Ashley Mai Williams
The psychological impact of dependency in adults with
chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration
Williams, Ashley Mai; Christopher, Gary; Jenkinson, Elizabeth
Authors
Gary Christopher Gary.Christopher@uwe.ac.uk
Occasional Associate Lecturer - CHSS - AHP
Elizabeth Jenkinson Elizabeth2.Jenkinson@uwe.ac.uk
Associate Professor in Health Psychology
Abstract
Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily life, and whether physical dependency affects their psychological well-being. Thematic analysis generated six themes: loss of independence and self-identity, an invisible illness, anxieties of today and the future, catch-22, internalised anger, and acceptance of the condition. The findings provide insight into the psychological impact of dependency. Implications for intervention include better education relating to chronic fatigue syndrome/myalgic encephalomyelitis for family members, carers, and friends; ways to communicate their needs to others who may not understand chronic fatigue syndrome/myalgic encephalomyelitis; and awareness that acceptance of the condition could improve psychological well-being.
Journal Article Type | Article |
---|---|
Acceptance Date | Mar 1, 2016 |
Publication Date | Jan 1, 2016 |
Deposit Date | May 23, 2016 |
Publicly Available Date | May 23, 2016 |
Journal | Journal of Health Psychology |
Print ISSN | 1359-1053 |
Publisher | SAGE Publications |
Peer Reviewed | Peer Reviewed |
DOI | https://doi.org/10.1177/1359105316643376 |
Keywords | adults, chronic fatigue syndrome, psychological distress, qualitative methods, well-being |
Public URL | https://uwe-repository.worktribe.com/output/924558 |
Publisher URL | http://dx.doi.org/10.1177/1359105316643376 |
Contract Date | May 23, 2016 |
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