All Outputs (8)

“I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia (2024)
Journal Article
Stock, N., Costa, B., Johns, A., McKinney, C., Drake, A., Schefer, A., & Heike, C. (in press). “I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia. Journal of Pediatric Nursing,

Purpose: Craniofacial microsomia (CFM) is a congenital condition that can be associated with feeding challenges in infants. As part of the larger ‘Craniofacial microsomia: Accelerating Research and Education (CARE)’ program, this study described care... Read More about “I can't provide what my child needs”: Early feeding experiences of caregivers of children with craniofacial microsomia.

A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia (2024)
Journal Article
Stock, N. M., Costa, B., Parnell, J., Johns, A., Crerand, C., Feragen, K., …Heike, C. (in press). A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241245284

Objective: Children with craniofacial microsomia (CFM) have complex healthcare needs, resulting in evaluations and interventions from infancy onward. Yet, little is understood about families’ treatment experiences or the impact of CFM on caregivers’... Read More about A conceptual thematic framework of psychological adjustment in caregivers of children with craniofacial microsomia.

Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia (2024)
Journal Article
Stock, N., Rahman, M., Avila, S., Heike, C., Stueckle, L., Schefer, A., & Johns, A. (in press). Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia. Journal of Craniofacial Surgery,

Craniofacial microsomia (CFM) and microtia psychosocial research in the U.S. is primarily with English-speaking participants. Given that 19% of the U.S. is Latino and there is a higher prevalence of CFM in Latino populations, this study aims to descr... Read More about Psychosocial experiences of Spanish-speaking parents of children with craniofacial microsomia.

Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms (2024)
Journal Article
Stock, N. M., Costa, B., White, P., Eve, L., & Bates, A. (in press). Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241241127

Background: Individuals with cleft lip and/or palate (CL/P) may grow up with a visible facial difference, alongside speech and/or hearing challenges. Self-perceptions are stronger predictors of psychosocial adjustment than objective assessments, high... Read More about Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms.

“When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis (2024)
Journal Article
Stock, N. M., Costa, B., Bannister, W., Ashby, C., Matthews, N., Hebden, L., …Wilkinson-Bell, K. (in press). “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236580

Objective: Despite growing recognition that congenital craniofacial conditions have lifelong implications, psychological support for adults is currently lacking. The aim of this project was to produce a series of short films about living with cranios... Read More about “When I was younger, my story belonged to everyone else”: Co-production of resources for adults living with craniosynostosis.

Pediatric medical traumatic stress in individuals with craniofacial conditions (2024)
Journal Article
Crerand, C., Feragen, K., Johns, A., Umbaugh, H., McClinchie, M., Drake, A., …Stock, N. (in press). Pediatric medical traumatic stress in individuals with craniofacial conditions. Perspectives of the ASHA Special Interest Groups, https://doi.org/10.1044/2024_PERSP-23-00236

Purpose: This article reviews the literature focused on the psychological effects of craniofacial care for patients and their families. It provides an overview of pediatric medical traumatic stress associated with craniofacial conditions and related... Read More about Pediatric medical traumatic stress in individuals with craniofacial conditions.

“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives (2024)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. (in press). “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241236006

Objectives Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their... Read More about “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives.

Early experiences of parents of children with craniofacial microsomia (2024)
Journal Article
Stock, N. M., Johns, A., McWilliams, D., Costa, B., Heike, C., Feragen, K., …Tumblin, M. (in press). Early experiences of parents of children with craniofacial microsomia. Journal of Obstetric, Gynecologic, and Neonatal Nursing, https://doi.org/10.1016/j.jogn.2024.01.001

Objective: To describe the early health care experiences of parents of children with craniofacial microsomia (CFM), a congenital diagnosis often identified at birth. Design: Qualitative descriptive. Setting: Homes of participants. Participants: Paren... Read More about Early experiences of parents of children with craniofacial microsomia.