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Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018

Merkel, Peter A.; Mahr, Alfred; Direskeneli, Haner; Tugwell, Peter; Tómasson, Gunnar; Shea, Beverley; Milman, Nataliya; Meara, Alexa; Kermani, Tanaz A.; Hatemi, Gülen; Gul, Ahmet; Beard, Susan; Mackie, Sarah; Alibaz-Oner, Fatma; Aydin, Sibel Z.; Robson, Joanna Clare; Sreih, Antoine G.; Hill, Catherine

Authors

Peter A. Merkel

Alfred Mahr

Haner Direskeneli

Peter Tugwell

Gunnar Tómasson

Beverley Shea

Nataliya Milman

Alexa Meara

Tanaz A. Kermani

Gülen Hatemi

Ahmet Gul

Susan Beard

Sarah Mackie Sarah.Mackie@uwe.ac.uk
Faculty Lead on Practice-Oriented Curriculum

Fatma Alibaz-Oner

Sibel Z. Aydin

Jo Robson Jo.Robson@uwe.ac.uk
Consultant SL in Rheumatology

Antoine G. Sreih

Catherine Hill



Abstract

OBJECTIVE:
The OMERACT Vasculitis Working Group seeks to develop validated outcome measures for use in trials for large-vessel vasculitis (LVV).

METHODS:
An international Delphi exercise conducted among investigators identified items considered important to measure active disease. In parallel, qualitative research with patients was conducted, including interviews and focus groups.

RESULTS:
Next steps prioritized by the group for LVV include i) defining disease states (remission, flare, and patient-acceptable symptom state); and ii) selection of patient reported outcome tools.

CONCLUSION:
The ultimate goal is to develop an OMERACT-endorsed Core Set of outcome measures for use in clinical trials of LVV.

Journal Article Type Article
Publication Date Sep 1, 2019
Journal The Journal of Rheumatology
Print ISSN 1499-2752
Electronic ISSN 1499-2752
Publisher Journal of Rheumatology
Peer Reviewed Peer Reviewed
Volume 46
Issue 9
Pages 1198-1201
APA6 Citation Merkel, P. A., Direskeneli, H., Tugwell, P., Tómasson, G., Shea, B., Milman, N., …Hill, C. (2019). Update on outcome measure development in large-vessel vasculitis: Report from OMERACT 2018. Journal of Rheumatology, 46(9), 1198-1201. https://doi.org/10.3899/jrheum.181072
DOI https://doi.org/10.3899/jrheum.181072
Publisher URL https://doi.org/10.3899/jrheum.181072
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181072.

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