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Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study

Bennett, Sarah; Walsh, Nicola; Moss, Timothy; Palmer, Shea

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Authors

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Sarah Bennett Sarah9.Bennett@uwe.ac.uk
Occasional Associate Lecturer - HAS AHP

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Nicola Walsh Nicola.Walsh@uwe.ac.uk
Professor in Knowledge Mobilisation & Muscul

Tim Moss Tim.Moss@uwe.ac.uk
Director of PGR Studies and Associate Professor

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Shea Palmer Shea.Palmer@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSW



Abstract

Purpose: Little attention has been paid to psychosocial factors in Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome (hypermobility type). This study sought to identify the psychosocial impact by examining participants’ lived experiences; and identify characteristics of effective coping. Materials and methods: Adults with Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome (Hypermobility Type) were invited to discuss their own lived experiences and the impact of the condition. All met recognized criteria for clinically significant joint hypermobility, and had a self-confirmed diagnosis. The transcripts were coded and analyzed using inductive thematic analysis. Results: Seventeen participants (14 women, 3 men) purposively selected to broadly represent different genders, ages and ethnicities. Analysis identified five key themes: healthcare limitations, a lack of awareness of Joint Hypermobility, and Ehlers–Danlos Syndrome (Hypermobility Type) among healthcare professionals; a restricted life; social stigma; fear of the unknown; and ways of coping. Conclusions: The results highlight the significant psychosocial impact on participants’ lives. Coping approaches identified included acceptance, building social networks, learning about joint hypermobility, and adapting activities. Physiotherapists supported regular exercise. Further research should consider potential interventions to improve information provision, address psychological support, and increase awareness of hypermobility among healthcare professionals.Implications for rehabilitation Participants who had help from family members to complete activities described guilt and shame, highlighting the need for a greater rehabilitation focus on maintaining independence. Difficulties with sexual relationships due to prolapse or erectile dysfunction, and associated anxieties have indicated a need for greater awareness of these issues within primary care. The provision of reliable information and materials is vital, both for healthcare professionals and patients, to reduce misinformation and fear. Physiotherapists with knowledge of Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome hypermobility type were cited as sources of support and hope, which helped people to cope with and manage their condition.

Citation

Bennett, S., Walsh, N., Moss, T., & Palmer, S. (2021). Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study. Disability and Rehabilitation, 43(6), 795-804. https://doi.org/10.1080/09638288.2019.1641848

Journal Article Type Article
Acceptance Date Jul 7, 2019
Online Publication Date Jul 18, 2019
Publication Date Jan 1, 2021
Deposit Date Jul 8, 2019
Publicly Available Date Jul 19, 2020
Journal Disability and Rehabilitation
Print ISSN 0963-8288
Electronic ISSN 1464-5165
Publisher Taylor & Francis
Peer Reviewed Peer Reviewed
Volume 43
Issue 6
Pages 795-804
DOI https://doi.org/10.1080/09638288.2019.1641848
Keywords Ehlers-Danlos Syndrome, Joint laxity, familial, Joint Instability, Psychosocial Support Systems, Qualitative Research
Public URL https://uwe-repository.worktribe.com/output/1492010
Publisher URL http://dx.doi.org/10.1080/09638288.2019.1641848

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Copyright Statement
This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on 18 Jul 2019, available online: http://www.tandfonline.com/doi/full/10.1080/09638288.2019.1641848. It is deposited under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited.”







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