Living with Moebius syndrome

Jenkinson, Elizabeth; Bogart, Kathleen; Hamlet, Claire; Davies, Laura

doi:10.12968/joan.2020.9.6.233

Living with Moebius syndrome

Jenkinson, Elizabeth; Bogart, Kathleen; Hamlet, Claire; Davies, Laura

Authors

Elizabeth Jenkinson Elizabeth2.Jenkinson@uwe.ac.uk
Associate Professor in Health Psychology

Kathleen Bogart

Claire Hamlet Claire.Hamlet@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS

Laura Davies

Abstract

Moebius syndrome is a congenital neurological disorder that impacts facial expression, communication and appearance. In this article, the authors will discuss the psychological and social impacts of living with this rare form of facial palsy. Existing research suggests that patients may face challenges in developing psychological wellbeing, positive body image and in communicating effectively with others. Therefore, recommendations for nursing practitioners in how to best support this patient group are discussed.

Journal Article Type	Article
Acceptance Date	May 21, 2020
Online Publication Date	Jul 13, 2020
Publication Date	Jul 2, 2020
Deposit Date	Nov 9, 2020
Publicly Available Date	Jan 6, 2021
Journal	Journal of Aesthetic Nursing
Print ISSN	2050-3717
Electronic ISSN	2052-2878
Publisher	MA Healthcare
Peer Reviewed	Peer Reviewed
Volume	9
Issue	6
Pages	233-237
DOI	https://doi.org/10.12968/joan.2020.9.6.233
Public URL	https://uwe-repository.worktribe.com/output/6641962

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Copyright Statement
This document is the Accepted Manuscript version of a Published Work that appeared in final form in Journal of Aesthetic Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://doi.org/10.12968/joan.2020.9.6.233