A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model
(2021)
Journal Article
Kocher, A., Ndosi, M., Denhaerynck, K., Simon, M., Dwyer, A. A., Distler, O., …Nicca, D. (2021). A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model. Orphanet Journal of Rare Diseases, 16, Article 356. https://doi.org/10.1186/s13023-021-01944-9
Background: Rare disease patient-reported outcome measures (PROMs) require linguistic adaptation to overcome the challenge of geographically dispersed patient populations. Importantly, PROMs such as health-related quality of life (HRQoL) should accur... Read More about A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model.