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All Outputs (262)

A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual (2017)
Journal Article

© 2017 The Author(s). Background: Increasingly, women elect breast reconstruction after mastectomy. However, their expectations of surgery are often not met, and dissatisfaction with outcome and ongoing psychosocial concerns and distress are common.... Read More about A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual.

Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences (2017)
Journal Article

© Cambridge University Press 2017. Background: Qualitative research methods embedded within feasibility trials are of significant value as they can provide important information for a definitive trial, often unable to be fulfilled by quantitative met... Read More about Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences.

Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid (2017)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Objective: Women diagnosed with breast cancer or ductal carcinoma in situ and those with a genetic susceptibility to developing this disease face the challenging decision of whether or not to undergo breast... Read More about Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort (2017)
Journal Article

© 2016 Elsevier Ltd Body concealment is an important component of appearance distress for individuals with disfiguring conditions, including scleroderma. The objective was to replicate the validation study of the Body Concealment Scale for Scleroderm... Read More about Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort.

Facilitating shared decision-making with breast augmentation patients: Acceptability of the PEGASUS intervention (2016)
Journal Article

© 2016 British Association of Plastic, Reconstructive and Aesthetic Surgeons Background PEGASUS is an intervention to facilitate shared decision-making by helping prospective patients consider their expectations of surgery, so that surgeons have a cl... Read More about Facilitating shared decision-making with breast augmentation patients: Acceptability of the PEGASUS intervention.

Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2016)
Journal Article

Objective: Appearance concerns are common in systemic sclerosis (SSc) and have been linked to younger age and more severe disease. No study has examined their association with sex or race/ethnicity.

Methods: SSc patients were sampled from the Scl... Read More about Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents (2016)
Journal Article

© 2016, National Society of Genetic Counselors, Inc. Neurofibromatosis type 1 (NF1) is a genetic condition which can result in varying degrees of visible difference (disfigurement). Adolescence is a time when appearance concerns become more salient f... Read More about The Role of Appearance in Adolescents’ Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Reducing Decisional Conflict and Enhancing Satisfaction with Information among Women Considering Breast Reconstruction following Mastectomy: Results from the BRECONDA Randomized Controlled Trial (2016)
Presentation / Conference Contribution

Background: Deciding whether or not to have breast reconstruction following breast cancer diagnosis is a complex decision process. This randomized controlled trial assessed the impact of an online decision aid [Breast RECONstruction Decision Aid (BRE... Read More about Reducing Decisional Conflict and Enhancing Satisfaction with Information among Women Considering Breast Reconstruction following Mastectomy: Results from the BRECONDA Randomized Controlled Trial.

The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups? (2016)
Journal Article

Copyright © 2016 John Wiley & Sons, Ltd. Background: Very little UK-based research has examined breast cancer-related experiences of Black and Minority Ethnic populations, and we do not know whether the psychosocial impact of diagnosis and treatmen... Read More about The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?.

Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families (2016)
Presentation / Conference Contribution

Introduction
Very little published research has evaluated psychosocial interventions for young people with burn injuries. A recent systematic review of psychosocial interventions for those with a range of appearance-altering conditions and injuries... Read More about Current practices in the provision of one-to-one psychosocial support for young people with burn injuries and their families.

A survey of burn professionals regarding the mental health services available to burn survivors in the United States and United Kingdom (2016)
Journal Article

© 2016 Elsevier Ltd and ISBI. All rights reserved. This investigation surveyed burn health professionals in the UK and US to investigate the psychosocial issues facing burn survivors and the psychological services available to them through their burn... Read More about A survey of burn professionals regarding the mental health services available to burn survivors in the United States and United Kingdom.