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Living with Moebius syndrome

Jenkinson, Elizabeth; Bogart, Kathleen; Hamlet, Claire; Davies, Laura

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Authors

Kathleen Bogart

Claire Hamlet Claire.Hamlet@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS

Laura Davies



Abstract

Moebius syndrome is a congenital neurological disorder that impacts facial expression, communication and appearance. In this article, the authors will discuss the psychological and social impacts of living with this rare form of facial palsy. Existing research suggests that patients may face challenges in developing psychological wellbeing, positive body image and in communicating effectively with others. Therefore, recommendations for nursing practitioners in how to best support this patient group are discussed.

Citation

Jenkinson, E., Bogart, K., Hamlet, C., & Davies, L. (2020). Living with Moebius syndrome. Journal of Aesthetic Nursing, 9(6), 233-237. https://doi.org/10.12968/joan.2020.9.6.233

Journal Article Type Article
Acceptance Date May 21, 2020
Online Publication Date Jul 13, 2020
Publication Date Jul 2, 2020
Deposit Date Nov 9, 2020
Publicly Available Date Mar 28, 2024
Journal Journal of Aesthetic Nursing
Print ISSN 2050-3717
Electronic ISSN 2052-2878
Publisher MA Healthcare
Peer Reviewed Peer Reviewed
Volume 9
Issue 6
Pages 233-237
DOI https://doi.org/10.12968/joan.2020.9.6.233
Public URL https://uwe-repository.worktribe.com/output/6641962

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