Elizabeth Jenkinson Elizabeth2.Jenkinson@uwe.ac.uk
Associate Professor in Health Psychology
Living with Moebius syndrome
Jenkinson, Elizabeth; Bogart, Kathleen; Hamlet, Claire; Davies, Laura
Authors
Kathleen Bogart
Claire Hamlet Claire.Hamlet@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS
Laura Davies
Abstract
Moebius syndrome is a congenital neurological disorder that impacts facial expression, communication and appearance. In this article, the authors will discuss the psychological and social impacts of living with this rare form of facial palsy. Existing research suggests that patients may face challenges in developing psychological wellbeing, positive body image and in communicating effectively with others. Therefore, recommendations for nursing practitioners in how to best support this patient group are discussed.
Citation
Jenkinson, E., Bogart, K., Hamlet, C., & Davies, L. (2020). Living with Moebius syndrome. Journal of Aesthetic Nursing, 9(6), 233-237. https://doi.org/10.12968/joan.2020.9.6.233
Journal Article Type | Article |
---|---|
Acceptance Date | May 21, 2020 |
Online Publication Date | Jul 13, 2020 |
Publication Date | Jul 2, 2020 |
Deposit Date | Nov 9, 2020 |
Publicly Available Date | Mar 28, 2024 |
Journal | Journal of Aesthetic Nursing |
Print ISSN | 2050-3717 |
Electronic ISSN | 2052-2878 |
Publisher | MA Healthcare |
Peer Reviewed | Peer Reviewed |
Volume | 9 |
Issue | 6 |
Pages | 233-237 |
DOI | https://doi.org/10.12968/joan.2020.9.6.233 |
Public URL | https://uwe-repository.worktribe.com/output/6641962 |
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Copyright Statement
This document is the Accepted Manuscript version of a Published Work that appeared in final form in Journal of Aesthetic Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/joan.2020.9.6.233
Jenkinson Moebius (2020) final draft
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Publisher Licence URL
http://www.rioxx.net/licenses/all-rights-reserved
Copyright Statement
This document is the Accepted Manuscript version of a Published Work that appeared in final form in Journal of Aesthetic Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/joan.2020.9.6.233
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