All Outputs (12)

Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews (2023)
Journal Article
Humphrey, P., Dures, E., Hoskin, P., & Cramp, F. (in press). Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews. International Journal of Radiation Oncology - Biology - Physics, https://doi.org/10.1016/j.ijrobp.2023.12.016

Purpose: Brachytherapy for gynecological cancer is reported to cause pain, anxiety, and distress with no clear guidance for optimizing patient experiences. The aim of this study was to explore patient experiences of brachytherapy and views on improve... Read More about Patient experiences of brachytherapy for locally advanced cervical cancer: hearing the patient voice through qualitative interviews.

Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol (2023)
Journal Article
Simms-Moore, R., Dures, E., Barua, N., & Cramp, F. (2023). Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol. BMJ Open, 13(12), Article e078183. https://doi.org/10.1136/bmjopen-2023-078183

Introduction Fatigue is the most prevalent symptom for patients with a primary brain tumour (PBT), significantly reducing quality of life and limiting daily activities. Currently, there are limited options for managing cancer-related fatigue (CRF) in... Read More about Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol.

Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Farisogullari, B., Santos, E. J. F., Dures, E., Geenen, R., & Machado, P. M. (2023). Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. RMD Open, 9(4), Article e003349. https://doi.org/10.1136/rmdopen-2023-003349

ObjectiveTo identify the best evidence on the efficacy of pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to inform... Read More about Efficacy of pharmacological interventions: A systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Dures, E., Farisoğulları, B., Santos, E. J. F., Molto, A., Feldthusen, C., Harris, C., …Machado, P. M. (in press). 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. Annals of the Rheumatic Diseases, https://doi.org/10.1136/ard-2023-224514

Objectives Fatigue is prevalent in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and recognised as one of the most challenging symptoms to manage. The existence of multiple factors associated with driving and maintaining fa... Read More about 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2024). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, 83(3), 394-400. https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset (2023)
Journal Article
Lim, J., Dures, E., Bailey, L. F., Almeida, C., Ruediger, C., Hill, C., …MacKie, S. L. (2024). Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset. Rheumatology Advances in Practice, 8(1), Article rkad082. https://doi.org/10.1093/rap/rkad082

Objective: Jaw symptoms can be a vital clue to the diagnosis of GCA. Guidelines recommend more intensive treatment if jaw claudication is present. We sought to explore how patients with GCA described their jaw symptoms. Methods: We carried out a seco... Read More about Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset.

Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article
Santos, E. J. F., Farisogullari, B., Dures, E., Geenen, R., & Machado, P. M. (2023). Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases. RMD Open, 9(3), e003350. https://doi.org/10.1136/rmdopen-2023-003350

Objective: To identify the best evidence on the efficacy of non-pharmacological interventions in reducing fatigue in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and to summarise their safety in the identified studies to i... Read More about Efficacy of non-pharmacological interventions: a systematic review informing the 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases (2023)
Journal Article
Chong, H. Y., McNamee, P., Bachmair, E. M., Martin, K., Aucott, L., Dhaun, N., …Basu, N. (2023). Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases. Rheumatology, 62(12), 3819-3827. https://doi.org/10.1093/rheumatology/kead157

OBJECTIVES: To estimate the cost-effectiveness of a cognitive behavioural approach (CBA) or a personalized exercise programme (PEP), alongside usual care (UC), in patients with inflammatory rheumatic diseases who report chronic, moderate to severe fa... Read More about Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.

Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial (2023)
Journal Article
Smith, T., Khoury, R., Ashford, P., Hanson, S., Welsh, A., Clark, A., …Adams, J. (2023). Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial. BMJ Open, 13(1), Article e070865

Introduction: Chronic musculoskeletal (bone, joint or muscle) pain is disabling. People with it frequently have difficulties in managing everyday activities. Individuals may rely on family members or friends to support them. These people are known as... Read More about Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article
Silverthorne, C., Daniels, J., Thompson, M., Robson, J. C., Ndosi, M., Swales, C., …Dures, E. (2023). Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study. Musculoskeletal Care, 21(2), 537-544. https://doi.org/10.1002/msc.1730

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.