Peter A. Merkel
Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018
Merkel, Peter A.; Direskeneli, Haner; Tugwell, Peter; T�masson, Gunnar; Shea, Beverley; Milman, Nataliya; Meara, Alexa; Mahr, Alfred; Kermani, Tanaz A.; Hatemi, G�len; Gul, Ahmet; Beard, Susan; Mackie, Sarah; Alibaz-Oner, Fatma; Aydin, Sibel Z.; Robson, Joanna Clare; Sreih, Antoine G.; Hill, Catherine
Authors
Haner Direskeneli
Peter Tugwell
Gunnar T�masson
Beverley Shea
Nataliya Milman
Alexa Meara
Alfred Mahr
Tanaz A. Kermani
G�len Hatemi
Ahmet Gul
Susan Beard
Sarah Mackie Sarah.Mackie@uwe.ac.uk
Senior Lecturer in Organisation Studies
Fatma Alibaz-Oner
Sibel Z. Aydin
Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology
Antoine G. Sreih
Catherine Hill
Abstract
OBJECTIVE:
The OMERACT Vasculitis Working Group seeks to develop validated outcome measures for use in trials for large-vessel vasculitis (LVV).
METHODS:
An international Delphi exercise conducted among investigators identified items considered important to measure active disease. In parallel, qualitative research with patients was conducted, including interviews and focus groups.
RESULTS:
Next steps prioritized by the group for LVV include i) defining disease states (remission, flare, and patient-acceptable symptom state); and ii) selection of patient reported outcome tools.
CONCLUSION:
The ultimate goal is to develop an OMERACT-endorsed Core Set of outcome measures for use in clinical trials of LVV.
Citation
Merkel, P. A., Direskeneli, H., Tugwell, P., Tómasson, G., Shea, B., Milman, N., …Hill, C. (2019). Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018. Journal of Rheumatology, 46(9), 1198-1201. https://doi.org/10.3899/jrheum.181072
Journal Article Type | Article |
---|---|
Acceptance Date | Feb 1, 2019 |
Online Publication Date | Mar 15, 2019 |
Publication Date | Sep 1, 2019 |
Deposit Date | Apr 16, 2019 |
Publicly Available Date | Mar 28, 2024 |
Journal | The Journal of Rheumatology |
Print ISSN | 1499-2752 |
Electronic ISSN | 1499-2752 |
Publisher | Journal of Rheumatology |
Peer Reviewed | Peer Reviewed |
Volume | 46 |
Issue | 9 |
Pages | 1198-1201 |
DOI | https://doi.org/10.3899/jrheum.181072 |
Public URL | https://uwe-repository.worktribe.com/output/850525 |
Publisher URL | https://doi.org/10.3899/jrheum.181072 |
Additional Information | Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181072. |
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