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Involving and engaging pregnant women in maternity-related research: Reflections on an innovative approach (2021)
Journal Article
Goodwin, L., Skrybant, M., & Kenyon, S. (2021). Involving and engaging pregnant women in maternity-related research: Reflections on an innovative approach. Research Involvement and Engagement, 7(1), Article 90. https://doi.org/10.1186/s40900-021-00332-8

Background: Meaningful public involvement in maternity research remains challenging, partly due to the transient nature of pregnancy. This paper reflects on the development, implementation and simple evaluation of an innovative and inclusive approach... Read More about Involving and engaging pregnant women in maternity-related research: Reflections on an innovative approach.

Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study (2021)
Journal Article
McCabe, C., Cramp, F., Gauntlett-Gilbert, J., & Davies, B. (2021). Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study. Pain and Rehabilitation, 50, 14-21

Objective Painful diabetic neuropathy (PDN) is a common complication of diabetes. This study explored the experience and impact of living with PDN. Design People with PDN were recruited through local NHS clinics and by national advertisement in di... Read More about Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study.

Barriers and facilitators to the administration of prehospital tranexamic acid: A paramedic interview study using the theoretical domains framework (2021)
Journal Article
Goodwin, L., Nicholson, H., Robinson, M., Bedson, A., Black, S., Kirby, K., …Benger, J. (2022). Barriers and facilitators to the administration of prehospital tranexamic acid: A paramedic interview study using the theoretical domains framework. Emergency Medicine Journal, 39(7), 540-546. https://doi.org/10.1136/emermed-2020-210622

BACKGROUND: Tranexamic acid (TXA) is an antifibrinolytic drug used to prevent bleeding. It was introduced as an intervention for post-traumatic haemorrhage across emergency medical services (EMS) in the UK during 2012. However, despite strong evidenc... Read More about Barriers and facilitators to the administration of prehospital tranexamic acid: A paramedic interview study using the theoretical domains framework.

The development of the Cystectomy-Pathway Assessment Tool (C-PAT): a concise tool to assess the quality of care in the cystectomy pathway (2021)
Journal Article
Uren, A., Cotterill, N., Abrams, P., Catto, J., Patel, B., McGrath, J., …Rowe, E. (2022). The development of the Cystectomy-Pathway Assessment Tool (C-PAT): a concise tool to assess the quality of care in the cystectomy pathway. BJU International, 129(6), 708-717. https://doi.org/10.1111/bju.15539

Objectives: To develop and test the psychometric properties of a concise, patient-reported questionnaire, designed to assess key aspects of the radical cystectomy (RC) patient pathway that are important to both patients and clinicians. Patients and M... Read More about The development of the Cystectomy-Pathway Assessment Tool (C-PAT): a concise tool to assess the quality of care in the cystectomy pathway.

P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation (2021)
Journal Article
Berry, A., Bridgewater, S., Abbott, B., Adams, J., & Dures, E. (2021). P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation. Rheumatology, 60(S1), https://doi.org/10.1093/rheumatology/keab247.195

Abstract Background/Aims  Patients with inflammatory arthritis report fatigue as a primary symptom that affects everyday life. FREE-IA (Fatigue - Reducing its Effects through individualised support Episodes in Inflammatory Arthritis) is a feasibi... Read More about P200 Acceptability of a brief fatigue intervention for patients with inflammatory arthritis: A qualitative process evaluation.

O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2021)
Journal Article
Bridgewater, S., Lomax, J., Abbott, B., Adams, J., Berry, A., Creanor, S., …Dures, E. (2021). O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study. Rheumatology, 60(S1), Article keab246.025. https://doi.org/10.1093/rheumatology/keab246.025

Background/Aims Patients with inflammatory arthritis report that fatigue can be a challenging symptom to manage, with little support available. In response, we developed a brief one-to-one cognitive-behavioural manualised intervention, delivered by r... Read More about O26 Testing an intervention to reduce fatigue impact in inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Jones, B., Hunt, A., Hewlett, S., Harcourt, D., & Dures, E. (2022). Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study. Musculoskeletal Care, 20(1), 74-85. https://doi.org/10.1002/msc.1555

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Patient view of the advanced practitioner (AP) role in primary care: A realist-informed synthesis (2021)
Journal Article
Morris, L., Moule, P., Pearson, J., Foster, D., & Walsh, N. (2021). Patient view of the advanced practitioner (AP) role in primary care: A realist-informed synthesis. Musculoskeletal Care, 19(4), 462-472. https://doi.org/10.1002/msc.1554

Background: Approximately 30% of general practitioner consultations are due to musculoskeletal disorders (MSKDs). Physiotherapists are trained to assess, diagnose and treat a range of MSKDs, and could provide the first point of contact for primary ca... Read More about Patient view of the advanced practitioner (AP) role in primary care: A realist-informed synthesis.

Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial (2021)
Journal Article
Lewis, J. S., Newport, R., Taylor, G., Smith, M., & McCabe, C. S. (2021). Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial. European Journal of Pain, 25(7), 1551-1563. https://doi.org/10.1002/ejp.1766

Background: Effective treatment of longstanding Complex Regional Pain Syndrome (CRPS) is a challenge, as causal mechanisms remain elusive. People with CRPS frequently report distorted subjective perceptions of their affected limb. Evidence of pain re... Read More about Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial.

Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER) (2021)
Journal Article
Abrams, P., Constable, L. D., Cooper, D., MacLennan, G., Drake, M. J., Harding, C., …Glazener, C. (2021). Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER). European Urology, 79(6), 812-823. https://doi.org/10.1016/j.eururo.2021.01.024

Background Stress urinary incontinence (SUI) is common after radical prostatectomy and likely to persist despite conservative treatment. The sling is an emerging operation for persistent SUI, but randomised controlled trial (RCT) comparison with the... Read More about Outcomes of a noninferiority randomised controlled trial of surgery for men with urodynamic stress incontinence after prostate surgery (MASTER).

Patient reported outcomes in large vessel vasculitides (2021)
Journal Article
Robson, J., Mackie, S., & Hill, C. (2021). Patient reported outcomes in large vessel vasculitides. Current Rheumatology Reports, 23(2), Article 7. https://doi.org/10.1007/s11926-020-00979-4

Purpose of Review: The goal of this paper is to review current and future uses of patient-reported outcomes in large vessel vasculitis. The large vessel vasculitides comprise Giant Cell Arteritis and Takayasu arteritis; both are types of systemic vas... Read More about Patient reported outcomes in large vessel vasculitides.

Staff stakeholder views on the role of UK paramedics in advance care planning for patients in their last year of life (2021)
Journal Article
Goodwin, L., Proctor, A., Kirby, K., Black, S., Pocock, L., Richardson, S., …Benger, J. (2021). Staff stakeholder views on the role of UK paramedics in advance care planning for patients in their last year of life. Progress in Palliative Care, 29(2), 76-83. https://doi.org/10.1080/09699260.2021.1872140

Background: Early advance care planning has clear benefits for patients approaching the end of their life, yet many of those attended by UK paramedics do not have this planning in place. Aims: To explore staff stakeholder views on the role of UK p... Read More about Staff stakeholder views on the role of UK paramedics in advance care planning for patients in their last year of life.