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Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory (2021)
Journal Article
Bennett, S. E., Walsh, N., Moss, T., & Palmer, S. (in press). Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory. Disability and Rehabilitation, 1-10. https://doi.org/10.1080/09638288.2021.1933618

Purpose: Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS) are heritable connective tissue disorders associated with joint instability and pain, but with scant guidance for supporting patients. The aim was to determ... Read More about Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory.

OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe (2020)
Journal Article
Bennett, S., Zangi, H. A., Van Tubergen, A., & Ndosi, M. (2020). OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe. Annals of the Rheumatic Diseases, 79(S1), 99--99. https://doi.org/10.1136/annrheumdis-2020-eular.3251

Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.

Understanding the psychosocial impact of Joint Hypermobility and Ehlers-Danlos Syndrome (2020)
Thesis
Bennett, S. Understanding the psychosocial impact of Joint Hypermobility and Ehlers-Danlos Syndrome. (Thesis). University of the West of England. Retrieved from https://uwe-repository.worktribe.com/output/4522950

Abstract Introduction: Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT) are heritable disorders affecting connective tissue. Existing research has predominately focused on biological features such as joint... Read More about Understanding the psychosocial impact of Joint Hypermobility and Ehlers-Danlos Syndrome.

Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study (2019)
Journal Article
Bennett, S., Walsh, N., Moss, T., & Palmer, S. (2021). Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study. Disability and Rehabilitation, 43(6), 795-804. https://doi.org/10.1080/09638288.2019.1641848

Purpose: Little attention has been paid to psychosocial factors in Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome (hypermobility type). This study sought to identify the psychosocial impact by examining participants’ lived experiences; and i... Read More about Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study.

The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis (2019)
Journal Article
Bennett, S. E., Walsh, N., Moss, T., & Palmer, S. (2019). The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis. Physical Therapy Reviews, 24(1-2), 12-28. https://doi.org/10.1080/10833196.2019.1590674

© 2019, © 2019 Informa UK Limited, trading as Taylor & Francis Group. Background: Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (EDS) are heritable connective tissue disorders characterised by joint instability, pain, anxiety, depre... Read More about The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis.

The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study (2018)
Presentation / Conference
Bennett, S., Walsh, N., Moss, T., & Palmer, S. (2018, June). The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study. Poster presented at The European League Against Rheumatism (EULAR) conference, Amsterdam, The Netherlands

Background: Existing research examining those with Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (Hypermobility Type) (EDS-HT) has predominately focused on factors such as pain, range of movement and physical function. However psychos... Read More about The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study.