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Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018

Merkel, Peter A.; Direskeneli, Haner; Tugwell, Peter; T�masson, Gunnar; Shea, Beverley; Milman, Nataliya; Meara, Alexa; Mahr, Alfred; Kermani, Tanaz A.; Hatemi, G�len; Gul, Ahmet; Beard, Susan; Mackie, Sarah; Alibaz-Oner, Fatma; Aydin, Sibel Z.; Robson, Joanna Clare; Sreih, Antoine G.; Hill, Catherine

Authors

Peter A. Merkel

Haner Direskeneli

Peter Tugwell

Gunnar T�masson

Beverley Shea

Nataliya Milman

Alexa Meara

Alfred Mahr

Tanaz A. Kermani

G�len Hatemi

Ahmet Gul

Susan Beard

Sarah Mackie Sarah.Mackie@uwe.ac.uk
Senior Lecturer in Organisation Studies

Fatma Alibaz-Oner

Sibel Z. Aydin

Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology

Antoine G. Sreih

Catherine Hill



Abstract

OBJECTIVE:
The OMERACT Vasculitis Working Group seeks to develop validated outcome measures for use in trials for large-vessel vasculitis (LVV).

METHODS:
An international Delphi exercise conducted among investigators identified items considered important to measure active disease. In parallel, qualitative research with patients was conducted, including interviews and focus groups.

RESULTS:
Next steps prioritized by the group for LVV include i) defining disease states (remission, flare, and patient-acceptable symptom state); and ii) selection of patient reported outcome tools.

CONCLUSION:
The ultimate goal is to develop an OMERACT-endorsed Core Set of outcome measures for use in clinical trials of LVV.

Citation

Merkel, P. A., Direskeneli, H., Tugwell, P., Tómasson, G., Shea, B., Milman, N., …Hill, C. (2019). Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018. Journal of Rheumatology, 46(9), 1198-1201. https://doi.org/10.3899/jrheum.181072

Journal Article Type Article
Acceptance Date Feb 1, 2019
Online Publication Date Mar 15, 2019
Publication Date Sep 1, 2019
Deposit Date Apr 16, 2019
Publicly Available Date Mar 16, 2020
Journal The Journal of Rheumatology
Print ISSN 1499-2752
Electronic ISSN 1499-2752
Publisher Journal of Rheumatology
Peer Reviewed Peer Reviewed
Volume 46
Issue 9
Pages 1198-1201
DOI https://doi.org/10.3899/jrheum.181072
Public URL https://uwe-repository.worktribe.com/output/850525
Publisher URL https://doi.org/10.3899/jrheum.181072
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181072.

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