Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article
Stock, N. M., Crerand, C. E., Johns, A. L., McKinney, C. M., Koudstaal, M. J., Drake, A. F., & Heike, C. L. (in press). Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231176904

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions (2023)
Journal Article
Fladeboe, K., Stock, N. M., Heike, C., Evans, K., Junkins, C., Stueckle, L., …Yi-Frazier, J. (in press). Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231157449

Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children wit... Read More about Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions.

Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects (2022)
Journal Article
Ivanova, A., Rodríguez-Cano, R., Lundin Kvalem, I., Harcourt, D., E. Kiserud, C. E., & D. Amdal, C. (2023). Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects. Journal of Cancer Survivorship, 17(2), 526-534. https://doi.org/10.1007/s11764-022-01311-y

Purpose: Head and neck cancer (HNC) patients are at risk of long-term body image distress (BID). We aimed to investigate the severity of BID in long-term HNC survivors and to explore the associations between sociodemographic and clinical factors, pat... Read More about Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects.

What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review (2022)
Journal Article
Falconer, L., Harcourt, D., & Hendricks, E. (2022). What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review. Journal of Endometriosis and Pelvic Pain Disorders, 14(4), 206-216. https://doi.org/10.1177/22840265221139909

Aim: To identify and review the success of non-pharmaceutical, non-surgical biopsychosocial interventions in individuals with endometriosis, in managing pain and improving body image. Methods: Cochrane, EBSCO, IBSS, NICE, Open Grey, OVID, Proquest, S... Read More about What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. M. (in press). Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2022.2124291

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article
Guest, E., Zucchelli, F., Costa, B., Bhatia, R., Halliwell, E., & Harcourt, D. (2022). A systematic review of interventions aiming to promote positive body image in children and adolescents. Body Image, 42, 58-74. https://doi.org/10.1016/j.bodyim.2022.04.009

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study (2022)
Journal Article
Herring, B., Lewis-Smith, H., Paraskeva, N., & Harcourt, D. (2022). Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study. Supportive Care in Cancer, 30, 6669–6676. https://doi.org/10.1007/s00520-022-07095-2

Purpose: The provision of practical and emotional support for men who have been diagnosed with breast cancer in the UK falls primarily on their partners, close family members or friends. However, informal carers’ experiences are omitted from the rese... Read More about Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2022). The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury. European Burn Journal, 3(1), 211-233. https://doi.org/10.3390/ebj3010019

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial (2022)
Journal Article
Garbett, K. M., Craddock, N., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Williamson, H. (2022). A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial. JMIR Research Protocols, 11(1), Article e33596. https://doi.org/10.2196/33596

Background: Despite the prevalence of body dissatisfaction among young Indonesian women and its consequential negative impacts, there are currently no evidence-based, culturally appropriate interventions to tackle this issue. Therefore, there is a ne... Read More about A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial.

An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study (2022)
Journal Article
Zucchelli, F., Donnelly, O., Rush, E., White, P., Gwyther, H., Williamson, H., & The VTCT Foundation Research Team at the Centre for Appearance Research. (2022). An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study. JMIR Formative Research, 6(1), Article e33449. https://doi.org/10.2196/33449

Background: Mobile apps may offer a valuable platform for delivering evidence-based psychological interventions for individuals with atypical appearances, or visible differences, who experience psychosocial appearance concerns such as appearance-base... Read More about An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Congenital Melanocytic Naevus (CMN) through the lens: Exploring the positive experiences of young people with CMN using photo-elicitation interviews (2021)
Thesis
Guest, E. Congenital Melanocytic Naevus (CMN) through the lens: Exploring the positive experiences of young people with CMN using photo-elicitation interviews. (Thesis). University of the West of England. Retrieved from https://uwe-repository.worktribe.com/output/7576799

Background: Congenital Melanocytic Naevus (CMN) is characterised by raised birthmarks, commonly present on the trunk, face, arms, and legs. Children and adolescents with CMN can experience negative attention from others in relation to the appearance... Read More about Congenital Melanocytic Naevus (CMN) through the lens: Exploring the positive experiences of young people with CMN using photo-elicitation interviews.

‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents (2021)
Journal Article
Craddock, N., Garbett, K. M., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Diedrichs, P. C. (2021). ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents. BMC Public Health, 21(1), Article 2102. https://doi.org/10.1186/s12889-021-11770-0

Background: Due to the prevalence and associated adverse health consequences of negative body image among adolescents globally, there is a need to develop acceptable, effective, and scalable interventions. School-based body image interventions delive... Read More about ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2021). Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers. European Burn Journal, 2(4), 249-280

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

“Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference (2021)
Journal Article
Feragen, K., Myhre, A., & Stock, N. (2022). “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference. Qualitative Health Research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205

To investigate parents’ reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three the... Read More about “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference.

Promoting acceptance of diverse appearances in primary school-aged children (2021)
Thesis
Parnell, J. Promoting acceptance of diverse appearances in primary school-aged children. (Thesis). University of the West of England. Retrieved from https://uwe-repository.worktribe.com/output/7516984

Appearance-based stereotyping and stigma emerges in early childhood and can exist by the age of 4 years. Those who have a diverse appearance (e.g., higher weight, visible difference) are at increased risk of experiencing stigmatisation, resulting in... Read More about Promoting acceptance of diverse appearances in primary school-aged children.

The impact of completing body image assessments on adolescents’ body image and engagement in body change strategies: Harmful or harmless? (2021)
Journal Article
Jarman, H., Slater, A., McLean, S., Marques, M., & Paxton, S. (2021). The impact of completing body image assessments on adolescents’ body image and engagement in body change strategies: Harmful or harmless?. Body Image, 39, 131-138. https://doi.org/10.1016/j.bodyim.2021.07.003

Parents and educators have raised concerns that participating in body image research may cause or increase poor body image and engagement in body change strategies. This quasi-experimental study compared body image and body change strategy outcomes a... Read More about The impact of completing body image assessments on adolescents’ body image and engagement in body change strategies: Harmful or harmless?.

Patient reported psychosocial functioning following successful ptosis surgery (2021)
Journal Article
Richards, H., Jenkinson, E., White, P., & Harrad, R. (2021). Patient reported psychosocial functioning following successful ptosis surgery. Eye, 36, 1651–1655. https://doi.org/10.1038/s41433-021-01685-w

Background: Ptosis may result in increased anxiety, appearance-related distress and social avoidance, and impacts visual function. Previous work demonstrates the benefits of ptosis surgery for health-related quality of life, but there is a paucity of... Read More about Patient reported psychosocial functioning following successful ptosis surgery.

Mindful Eating - Conscious Living: A study of acceptability, feasibility and efficacy among adult women in the UK (2021)
Presentation / Conference
Ramsey-Wade, C., Halliwell, E., Williamson, H., & Atkinson, M. (2021, July). Mindful Eating - Conscious Living: A study of acceptability, feasibility and efficacy among adult women in the UK. Poster presented at Appearance Matters 9, Online, hosted by the Centre for Appearance Research at UWE Bristol

Disordered eating, or dis-ease around food and eating, is widespread. Many materials assisting individuals to apply mindfulness skills to their eating choices and behaviour are available online, from apps, to guided meditations, to asynchronous and... Read More about Mindful Eating - Conscious Living: A study of acceptability, feasibility and efficacy among adult women in the UK.

Mindfulness and distressed eating: Evaluating the acceptability, feasibility and preliminary efficacy of two online mindful eating programmes (2021)
Presentation / Conference
Ramsey-Wade, C. (2021, July). Mindfulness and distressed eating: Evaluating the acceptability, feasibility and preliminary efficacy of two online mindful eating programmes. Presented at International Conference of Mindfulness 2021, Online, hosted by the University of Aarhus, Denmark

Title Mindfulness and distressed eating: Evaluating the acceptability, feasibility and preliminary efficacy of two online mindful eating programmes Abstract Objective ‘Mindful eating’ apps, guided meditations, books and online programmes are prol... Read More about Mindfulness and distressed eating: Evaluating the acceptability, feasibility and preliminary efficacy of two online mindful eating programmes.