Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article
Stock, N. M., Crerand, C. E., Johns, A. L., McKinney, C. M., Koudstaal, M. J., Drake, A. F., & Heike, C. L. (in press). Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231176904

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions (2023)
Journal Article
Fladeboe, K., Stock, N. M., Heike, C., Evans, K., Junkins, C., Stueckle, L., …Yi-Frazier, J. (in press). Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231157449

Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children wit... Read More about Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. M. (in press). Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2022.2124291

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

“Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference (2021)
Journal Article
Feragen, K., Myhre, A., & Stock, N. (2022). “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference. Qualitative Health Research, 32(1), 3-15. https://doi.org/10.1177/10497323211039205

To investigate parents’ reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three the... Read More about “Will you still feel beautiful when you find out you are different?” Parents’ experiences, reflections, and appearance-focused conversations about their child’s visible difference.

Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme (2021)
Journal Article
Ardouin, K., Davis, N., & Stock, N. M. (2022). Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme. Cleft Palate-Craniofacial Journal, 59(4_suppl2), S48-S56. https://doi.org/10.1177/10556656211025415

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions develo... Read More about Expanding support services for adults born with cleft lip and/or palate in the United Kingdom: An exploratory evaluation of the cleft lip and palate association adult services programme.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article
Stock, N., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (in press). Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care. British Journal of Healthcare Management,

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
Stock, N. M., Sharratt, N. D., Treneman-Evans, G., Montgomery, K., Denman, R., Harcourt, D., & at the Centre for Appearance Research, T. V. R. T. (2022). ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss. Psychology, Health and Medicine, 27(7), 1431-1442. https://doi.org/10.1080/13548506.2021.1883688

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2021)
Journal Article
Ardouin, K., Hotton, M., & Stock, N. M. (2021). Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(11), 1412-1421. https://doi.org/10.1177/1055665620987109

Objectives: Previous research has suggested that adults with a cleft lip and/or palate (CL/P) may find their familial, friend, collegial, and/or romantic relationships impacted by their condition. Building on this prior work, this study examined the... Read More about Interpersonal relationship experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Drake, D., Popat, S., & Stock, N. M. (2021). Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(7), 864-871. https://doi.org/10.1177/1055665620968342

Objectives: Adults with cleft lip and/or palate (CL/P) may report dissatisfaction with aesthetic and/or functional outcomes and express desire for further treatment. Although medical intervention can improve quality of life, surgical procedures requi... Read More about Treatment experiences in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Microtia and craniofacial microsomia: Content analysis of facebook groups (2020)
Journal Article
Umbaugh, H. M., Crerand, C. E., Stock, N. M., Luquetti, D. V., Heike, C. L., Drake, A. F., …Johns, A. L. (2020). Microtia and craniofacial microsomia: Content analysis of facebook groups. International Journal of Pediatric Otorhinolaryngology, 138, Article 110301. https://doi.org/10.1016/j.ijporl.2020.110301

Objective An increasing number of patients use social media for health-related information and social support. This study’s objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (... Read More about Microtia and craniofacial microsomia: Content analysis of facebook groups.

Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Davis, S., & Stock, N. (2021). Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 58(2), 153-162. https://doi.org/10.1177/1055665620944758

Objectives Previous research in the field of cleft lip and/or palate (CL/P) has indicated a high prevalence of common health concerns, functional difficulties, and additional conditions known to affect long-term physical health, cognitive development... Read More about Physical health in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+ (2020)
Journal Article
Stock, N. M., Hammond, V., Hearst, D., Owen, T., Edwards, Z., Ridley, M., & Rumsey, N. (2020). Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+. Cleft Palate-Craniofacial Journal, 57(6), 746-752. https://doi.org/10.1177/1055665619898596

Background: Consensus regarding optimal outcome measurement has been identified as one of the most important, yet most challenging developments for the future of cleft lip and/or palate (CL/P) services. In 2011, a process began to adopt a shared conc... Read More about Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8 years+.

Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom (2020)
Journal Article
Ardouin, K., Hare, J., & Stock, N. M. (2020). Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(7), 877-885. https://doi.org/10.1177/1055665619896681

Objectives: Previous research with adults born with cleft lip and/or palate (CL/P) has identified a range of concerns regarding mental health and quality of life, concluding that overall emotional functioning is poorer compared to the general populat... Read More about Emotional well-being in adults born with cleft lip and/or palate: A whole of life survey in the United Kingdom.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article
Costa, B., White, P., & Stock, N. M. (2020). Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(5), 599-605. https://doi.org/10.1177/1055665619888318

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals (2019)
Journal Article
Stock, N. M., & Costa, B. (2020). Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals. Cleft Palate-Craniofacial Journal, 57(4), 470-476. https://doi.org/10.1177/1055665619883151

Objective: A diagnosis of a congenital craniofacial condition can have a significant impact on the psychological wellbeing of the affected family. As the first health professionals likely to come into contact with families, non-specialists, such as... Read More about Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals.

Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers (2019)
Journal Article
Stock, N. M., Marik, P., Magee, L., Aspinall, C. L., Garcia, L., Crerand, C., & Johns, A. L. (2020). Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers. Cleft Palate-Craniofacial Journal, 57(3), 333-343. https://doi.org/10.1177/1055665619868052

© 2019, American Cleft Palate-Craniofacial Association. Objective: Psychosocial issues associated with craniofacial diagnoses and the ongoing burden of care can impact the quality of life of patients and families, as well as treatment adherence and o... Read More about Facilitating Positive Psychosocial Outcomes in Craniofacial Team Care: Strategies for Medical Providers.

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom (2019)
Journal Article
Stock, N. M., Zucchelli, F., Hudson, N., Kiff, J. D., & Hammond, V. (2020). Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom. Cleft Palate-Craniofacial Journal, 57(2), 186-197. https://doi.org/10.1177/1055665619868331

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist... Read More about Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom.

Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition (2019)
Journal Article
Feragen, K. B., Stock, N. M., Myhre, A., & Due-tønnessen, B. J. (2020). Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition. Cleft Palate-Craniofacial Journal, 57(2), 228-237. https://doi.org/10.1177/1055665619869146

© 2019, American Cleft Palate-Craniofacial Association. Background: The birth of a child with a congenital craniofacial anomaly (CFA) can have a profound psychological impact on the family. Despite the complexity and variability in treatment for thes... Read More about Medical Stress Reactions and Personal Growth in Parents of Children With a Rare Craniofacial Condition.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article
Stock, N. M., Costa, B., White, P., & Rumsey, N. (2020). Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate. Cleft Palate-Craniofacial Journal, 57(1), 88-98. https://doi.org/10.1177/1055665619862457

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.