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Patient reported outcomes in large vessel vasculitides

Robson, Joanna; Mackie, Sarah; Hill, Catherine

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Authors

Jo Robson Jo.Robson@uwe.ac.uk
Consultant SL in Rheumatology

Sarah Mackie Sarah.Mackie@uwe.ac.uk
Faculty Lead on Practice-Oriented Curriculum

Catherine Hill



Abstract

Purpose of Review: The goal of this paper is to review current and future uses of patient-reported outcomes in large vessel vasculitis. The large vessel vasculitides comprise Giant Cell Arteritis and Takayasu arteritis; both are types of systemic vasculitis which affect the larger blood vessels. Patient-reported outcomes (PROs) capture the impact of these diseases on health-related quality of life. Recent Findings: Generic PROs such as the SF-36 are currently used to compare HRQOL of people with GCA and TAK within clinical trials and observational studies and to make comparisons with the general population and HRQoL in other diseases. The development of a disease-specific PRO for GCA is currently underway. Beyond clinical trials, there is much interest in the use of PROs within routine clinical care, particularly E-PROs for remote use. Summary: Further work will be needed to complete the development of disease-specific PROs for people with large vessel vasculitis and to establish feasibility, acceptability, and utility of E-PROs.

Citation

Robson, J., Mackie, S., & Hill, C. (2021). Patient reported outcomes in large vessel vasculitides. Current Rheumatology Reports, 23(2), https://doi.org/10.1007/s11926-020-00979-4

Journal Article Type Review
Acceptance Date Dec 18, 2020
Online Publication Date Jan 28, 2021
Publication Date Feb 1, 2021
Deposit Date Dec 18, 2020
Publicly Available Date Feb 8, 2021
Journal Current Rheumatology Reports
Print ISSN 1523-3774
Electronic ISSN 1534-6307
Publisher Springer (part of Springer Nature)
Peer Reviewed Peer Reviewed
Volume 23
Issue 2
Article Number 7
DOI https://doi.org/10.1007/s11926-020-00979-4
Keywords Giant cell arteritis; Takayasu arteritis; Patient reported outcome; Clinical trials; Outcomes; Large vessel vasculitis
Public URL https://uwe-repository.worktribe.com/output/6959563

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