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The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study

Richards, Hollie Sarah; Jenkinson, Elizabeth; Rumsey, Nichola; Harrad, Richard A.

Authors

Hollie Sarah Richards

Richard A. Harrad



Abstract

The aim of this qualitative study was to investigate the psychosocial impact of ptosis as a symptom of Myasthenia Gravis (MG). Participants were recruited from a MG patient group on Facebook. 166 participants answered a series of open ended questions examining the impact of ptosis, and responses were analysed using Inductive Thematic Analysis, which revealed four main themes. The first highlighted the extent to which ptosis impacted negatively on psychosocial functioning. The second related to ways in which ptosis can be framed in a positive way, eg, as a believable symptom. The final two themes revealed the complex inter-relationships between functional and appearance-related impacts, and a desire from many participants for health care professionals to provide more support directly related to their ptosis. This study suggests that ptosis impacts in ways not currently recognized in literature and practice. © 2014 Informa Healthcare USA, Inc. All rights reserved.

Journal Article Type Article
Publication Date Jan 1, 2014
Journal Orbit
Print ISSN 0167-6830
Electronic ISSN 1744-5108
Publisher Taylor & Francis
Peer Reviewed Peer Reviewed
Volume 33
Issue 4
Pages 263-269
APA6 Citation Richards, H. S., Jenkinson, E., Rumsey, N., & Harrad, R. A. (2014). The psychosocial impact of ptosis as a symptom of myasthenia gravis: A qualitative study. Orbit, 33(4), 263-269. https://doi.org/10.3109/01676830.2014.904375
DOI https://doi.org/10.3109/01676830.2014.904375
Keywords appearance concern, health psychology, Myasthenia Gravis, ptosis, visible difference
Publisher URL http://dx.doi.org/10.3109/01676830.2014.904375