trial).

Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome (2013)
Journal Article

Patients with Complex Regional Pain Syndrome (CRPS) experience distressing changes in body perception. However representing body perception is a challenge. A digital media tool for communicating body perception disturbances was developed. A proof of... Read More about Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome.

Clinical evidence of parietal cortex dysfunction and correlation with extent of allodynia in CRPS type 1 (2013)
Journal Article

Background: Unusual symptoms such as digit misidentification and neglect-like phenomena have been reported in complex regional pain syndrome (CRPS), which we hypothesized could be explained by parietal lobe dysfunction. Methods: Twenty-two patients w... Read More about Clinical evidence of parietal cortex dysfunction and correlation with extent of allodynia in CRPS type 1.

Transitioning from a hospital rehabilitation programme to home: Exploring the experiences of people with complex regional pain syndrome (2012)
Journal Article

Complex regional pain syndrome (CRPS) is difficult to diagnose and is characterised by burning pain in one or more limbs. Treatment is palliative not curative and focuses on improving function. This requires patients to make long-term changes to thei... Read More about Transitioning from a hospital rehabilitation programme to home: Exploring the experiences of people with complex regional pain syndrome.

Clinical evidence of parietal cortex dysfunction and correlation with extent of allodynia in Complex Regional Pain Syndrome (CRPS) Type 1 (2012)
Journal Article

- What's already known about this topic? There is increasing neuroimaging evidence of parietal lobe involvement in CRPS. Severe tactile allodynia and unusual symptoms such as body dysmorphia and finger agnosia have also been documented. - What does t... Read More about Clinical evidence of parietal cortex dysfunction and correlation with extent of allodynia in Complex Regional Pain Syndrome (CRPS) Type 1.

Using graded motor imagery for complex regional pain syndrome in clinical practice: Failure to improve pain (2012)
Journal Article

There is good evidence from studies conducted in a single-centre research setting for the efficacy of graded motor imagery (GMI) treatment, a complex physiotherapy intervention, to reduce pain in long-standing complex regional pain syndrome (CRPS). H... Read More about Using graded motor imagery for complex regional pain syndrome in clinical practice: Failure to improve pain.