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Outputs (160)

'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus (2012)
Journal Article
Mccabe, C. S., Mchugh, N., Elliott, B., Waldron, N., Brown, S. J., & Hewlett, S. (2012). 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus. Musculoskeletal Care, 10(3), 135-141. https://doi.org/10.1002/msc.1010

Objectives: The aim of this study was to explore the patient's perception of receiving a diagnosis of systemic lupus erythematosus (lupus) and reports on their experience of the period between onset of symptoms and receiving a definitive diagnosis. M... Read More about 'To Suddenly Have a Name for this Thing... Was Wonderful': The Patient's Experience of Receiving a Diagnosis of Systemic Lupus Erythematosus.

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article
Swinkels, A., Almeida, C., Kitchen, K., Dures, E., Almeida, C., Ambler, N., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients (2012)
Journal Article
Sanderson, T., Hewlett, S., Richards, P., Morris, M., & Calnan, M. (2012). Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients. Journal of Health Psychology, 17(1), 132-142. https://doi.org/10.1177/1359105311410758

The nominal group technique generates quantitative data through a process of experts ranking items of interest. This article focuses on the additional collection of qualitative data from nominal groups with rheumatoid arthritis (RA) patients, used to... Read More about Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.

Exploring the cultural validity of rheumatology outcomes (2012)
Journal Article
Sanderson, T., Hewlett, S., Calnan, M., & Morris, M. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influ... Read More about Exploring the cultural validity of rheumatology outcomes.

'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought (2012)
Journal Article
Bartlett, S. J., Pohl, C., Bingham, C. O., Hewlett, S., Sanderson, T., May, J., …Woodworth, T. (2012). 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought. Rheumatology, 51(1), 69-76. https://doi.org/10.1093/rheumatology/keq455

Objective: People with RA have episodes of worsening disease activity (flares) that prompt them to seek clinical review or medication change. This study explored patients' perspectives of flare that prompts them to seek medication review. Methods: Fo... Read More about 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article
Hewlett, S., Dures, E., & Almeida, C. (2011). Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-. Arthritis and Rheumatism, 63(SUPPL. 11), S263-S286. https://doi.org/10.1002/acr.20579

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.