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Patient involvement in outcome measures for Psoriatic arthritis

O'Sullivan, Dennis; Tillett, William; Adebajo, Ade; Brooke, Mel; Campbell, Willemina; Coates, Laura C.; FitzGerald, Oliver; Gossec, Laure; Helliwell, Philip; Hewlett, Sarah; James, Jana; Minnock, Patricia; Reast, Aisling; De Wit, Maarten; McHugh, Neil

Authors

Dennis O'Sullivan

William Tillett

Ade Adebajo

Mel Brooke

Willemina Campbell

Laura C. Coates

Oliver FitzGerald

Laure Gossec

Philip Helliwell

Jana James

Patricia Minnock

Aisling Reast

Maarten De Wit

Neil McHugh



Abstract

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures to capture all aspects of this complex disease. It has been recognised that patient-reported measures and physician assessments are complementary and, when used together, allow an improved reflection of disease burden. Taking this concept one step further, the experience in rheumatoid arthritis has demonstrated benefits of incorporating the patient perspective in the development of outcome measures. We report a systematic review demonstrating (1) that there has been little incorporation of the patient perspective in the development of outcome measures and domains in PsA, (2) the proceedings from the preliminary patient involvement in outcome measures for PsA (PIOMPSA) meetings, and (3) a proposed roadmap for improving patient involvement. © Springer Science+Business Media New York 2014.

Journal Article Type Article
Publication Date Jan 1, 2014
Journal Current Rheumatology Reports
Print ISSN 1523-3774
Electronic ISSN 1534-6307
Publisher Springer (part of Springer Nature)
Peer Reviewed Peer Reviewed
Volume 16
Issue 5
Pages 418
APA6 Citation O'Sullivan, D., Tillett, W., Adebajo, A., Brooke, M., Campbell, W., Coates, L. C., …McHugh, N. (2014). Patient involvement in outcome measures for Psoriatic arthritis. Current Rheumatology Reports, 16(5), 418. https://doi.org/10.1007/s11926-014-0418-7
DOI https://doi.org/10.1007/s11926-014-0418-7
Keywords psoriatic arthritis, outcome measures, assessment, disease activity, patient-reported outcomes, patient involvement, PIOMPSA, OMERACT
Publisher URL http://dx.doi.org/10.1007/s11926-014-0418-7
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