Skip to main content

Research Repository

Advanced Search

All Outputs (140)

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article
Morris, M., Sanderson, T., Calnan, M., Richards, P., & Hewlett, S. (2010). 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis. Chronic Illness, 6(3), 228-240. https://doi.org/10.1177/1742395310377672

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes. Arthritis and Rheumatism, 62(5), 647-656. https://doi.org/10.1002/acr.20151

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis and Rheumatism, 62(5), 640-646. https://doi.org/10.1002/acr.20034

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article
Wylde, V., Livesey, C., Learmonth, I. D., Blom, A. W., & Hewlett, S. (2010). Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. Musculoskeletal Care, 8(2), 87-98. https://doi.org/10.1002/msc.170

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article
Harcourt, D., & Hewlett, S. (2010). Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care, 8(1), 46-54. https://doi.org/10.1002/msc.165

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.

The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study (2009)
Journal Article
Sanderson, T., Calnan, M., Morris, M., Richards, P., & Hewlett, S. (2009). The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study. Musculoskeletal Care, 7(3), 194-209. https://doi.org/10.1002/msc.149

Objective: To explore rheumatoid arthritis (RA) patients' experience of access to antitumour necrosis factor (anti-TNF) therapy in the UK, and of switching therapies after an initial failure. Methods: Patients were asked about their experience of acc... Read More about The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study.

Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management (2009)
Journal Article
Repping-Wuts, H., Hewlett, S., Van Riel, P., & Van Achterberg, T. (2009). Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management. Journal of Advanced Nursing, 65(4), 901-911. https://doi.org/10.1111/j.1365-2648.2008.04904.x

Title: Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management. Aim: This paper is a report of a study conducted to compare the knowledge, attitudes and current management of rheumatoid arthritis-r... Read More about Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management.

Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group) (2009)
Journal Article
Alten, R. E., Strand, C. V., Furst, D. E., Witter, J. P., Rahman, M. U., May, J. E., …Boers, M. (2009). Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group). Journal of Rheumatology, 36(10), 2335-2341. https://doi.org/10.3899/jrheum.090369

Objective. Traditional outcome measures in randomized controlled trials (RCT) include well-established response criteria as well as ACR EULAR responses using Disease Activity Score 44 (DAS44)/DAS28 to assess improvement; however, a measure to assess... Read More about Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group).

Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9 (2009)
Journal Article
Sanderson, T. C., Nicklin, J., March, L. M., Wells, G. A., Tugwell, P. S., Kirwan, J. R., …Welch, V. (2009). Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. Journal of Rheumatology, 36(9), 2071-2076. https://doi.org/10.3899/jrheum.090360

The Patient Perspective Workshop included over 100 researchers and 18 patient participants from 8 countries. Following preconference reading and short plenary presentations, breakout groups considered work undertaken on measurement of sleep, assessin... Read More about Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9.

Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management (2008)
Journal Article
Carr, M., Hehir, M., Carr, M., Davis, B., Radford, S., Robertson, L., …Hewlett, S. (2008). Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management. Musculoskeletal Care, 6(2), 124-134. https://doi.org/10.1002/msc.115

Background: Following a diagnosis of rheumatoid arthritis (RA), patients have to adapt to lifelong, unpredictable but repeated episodes of pain and disability, potentially leading to permanent loss of function and its consequences on their lives. We... Read More about Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management.

Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy (2008)
Journal Article
Unsworth, H., Spicer, J., Seaman, N., Read, E., McEachern, C., Maggs, F., …Kirwan, J. (2008). Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy. Musculoskeletal Care, 6(1), 49-67. https://doi.org/10.1002/msc.125

Objectives: Patient education in rheumatoid arthritis (RA) aims to improve health outcomes by prompting people to adopt self-management behaviours. One precursor for initiating behaviour change is self-efficacy (SE), a belief that you can do a task.... Read More about Sensitivity to change of the Rheumatoid Arthritis Self-Efficacy scale (RASE) and predictors of change in self-efficacy.

'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis (2008)
Journal Article
Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., …Hewlett, S. (2008). 'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care, 6(3), 155-167. https://doi.org/10.1002/msc.132

Objectives: The diagnosis of rheumatoid arthritis (RA) brings rapid pharmacological and multidisciplinary team interventions to address inflammatory processes and symptom management. However, people may also need support on the journey to self-manage... Read More about 'It's quite hard to grasp the enormity of it': Perceived needs of people upon diagnosis of rheumatoid arthritis.

Return to sport after joint replacement (2008)
Journal Article
Dieppe, P., Wylde, V., Blom, A., Hewlett, S., & Learmonth, I. (2008). Return to sport after joint replacement. Journal of Bone and Joint Surgery, British Volume, 90(7), 920-923. https://doi.org/10.1302/0301-620X.90B7.20614

Our aim was to determine the pre-operative sporting profiles of patients undergoing primary joint replacement and to establish if they were able to return to sport after surgery. A postal survey was completed by 2085 patients between one and three ye... Read More about Return to sport after joint replacement.

Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions (2008)
Journal Article
Hewlett, S., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L., …Almeida, C. (2008). Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions. Rheumatology, 47(7), 1025-1030. https://doi.org/10.1093/rheumatology/ken139

Objectives. Rheumatological conditions are common, thus nurses (Ns) occupational therapists (OTs) and physiotherapists (PTs) require at least basic rheumatology knowledge upon qualifying. The aim of this study was to develop a core set of teaching to... Read More about Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions.