Is there a role for citizen science in death and dying research?

Wilkinson, Clare; Llewellyn, Alison; McCabe, Candy

doi:10.3389/fpubh.2023.1241239

Is there a role for citizen science in death and dying research?

Wilkinson, Clare; Llewellyn, Alison; McCabe, Candy

Authors

Clare Wilkinson Clare.Wilkinson@uwe.ac.uk
Professor in Science Communication

Alison Llewellyn Alison.Llewellyn@uwe.ac.uk
Associate Professor in Clinical Research

Candy McCabe Candy.Mccabe@uwe.ac.uk
Professor of Clinical Research and Practice

Abstract

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of digital media for information and support. Public engagement can provoke a two-way conversation between researchers and the public and includes techniques that can engage the community not only with the topic but also in research. This perspective article considers the potential role of citizen science in death and dying research, including considerations around its potential benefits and constraints.

Journal Article Type	Article
Acceptance Date	Sep 4, 2023
Online Publication Date	Sep 19, 2023
Publication Date	Sep 19, 2023
Deposit Date	Sep 19, 2023
Publicly Available Date	Sep 20, 2023
Journal	Frontiers in Public Health
Electronic ISSN	2296-2565
Publisher	Frontiers Media
Peer Reviewed	Peer Reviewed
Volume	11
Article Number	1241239
DOI	https://doi.org/10.3389/fpubh.2023.1241239
Keywords	hospice, dying, end-of-life care, public engagement, death, citizen science
Public URL	https://uwe-repository.worktribe.com/output/11126099
Publisher URL	https://www.frontiersin.org/articles/10.3389/fpubh.2023.1241239/full?&utm_source=Email_to_authors_&utm_medium=Email&utm_content=T1_11.5e1_author&utm_campaign=Email_publication&field=&journalName=Frontiers_in_Public_Health&id=1241239