All Outputs (108)

Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages (2016)
Journal Article
Hagel, S., Bode, C., Hewlett, S., Nicklin, J., Bode, C., Carmona, L., …Gossec, L. (2016). Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages. Rheumatology, 55(6), 1009-1016. https://doi.org/10.1093/rheumatology/kew011

© The Author 2016. Objective. Cross-cultural translation of patient-reported outcome measures (PROMs) is a lengthy process, often performed professionally. Cognitive interviewing assesses patient comprehension of PROMs. The objective was to evaluate... Read More about Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures (2016)
Journal Article
Sanderson, T., Kirwan, J., Almeida, C., Morris, M., Noddings, R., & Hewlett, S. (2016). Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures. Patient, 9(2), 103-115. https://doi.org/10.1007/s40271-015-0130-3

© 2015, Springer International Publishing Switzerland. Background: The assessment of rheumatoid arthritis (RA) is dominated by core sets and indices that have been developed by RA professionals. Previous research developed a set of eight priority tre... Read More about Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures.

A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations (2016)
Journal Article
Clarke, J., Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2016). A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations. BMC Musculoskeletal Disorders, 17(1), 129-137. https://doi.org/10.1186/s12891-016-0984-0

© 2016 Dures et al. Background: Self-management of inflammatory arthritis (IA) requires patients to address the impact of symptoms, treatment, and the psychosocial consequences of a long term condition. There are several possible mechanisms for facil... Read More about A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set (2016)
Journal Article
Bykerk, V. P., Bingham, C. O., Choy, E. H., Lin, D., Alten, R., Christensen, R., …Pohl, C. (2016). Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set. RMD Open, 2(1), Article e000225. https://doi.org/10.1136/rmdopen-2015-000225

Objective: To evaluate the reliability of concurrent flare identification using 3 methods (patient, rheumatologist and Disease Activity Score (DAS)28 criteria), and construct validity of candidate items representing the Outcome Measures in Rheumatolo... Read More about Identifying flares in rheumatoid arthritis: Reliability and construct validation of the OMERACT RA Flare Core Domain Set.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article
Hewlett, S. E., Flurey, C., Van Tuyl, L. H., Sadlonova, M., Davis, B., Flurey, C. A., …Boers, M. (2016). Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12. Journal of Rheumatology, 43(1), 203-207. https://doi.org/10.3899/jrheum.141113

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Patient preferences for psychological support in inflammatory arthritis: A multicentre survey (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). Patient preferences for psychological support in inflammatory arthritis: A multicentre survey. Annals of the Rheumatic Diseases, 75(1), 142-147. https://doi.org/10.1136/annrheumdis-2014-205636

Objectives. Inflammatory arthritis (IA) can lead to anxiety, depression, pain and fatigue. Psychological support can improve quality of life and selfmanagement; and European and American guidelines recommend support be offered. This study examined pa... Read More about Patient preferences for psychological support in inflammatory arthritis: A multicentre survey.

A survey of psychological support provision for people with inflammatory arthritis in secondary care in England (2016)
Journal Article
Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., …Hewlett, S. (2016). A survey of psychological support provision for people with inflammatory arthritis in secondary care in England. Musculoskeletal Care, 12(3), 173-181. https://doi.org/10.1002/msc.1071

© 2014 The Authors. Objectives: The consequences of inflammatory arthritis can include depression, anxiety and low mood, reducing patients' quality of life and increasing pressure on the healthcare system. Treatment guidelines recommend psychological... Read More about A survey of psychological support provision for people with inflammatory arthritis in secondary care in England.

Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary (2015)
Journal Article
Bartlett, S. J., Bykerk, V. P., Cooksey, R., Choy, E. H., Alten, R., Christensen, R., …Bingham, C. O. (2015). Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary. Journal of Rheumatology, 42(11), 2185-2189. https://doi.org/10.3899/jrheum.141169

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. The Outcome Measures in Rheumatology (OMERACT) Rheumatoid Arthritis (RA) Flare Group was established to develop an approach to identify and measure RA flares. An overview o... Read More about Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article
van Tuyl, L. H. D., Hewlett, S., Sadlonova, M., Davis, B., Flurey, C. A., Hoogland, W., …Boers, M. (2015). The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'. Annals of the Rheumatic Diseases, 74(6), 1004-1010. https://doi.org/10.1136/annrheumdis-2013-204798

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions (2015)
Journal Article
Woodworth, T. G., March, L., Furst, D. E., Christensen, R., Choy, E. H., Bykerk, V. P., …Bingham III, C. O. (2015). More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions. Journal of Rheumatology, 42(11), 2182-2184. https://doi.org/10.3899/jrheum.141172

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. Stiffness was endorsed within the rheumatoid arthritis (RA) flare core domain set at the previous Outcome Measures in Rheumatology meeting (OMERACT 11). Two stiffness break... Read More about More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions.

Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis (2015)
Journal Article
Cramp, F. A., Withall, J., Haase, A., Walsh, N., Young, A., & Hewlett, S. (2015). Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis. Annals of the Rheumatic Diseases, 74(Supp 2), 1336. https://doi.org/10.1136/annrheumdis-2015-eular.1647

Background People with rheumatoid arthritis (RA) are less physically active (PA) than the general population and lower PA levels are associated with work disability, reduced physical function and co-morbidities. This suggests an urgent need to identi... Read More about Development of a physical activity programme for people with recently diagnosed rheumatoid arthritis.

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches (2015)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Blair, P. S., Choy, E., Dures, E., …Pollock, J. (2015). Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches. BMJ Open, 5(8), https://doi.org/10.1136/bmjopen-2015-009061

Introduction: Rheumatoid arthritis (RA) fatigue is distressing, leading to unmanageable physical and cognitive exhaustion impacting on health, leisure and work. Group cognitive-behavioural (CB) therapy delivered by a clinical psychologist demonstrate... Read More about Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches.

Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis (2014)
Journal Article
Kirwan, J., Halls, S., Dures, E., Kirwan, J. R., Pollock, J., Baker, G., …Hewlett, S. (2014). Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis. Rheumatology, 54(4), 615-622. https://doi.org/10.1093/rheumatology/keu379

© The Author 2014. Objective. Stiffness is internationally recognized as an important indicator of inflammatory activity in RA but is poorly understood and difficult to measure. The aim of this study was to explore the experience of stiffness from th... Read More about Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis.

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article
Hughes, R., Richards, P., Flurey, C. A., Morris, M., Pollock, J., & Hewlett, S. (2014). A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis. BMC Musculoskeletal Disorders, 15(1), 364. https://doi.org/10.1186/1471-2474-15-364

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes (2014)
Journal Article
Hughes, R., Flurey, C. A., Morris, M., Richards, P., & Hewlett, S. (2014). It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology, 53(4), 696-703. https://doi.org/10.1093/rheumatology/ket416

Objective: The objective of this study was to explore patients' experiences of RA daily life while on modern treatments. Methods: The methods of this study comprised semi-structured interviews with 15 RA patients, analysed using inductive thematic an... Read More about It's like a juggling act: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management (2014)
Journal Article
Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J., & Gooberman-Hill, R. (2014). Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management. BMC Musculoskeletal Disorders, 15(1), 108. https://doi.org/10.1186/1471-2474-15-108

Background: Self-management of arthritis requires informed, activated patients to manage its physical and psychosocial consequences. Patient activation and self-management can be enhanced through the use of cognitive-behavioural approaches, which hav... Read More about Rheumatology clinicians' experiences of brief training and implementation of skills to support patient self-management.

Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets (2014)
Journal Article
Landewé, R. B., D'Agostino, M. A., Kirwan, J. R., Boers, M., Hewlett, S., Beaton, D., …Tugwell, P. (2014). Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets. Journal of Rheumatology, 41(5), 994-999. https://doi.org/10.3899/jrheum.131309

Objective. The Outcome Measures in Rheumatology (OMERACT) Filter provides guidelines for the development and validation of outcome measures for use in clinical research. The "Truth" section of the OMERACT Filter presupposes an explicit framework for... Read More about Updating the OMERACT Filter: Core areas as a basis for defining core outcome sets.

Patient involvement in outcome measures for Psoriatic arthritis (2014)
Journal Article
O'Sullivan, D., Tillett, W., Adebajo, A., Brooke, M., Campbell, W., Coates, L. C., …McHugh, N. (2014). Patient involvement in outcome measures for Psoriatic arthritis. Current Rheumatology Reports, 16(5), 418. https://doi.org/10.1007/s11926-014-0418-7

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures... Read More about Patient involvement in outcome measures for Psoriatic arthritis.

Updating the omeract filter: Discrimination and feasibility (2014)
Journal Article
OØstergaard, M., Landewé, R. B., D'Agostino, M. A., OØstergaard, M., Wells, G., Beaton, D. E., …Van Der Heijde, D. M. (2014). Updating the omeract filter: Discrimination and feasibility. Journal of Rheumatology, 41(5), 1005-1010. https://doi.org/10.3899/jrheum.131311

The " Discrimination" part of the OMERACT Filter asks whether a measure discriminates between situations that are of interest. " Feasibility" in the OMERACT Filter encompasses the practical considerations of using an instrument, including its ease of... Read More about Updating the omeract filter: Discrimination and feasibility.

Updating the omeract filter: Implications for patient-reported outcomes (2014)
Journal Article
Voshaar, M. M., Nikaï, E., Landewé, R. B., Boers, B., Kirwan, J. R., Bartlett, S. J., …Gossec, L. (2014). Updating the omeract filter: Implications for patient-reported outcomes. Journal of Rheumatology, 41(5), 1011-1015. https://doi.org/10.3899/jrheum.131312

Objective: At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument... Read More about Updating the omeract filter: Implications for patient-reported outcomes.