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"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue

Kitchen, K.; Almeida, C.; Swinkels, A.; Dures, Emma; Almeida, Celia; Hammond, Alison; Morris, Marianne; Hewlett, Sarah; Ambler, N.; Cliss, A.; Knops, B.

Authors

K. Kitchen

C. Almeida

A. Swinkels

Emma Dures Emma2.Dures@uwe.ac.uk
Associate Professor in Rheumatology and Self-management

Alison Hammond

Marianne Morris marianne.morris@uwe.ac.uk

N. Ambler

A. Cliss

B. Knops



Abstract

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructuring to facilitate behavior changes. In a randomized controlled trial, a group CBT program for RA fatigue improved fatigue impact, severity, and perceived coping, as well as mood and quality of life. The aim of this study was to explore the patient perspective of the program and the impact of behavior changes. Methods. Ten exit focus groups were held (38 patients). Transcripts were analyzed by an independent researcher using a hybrid thematic approach, with a subset analyzed by a team member and patient partner. Results. Three overarching themes were identified. In "they made us work it out ourselves" (program factors facilitating changes), patients spontaneously identified elements of group CBT as pivotal, including guided discovery, the impact of metaphors, and working as a group. In "feeling much better about yourself and coping much better" (the nature of changes), patients described cognitive changes, including enhanced self-efficacy and problem solving, and emotional changes, including being less volatile and fearful of fatigue. In "my life has changed so much it's unbelievable" (benefits beyond fatigue), patients reengaged in previously abandoned activities, were more active, and enjoyed greater social participation. Conclusion. Patients highlighted that CBT elements were key to making behavior changes and that these had far-reaching impacts on their lives. This suggests it could be beneficial in clinical practice to incorporate cognitive-behavioral approaches into patient education programs that aim to enhance self-management. © 2012, American College of Rheumatology.

Citation

Hewlett, S., Swinkels, A., Morris, M., Hammond, A., Almeida, C., Kitchen, K., …Hewlett, S. (2012). "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis and Rheumatism, 64(4), 494-501. https://doi.org/10.1002/acr.21562

Journal Article Type Article
Publication Date Apr 1, 2012
Journal Arthritis Care and Research
Print ISSN 0004-3591
Electronic ISSN 2151-4658
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 64
Issue 4
Pages 494-501
DOI https://doi.org/10.1002/acr.21562
Keywords rheumatoid arthritis, fatigue, qualitative research, cogtnitive behavioural therapy
Public URL https://uwe-repository.worktribe.com/output/948397
Publisher URL http://dx.doi.org/10.1002/acr.21562