Karen Rodham
Coping with chronic complex regional pain syndrome: Advice from patients for patients
Rodham, Karen; McCabe, Candy; Pilkington, Melissa; Regan, Laurence
Authors
Candy McCabe Candy.Mccabe@uwe.ac.uk
Professor of Clinical Research and Practice
Melissa Pilkington
Laurence Regan
Abstract
Objective: To explore what advice people currently living with chronic complex regional pain syndrome would offer to another person coming to terms with a diagnosis of chronic complex regional pain syndrome.Methods: Semi-structured interviews with 21 adults (5 male) living with chronic complex regional pain syndrome who had completed a complex regional pain syndrome rehabilitation programme were conducted.Results: Effectively self-managing complex regional pain syndrome required individuals to play an active role. This could only be achieved if they felt they had sufficient control. Means of attaining control involved attaining a level of acceptance, becoming well-informed and accessing the right kind of support. The advice offered by patients for patients largely reflected that offered by healthcare professionals. One area where there was a conflict concerned sleep hygiene.Conclusions: Our study provides support both for the argument put forward by Redman that without appropriate preparation and support, self-management is ineffective, and that by Skuladottir and Hallsdottir that the main challenge of the chronic pain trajectory is that of retaining a sense of control. The clinical implications of this are discussed. © The Author(s) 2012 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.
Citation
Rodham, K., McCabe, C., Pilkington, M., & Regan, L. (2013). Coping with chronic complex regional pain syndrome: Advice from patients for patients. Chronic Illness, 9(1), 29-42. https://doi.org/10.1177/1742395312450178
Journal Article Type | Article |
---|---|
Publication Date | Mar 1, 2013 |
Publicly Available Date | Jun 8, 2019 |
Journal | Chronic Illness |
Print ISSN | 1742-3953 |
Electronic ISSN | 1745-9206 |
Publisher | SAGE Publications |
Peer Reviewed | Peer Reviewed |
Volume | 9 |
Issue | 1 |
Pages | 29-42 |
DOI | https://doi.org/10.1177/1742395312450178 |
Keywords | complex regional pain syndrome, self-management, thematic analysis, advice, patients, coping |
Public URL | https://uwe-repository.worktribe.com/output/955363 |
Publisher URL | http://dx.doi.org/10.1177/1742395312450178 |
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