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Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom

Stock, Nicola Marie; Zucchelli, Fabio; Hudson, Nichola; Kiff, James D.; Hammond, Vanessa

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom Thumbnail


Authors

Nicola Stock Nicola2.Stock@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS

Nichola Hudson

James Kiff James.Kiff@uwe.ac.uk
Occasional Associate Lecturer - CHSS - HSS

Vanessa Hammond



Abstract

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist clinicians working in cleft lip and/or palate (CL/P) services hold a wealth of knowledge and experience yet to be elicited. The aims of this study were to identify common psychosocial challenges and potential risk and/or protective factors for psychosocial distress from the perspective of specialist clinicians and to establish the types of interventions currently being delivered in practice. Design: Individual interviews with 17 clinical nurse specialists and 19 specialist clinical psychologists, representing all 16 UK CL/P surgical sites. Data were analyzed using inductive content analysis. Results: Numerous psychosocial challenges affecting individuals with CL/P and their families were identified across the life span. Risk factors were predominantly contextual in nature, while protective factors appeared amenable to intervention. Participants drew upon a range of therapeutic models and approaches to guide formulation and intervention, while acknowledging the lack of evidence to support these approaches in CL/P populations specifically. Conclusions: Findings have important implications for the way in which psychosocial support for CL/P and related conditions is delivered and evaluated. A framework for the standardized assessment of holistic individual and familial well-being is proposed. Suggestions for increasing the evidence base for specific psychosocial interventions are made, including enhanced family functioning; social, emotional, and appearance concerns; treatment decision-making; and screening for psychosocial and developmental issues.

Journal Article Type Article
Acceptance Date Jun 18, 2019
Online Publication Date Aug 20, 2019
Publication Date Feb 1, 2020
Deposit Date Jun 21, 2019
Publicly Available Date Jun 21, 2019
Journal Cleft Palate-Craniofacial Journal
Print ISSN 1055-6656
Electronic ISSN 1545-1569
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 57
Issue 2
Pages 186-197
DOI https://doi.org/10.1177/1055665619868331
Keywords cleft lip and palate, chronic health conditions, risk and protective factors, psychosocial intervention, visible difference
Public URL https://uwe-repository.worktribe.com/output/1492745
Additional Information Additional Information : © 2019. Reprinted by permission of SAGE Publications
Contract Date Jun 21, 2019

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