Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms (2024)
Journal Article
Stock, N. M., Costa, B., White, P., Eve, L., & Bates, A. (in press). Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656241241127

Background: Individuals with cleft lip and/or palate (CL/P) may grow up with a visible facial difference, alongside speech and/or hearing challenges. Self-perceptions are stronger predictors of psychosocial adjustment than objective assessments, high... Read More about Assessing appearance, speech, and hearing (dis)satisfaction in individuals with cleft lip and/or palate: A contribution to general population norms.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2022). The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury. European Burn Journal, 3(1), 211-233. https://doi.org/10.3390/ebj3010019

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial (2022)
Journal Article
Garbett, K. M., Craddock, N., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Williamson, H. (2022). A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial. JMIR Research Protocols, 11(1), Article e33596. https://doi.org/10.2196/33596

Background: Despite the prevalence of body dissatisfaction among young Indonesian women and its consequential negative impacts, there are currently no evidence-based, culturally appropriate interventions to tackle this issue. Therefore, there is a ne... Read More about A novel, scalable social media-based intervention Warna-Warni Waktu to reduce body dissatisfaction among young Indonesian women: Protocol for a parallel randomized controlled trial.

An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study (2022)
Journal Article
Zucchelli, F., Donnelly, O., Rush, E., White, P., Gwyther, H., Williamson, H., & The VTCT Foundation Research Team at the Centre for Appearance Research. (2022). An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study. JMIR Formative Research, 6(1), Article e33449. https://doi.org/10.2196/33449

Background: Mobile apps may offer a valuable platform for delivering evidence-based psychological interventions for individuals with atypical appearances, or visible differences, who experience psychosocial appearance concerns such as appearance-base... Read More about An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study.

‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents (2021)
Journal Article
Craddock, N., Garbett, K. M., Haywood, S., Nasution, K., White, P., Saraswati, L. A., …Diedrichs, P. C. (2021). ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents. BMC Public Health, 21(1), Article 2102. https://doi.org/10.1186/s12889-021-11770-0

Background: Due to the prevalence and associated adverse health consequences of negative body image among adolescents globally, there is a need to develop acceptable, effective, and scalable interventions. School-based body image interventions delive... Read More about ‘Dove Confident Me Indonesia: Single Session’: Study protocol for a randomised controlled trial to evaluate a school-based body image intervention among Indonesian adolescents.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2021). Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers. European Burn Journal, 2(4), 249-280

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

Patient reported psychosocial functioning following successful ptosis surgery (2021)
Journal Article
Richards, H., Jenkinson, E., White, P., & Harrad, R. (2021). Patient reported psychosocial functioning following successful ptosis surgery. Eye, 36, 1651–1655. https://doi.org/10.1038/s41433-021-01685-w

Background: Ptosis may result in increased anxiety, appearance-related distress and social avoidance, and impacts visual function. Previous work demonstrates the benefits of ptosis surgery for health-related quality of life, but there is a paucity of... Read More about Patient reported psychosocial functioning following successful ptosis surgery.

“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (in press). “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction. European Journal of Cancer Care, Article e13464. https://doi.org/10.1111/ecc.13464

Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.

Challenges and reflections from a multi-centre trial of a psycho-oncology intervention to support shared decision-making in breast reconstruction (2020)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (2021). Challenges and reflections from a multi-centre trial of a psycho-oncology intervention to support shared decision-making in breast reconstruction. European Journal of Cancer Care, 30(2), Article e13384. https://doi.org/10.1111/ecc.13384

PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction (2020)
Journal Article
Clarke, A., Paraskeva, N., White, P., Tollow, P., Hansen, E., & Harcourt, D. (2020). PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction. Journal of Cancer Education, https://doi.org/10.1007/s13187-019-01656-6

© 2020, The Author(s). Studies have found varying levels of satisfaction after breast reconstruction surgery with a substantial group of patients reporting some level of regret about their decision. The variable outcomes reported by women undergoing... Read More about PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article
Costa, B., White, P., & Stock, N. M. (2020). Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(5), 599-605. https://doi.org/10.1177/1055665619888318

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial (2019)
Journal Article
Williamson, H., Hamlet, C., White, P., Marques, E., Paling, T., Cadogan, J., …Harcourt, D. (2019). A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial. JMIR Mental Health, 6(11), Article e14776. https://doi.org/10.2196/14776

Background: Disfigurement (visible difference) from wide-ranging congenital or acquired conditions, injuries, or treatments can negatively impact adolescents’ psychological well-being, education and health behaviours. Alongside medical interventions,... Read More about A web-based self-help psychosocial intervention for adolescents distressed by appearance-affecting conditions and injuries (Young Persons’ Face IT): Feasibility study for a parallel randomized controlled trial.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury (2019)
Journal Article
Griffiths, C., Guest, E., Pickles, T., Hollén, L., Grzeda, M., White, P., …Harcourt, D. (2019). The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury. Journal of Burn Care and Research, 40(3), 312-326. https://doi.org/10.1093/jbcr/irz021

Introduction: Patient Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale - Adult Form: a PROM that assesses quality of... Read More about The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury.

A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual (2017)
Journal Article
Harcourt, D., Paraskeva, N., White, P., Powell, J., & Clarke, A. (2017). A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual. BMC Medical Informatics and Decision Making, 17(1), 143. https://doi.org/10.1186/s12911-017-0543-0

© 2017 The Author(s). Background: Increasingly, women elect breast reconstruction after mastectomy. However, their expectations of surgery are often not met, and dissatisfaction with outcome and ongoing psychosocial concerns and distress are common.... Read More about A study protocol of the effectiveness of PEGASUS: A multi-centred study comparing an intervention to promote shared decision making about breast reconstruction with treatment as usual.

A systematic review of patient-reported outcome measures used in adult burn research (2017)
Journal Article
Pleat, J., Griffiths, C., Guest, E., White, P., Gaskin, E., Rumsey, N., & Harcourt, D. (2017). A systematic review of patient-reported outcome measures used in adult burn research. Journal of Burn Care and Research, 38(2), e521-e541. https://doi.org/10.1097/BCR.0000000000000474

Copyright © 2016 by the American Burn Association. Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality.... Read More about A systematic review of patient-reported outcome measures used in adult burn research.

Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries (2016)
Journal Article
Marques, E. M., Williamson, H., Hamlet, C., White, P., Marques, E., Cadogan, J., …Harcourt, D. (2016). Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries. BMJ Open, 6(10), Article e012423. https://doi.org/10.1136/bmjopen-2016-012423

© Published by the BMJ Publishing Group Limited. Introduction A significant number of adolescents suffer extensive and enduring difficulties such as social anxiety, body image dissatisfaction, low self-esteem and bullying as a result of conditions or... Read More about Study protocol of the YP Face IT feasibility study: Comparing an online psychosocial intervention versus treatment as usual for adolescents distressed by appearance-altering conditions/injuries.

Body Image in Primary Schools: A pilot evaluation of a primary school intervention program designed by teachers to improve children's body satisfaction (2016)
Journal Article
Halliwell, E., Yager, Z., Paraskeva, N., Diedrichs, P. C., Smith, H., & White, P. (2016). Body Image in Primary Schools: A pilot evaluation of a primary school intervention program designed by teachers to improve children's body satisfaction. Body Image, 19, 133-141. https://doi.org/10.1016/j.bodyim.2016.09.002

© 2016 Body Image in the Primary School (Hutchinson & Calland, 2011) is a body image curriculum that is widely available but has not yet been evaluated. This study evaluates a set of 6 of the 49 available lessons from this curriculum. Seventy-four gi... Read More about Body Image in Primary Schools: A pilot evaluation of a primary school intervention program designed by teachers to improve children's body satisfaction.

The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups? (2016)
Journal Article
Patel-Kerai, G., Harcourt, D., Rumsey, N., Naqvi, H., & White, P. (2017). The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?. Psycho-Oncology, 26(4), 515-522. https://doi.org/10.1002/pon.4187

Copyright © 2016 John Wiley & Sons, Ltd. Background: Very little UK-based research has examined breast cancer-related experiences of Black and Minority Ethnic populations, and we do not know whether the psychosocial impact of diagnosis and treatmen... Read More about The psychosocial experiences of breast cancer amongst Black, South Asian and White survivors: do differences exist between ethnic groups?.

The acceptability of PEGASUS: An intervention to facilitate shared decision-making with women contemplating breast reconstruction (2016)
Journal Article
Harcourt, D., Griffiths, C., Baker, E., Hansen, E., White, P., & Clarke, A. (2016). The acceptability of PEGASUS: An intervention to facilitate shared decision-making with women contemplating breast reconstruction. Psychology, Health and Medicine, 21(2), 248-253. https://doi.org/10.1080/13548506.2015.1051059

© 2015 The Author(s). Published by Taylor & Francis. Good practice guidelines recommend that women who undergo mastectomy are offered reconstructive surgery. However, many who choose this option report a degree of decisional regret and dissatisfact... Read More about The acceptability of PEGASUS: An intervention to facilitate shared decision-making with women contemplating breast reconstruction.