Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome

McCabe, Candida S.; Moss, Timothy P.; Turton, Ailie J.; Turton, Ailie; Palmer, Mark; Grieve, Sharon; Moss, Timothy; Lewis, Jenny; McCabe, Candy

doi:10.3389/fnhum.2013.00517

Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome

McCabe, Candida S.; Moss, Timothy P.; Turton, Ailie J.; Turton, Ailie; Palmer, Mark; Grieve, Sharon; Moss, Timothy; Lewis, Jenny; McCabe, Candy

Authors

Candida S. McCabe

Timothy P. Moss

Ailie J. Turton

Ailie Turton Ailie.Turton@uwe.ac.uk
Senior Lecturer in Occupational Therapy

Mark Palmer Mark.Palmer@uwe.ac.uk
Occasional Associate Lecturer - CATE - CCT

Sharon Grieve

Tim Moss Tim.Moss@uwe.ac.uk
Director of PGR Studies and Associate Professor

Dr Jenny Lewis Jenny4.Lewis@uwe.ac.uk
Associate Professor in Clinical Research

Candy McCabe Candy.Mccabe@uwe.ac.uk
Professor of Clinical Research and Practice

Abstract

Patients with Complex Regional Pain Syndrome (CRPS) experience distressing changes in body perception. However representing body perception is a challenge. A digital media tool for communicating body perception disturbances was developed. A proof of concept study evaluating the acceptability of the application for patients to communicate their body perception is reported in this methods paper. Thirteen CRPS participants admitted to a 2-week inpatient rehabilitation program used the application in a consultation with a research nurse. Audio recordings were made of the process and a structured questionnaire was administered to capture experiences of using the tool. Participants produced powerful images of disturbances in their body perception. All reported the tool acceptable for communicating their body perception. Participants described the positive impact of now seeing an image they had previously only imagined and could now convey to others. The application has provided a novel way for communicating perceptions that are otherwise difficult to convey. © 2013 Turton, Palmer, Grieve, Moss, Lewis and McCabe.

Journal Article Type	Article
Publication Date	Aug 28, 2013
Publicly Available Date	Jun 7, 2019
Journal	Frontiers in Human Neuroscience
Publisher	Frontiers Media
Peer Reviewed	Peer Reviewed
Volume	7
Issue	AUG
DOI	https://doi.org/10.3389/fnhum.2013.00517
Keywords	body perception, complex regional pain syndrome, assessment, body schema, communication
Public URL	https://uwe-repository.worktribe.com/output/928915
Publisher URL	http://dx.doi.org/10.3389/fnhum.2013.00517
Additional Information	Additional Information : This document is protected by copyright and was first published by Frontiers. All rights reserved. it is reproduced with permission.