All Outputs (32)

A shock to the (health) system: Experiences of adults with rare disorders during the first COVID-19 wave (2024)
Journal Article

Background: Before COVID-19, people with rare diseases (RD) experienced numerous disparities in quality of life and healthcare access and quality, yet little is known about the experiences of this underserved group during the pandemic. Results: Durin... Read More about A shock to the (health) system: Experiences of adults with rare disorders during the first COVID-19 wave.

Perceived barriers and opportunities to improve working conditions and staff retention in emergency departments: A qualitative study (2024)
Journal Article

Background Staff retention in Emergency Medicine (EM) is at crisis level and could be attributed in some part to adverse working conditions. This study aimed to better understand current concerns relating to working conditions and working practices i... Read More about Perceived barriers and opportunities to improve working conditions and staff retention in emergency departments: A qualitative study.

Psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury, or treatment effects: An updated systematic review (2023)
Journal Article

Objective: Children and young people with visible differences can experience psychosocial difficulties, such as anxiety and teasing by others. Interventions targeting difficulties have previously been reviewed by Jenkinson et al. (2015). This review... Read More about Psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury, or treatment effects: An updated systematic review.

Psychosocial interventions for children and young people with visible differences resulting from appearance-altering conditions, injury, or treatment effects: An updated systematic review (2023)
Journal Article

Objective Children and young people with visible differences can experience psychosocial difficulties, such as anxiety and teasing by others. Interventions targeting difficulties have previously been reviewed by Jenkinson et al. This review aimed to... Read More about Psychosocial interventions for children and young people with visible differences resulting from appearance-altering conditions, injury, or treatment effects: An updated systematic review.

How effective are psychosocial interventions at improving body image and reducing disordered eating in adult men? A systematic review (2023)
Journal Article

Disordered eating and body image concerns significantly impact a growing number of men. This systematic review assessed the evidence of the effectiveness of psychosocial interventions to improve body image and eating pathology in men. Searches were c... Read More about How effective are psychosocial interventions at improving body image and reducing disordered eating in adult men? A systematic review.

The use of “art” as a resource in recovery from the impact of sexual abuse in childhood: A qualitative systematic review (2022)
Journal Article

Background: A qualitative systematic review was undertaken to identify the therapeutic impact of arts-based activities as experienced by adults sexually abused in childhood. Methods: Sixteen studies, identified through a systematic search protocol, w... Read More about The use of “art” as a resource in recovery from the impact of sexual abuse in childhood: A qualitative systematic review.

“It’s been ugly”: A large-scale qualitative study into the difficulties frontline doctors faced across two waves of the COVID-19 pandemic (2021)
Journal Article

This study aimed to gain an uncensored insight into the most difficult aspects of working as a frontline doctor across successive COVID-19 pandemic waves. Data collected by the parent study (CERA) was analysed using conventional content analysis. Par... Read More about “It’s been ugly”: A large-scale qualitative study into the difficulties frontline doctors faced across two waves of the COVID-19 pandemic.

Patient reported psychosocial functioning following successful ptosis surgery (2021)
Journal Article

Background: Ptosis may result in increased anxiety, appearance-related distress and social avoidance, and impacts visual function. Previous work demonstrates the benefits of ptosis surgery for health-related quality of life, but there is a paucity of... Read More about Patient reported psychosocial functioning following successful ptosis surgery.

Living with Moebius syndrome (2020)
Journal Article

Moebius syndrome is a congenital neurological disorder that impacts facial expression, communication and appearance. In this article, the authors will discuss the psychological and social impacts of living with this rare form of facial palsy. Existin... Read More about Living with Moebius syndrome.

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood (2019)
Journal Article

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2019. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Objective There is limited information on the psychosocial imp... Read More about Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood.

Living with alopecia areata: An online qualitative survey study (2018)
Journal Article

© 2018 British Association of Dermatologists Background: Living with alopecia areata (AA) totalis and universalis (collectively referred to here as AA) involves unpredictable, sometimes rapid hair loss. There is currently no effective treatment and p... Read More about Living with alopecia areata: An online qualitative survey study.

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study (2017)
Journal Article

© 2017 Taylor & Francis. This qualitative study sought to explore the experiences of patients who had undergone successful ptosis correction surgery. Participants were recruited from Bristol Eye Hospital. Nine participants were interviewed using a... Read More about Pre-operative experiences and post-operative benefits of ptosis surgery: A qualitative study.

Waterpipe tobacco use in the United Kingdom: A cross-sectional study among university students and stop smoking practitioners (2016)
Journal Article

© 2016 Jawad et al.This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credi... Read More about Waterpipe tobacco use in the United Kingdom: A cross-sectional study among university students and stop smoking practitioners.

The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration (2016)
Journal Article

Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic... Read More about The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration.

How can cognitive behavioural therapy help patients with appearance anxiety? (2014)
Journal Article

A growing body of research and clinical observations is showing that people with visible differences or disfigurements are prone to developing anxiety and social anxiety related to their appearance. In severe cases, this can result in social withdraw... Read More about How can cognitive behavioural therapy help patients with appearance anxiety?.

Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression (2014)
Journal Article

Psychometric measures of appearance salience and valence, CARSAL and CARVAL, have been previously demonstrated to be key factors underpinning appearance related self-consciousness and negative affect in the general population. However, the extent to... Read More about Salience and valence of appearance in a population with a visible difference of appearance: Direct and moderated relationships with self-consciousness, anxiety and depression.

The psychosocial impact of living with an ocular prosthesis (2014)
Journal Article

Objective: Many patients are satisfied with their ocular prosthesis, but some describe problems with social interactions, body image and self-esteem. Although both clinical practice and research suggest that the severity of a disfiguring condition do... Read More about The psychosocial impact of living with an ocular prosthesis.

The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study (2014)
Journal Article

The aim of this qualitative study was to investigate the psychosocial impact of ptosis as a symptom of Myasthenia Gravis (MG). Participants were recruited from a MG patient group on Facebook. 166 participants answered a series of open ended questions... Read More about The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study.