Public involvement and public engagement: An example of convergent evolution? Findings from a conceptual qualitative review of patient and public involvement, and public engagement, in health and scientific research.

Wilkinson, Clare; Gibson, Andy; Biddle, Michele; Hobbs, Laura

Abstract

Patient and public involvement (PPI) in health research is now well-established, whilst science, technology, engineering and mathematics (STEM) research has shifted from a focus on science communication alone to public engagement (PE) within its research processes. Despite frequently drawing on similar theoretical influences, and practical motivations, there is often a lack of dialogue between such settings meaning shared learning, practice and evidence from these two sectors are rarely pooled. In this article, we examine findings from a conceptual review of literature gathered between 1996 and 2019. Analyzing 142 peer-reviewed articles, we ascertain shared definitions and concepts in patient and public involvement and public engagement, identifying key differences and similarities. The literature we review supports the notion that, in terms of origins, there are two distinct traditions, one based in science communication and one based in what we describe as public involvement in shared decision-making. We find evidence that the two traditions are converging but our work also calls for the need for further conversations between these two settings, which are exploring intersecting issues but from parallel pathways. [Abstract copyright: © 2024 The Authors.]

• Journal Article Type: Article
• Acceptance Date: Apr 5, 2024
• Online Publication Date: Apr 7, 2024
• Publication Date: Dec 31, 2024
• Deposit Date: Apr 12, 2024
• Publicly Available Date: Apr 12, 2024
• Journal: PEC innovation
• Print ISSN: 2772-6282
• Electronic ISSN: 2772-6282
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 4
• Article Number: 100281
• DOI: https://doi.org/10.1016/j.pecinn.2024.100281
• Keywords: Health research, Patient involvement, Science communication, Public engagement, Scientific research, Public involvement
• Public URL: https://uwe-repository.worktribe.com/output/11891053
• Publisher URL: https://www.sciencedirect.com/science/article/pii/S2772628224000293?via%3Dihub
• Additional Information: This article is maintained by: Elsevier; Article Title: Public involvement and public engagement: An example of convergent evolution? Findings from a conceptual qualitative review of patient and public involvement, and public engagement, in health and scientific research; Journal Title: PEC Innovation; CrossRef DOI link to publisher maintained version: https://doi.org/10.1016/j.pecinn.2024.100281; Content Type: article; Copyright: © 2024 The Authors. Published by Elsevier B.V.