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All Outputs (64)

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health (2011)
Journal Article
Dworkin, R. H., Furst, D. E., Singh, J. A., Wells, G. A., Harrison, M. J., Boonen, A., …Hewlett, S. (2011). OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health. Journal of Rheumatology, 38(8), 1728-1734. https://doi.org/10.3899/jrheum.110393

This workshop reviewed progress in a number of areas related to patient perspective outcomes that were not specifically included within other areas of the program. A substantial review of the work of the valuing health outcomes group (the "QALY" work... Read More about OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health.

A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study (2011)
Journal Article
Ndosi, M., Lewis, M., Hale, C., Quinn, H., Ryan, S., Emery, P., …Hill, J. (2011). A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study. International Journal of Nursing Studies, 48(8), 995-1001. https://doi.org/10.1016/j.ijnurstu.2011.01.010

Background: The rise in the number of patients with arthritis coupled with understaffing of medical services has seen the deployment of Clinical Nurse Specialists in running nurse-led clinics alongside the rheumatologist clinics. There are no systema... Read More about A randomised, controlled study of outcome and cost effectiveness for RA patients attending nurse-led rheumatology clinics: Study protocol of an ongoing nationwide multi-centre study.

Patient perspective: Choosing or developing instruments (2011)
Journal Article
Osborne, R. H., Kirwan, J. R., Fries, J. F., & Hewlett, S. (2011). Patient perspective: Choosing or developing instruments. Journal of Rheumatology, 38(8), 1716-1719. https://doi.org/10.3899/jrheum.110390

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approache... Read More about Patient perspective: Choosing or developing instruments.

The Active for Life Year 5 (AFLY5) school based cluster randomised controlled trial: Study protocol for a randomized controlled trial (2011)
Journal Article
Kipping, R. R., Peters, T. J., Howe, L. D., Chittleborough, C. R., Noble, S. M., Lawlor, D. A., …Mytton, J. (2011). The Active for Life Year 5 (AFLY5) school based cluster randomised controlled trial: Study protocol for a randomized controlled trial. Trials, 12, 181. https://doi.org/10.1186/1745-6215-12-181

Background: Low levels of physical activity, high levels of sedentary behaviour and low levels of fruit and vegetable consumption are common in children and are associated with adverse health outcomes. The aim of this paper is to describe the protoco... Read More about The Active for Life Year 5 (AFLY5) school based cluster randomised controlled trial: Study protocol for a randomized controlled trial.

The serious mental illness health improvement profile [HIP]: Study protocol for a cluster randomised controlled trial (2011)
Journal Article
Barton, G. R., Gray, R. J., White, J., Swift, L., & Jones, M. (2011). The serious mental illness health improvement profile [HIP]: Study protocol for a cluster randomised controlled trial. Trials, 12(1), 167. https://doi.org/10.1186/1745-6215-12-167

Background: The serious mental illness Health Improvement Profile [HIP] is a brief pragmatic tool, which enables mental health nurses to work together with patients to screen physical health and take evidence-based action when variables are identifie... Read More about The serious mental illness health improvement profile [HIP]: Study protocol for a cluster randomised controlled trial.

'Chemobrain': Concentration and memory effects in people receiving chemotherapy - a descriptive phenomenological study (2011)
Journal Article
Turton, P., & Mitchell, T. (2011). 'Chemobrain': Concentration and memory effects in people receiving chemotherapy - a descriptive phenomenological study. European Journal of Cancer Care, 20(4), 539-548. https://doi.org/10.1111/j.1365-2354.2011.01244.x

There is an international literature which claims that there is a link between chemotherapeutic agents and cognitive impairment. Deficits in concentration and memory can have a major impact on decision making about education and careers, and on gener... Read More about 'Chemobrain': Concentration and memory effects in people receiving chemotherapy - a descriptive phenomenological study.

Is the use of symphysis-fundal height measurement and ultrasound examination effective in detecting small or large fetuses? (2011)
Journal Article
Hargreaves, K., Cameron, M., Edwards, H., Gray, R., & Deane, K. (2011). Is the use of symphysis-fundal height measurement and ultrasound examination effective in detecting small or large fetuses?. Journal of Obstetrics and Gynaecology, 31(5), 380-383. https://doi.org/10.3109/01443615.2011.567343

We investigated the accuracy of using symphysis pubis-fundal height measurement and ultrasonically derived estimation of fetal weight for identifying small-for-gestational-age (SGA) and large-for-gestational-age (LGA) fetuses. A retrospective cohort... Read More about Is the use of symphysis-fundal height measurement and ultrasound examination effective in detecting small or large fetuses?.

Propriety, process and purpose: Considerations of the use of the telephone interview method in an educational research study (2011)
Journal Article
Glogowska, M., Young, P., & Lockyer, L. (2011). Propriety, process and purpose: Considerations of the use of the telephone interview method in an educational research study. Higher Education, 62(1), 17-26. https://doi.org/10.1007/s10734-010-9362-2

While the use of the telephone has increased as a means of collecting research data in a range of areas, there are few examples of studies where telephone interviews have been conducted to collect qualitative data. The field of educational research i... Read More about Propriety, process and purpose: Considerations of the use of the telephone interview method in an educational research study.

Is prevention better than cure? a re-evaluation of the potential use of nicotine conjugate vaccine in children (2011)
Journal Article
McMahon-Parkes, K. (2011). Is prevention better than cure? a re-evaluation of the potential use of nicotine conjugate vaccine in children. Public Health Ethics, 4(2), 121-128. https://doi.org/10.1093/phe/phr018

Despite worldwide efforts to reduce the consumption of tobacco, legislative and educational measures have failed to eradicate the practice of cigarette smoking. Indeed, in many populations, particularly in the developing world, its prevalence is incr... Read More about Is prevention better than cure? a re-evaluation of the potential use of nicotine conjugate vaccine in children.

Men's experiences of rheumatoid arthritis: An inductive thematic analysis (2011)
Journal Article
Noddings, R., Lack, S., & Hewlett, S. (2011). Men's experiences of rheumatoid arthritis: An inductive thematic analysis. Musculoskeletal Care, 9(2), 102-112. https://doi.org/10.1002/msc.203

Objectives. There is a lack of evidence for understanding the clinical needs of men with rheumatoid arthritis (RA). This study investigated the psychosocial experience of this group, to inform clinical practice and generate further research. Methods.... Read More about Men's experiences of rheumatoid arthritis: An inductive thematic analysis.

Migration and "low-skilled" workers in destination countries (2011)
Journal Article
Benach, J., Muntaner, C., Delclos, C., Menéndez, M., & Ronquillo, C. E. (2011). Migration and "low-skilled" workers in destination countries. PLoS Medicine, 8(6), e1001043. https://doi.org/10.1371/journal.pmed.1001043

Summary Points The last few decades have seen substantial increases in the migration of migrant workers, raising concerns about the health implications of these movements. In destination countries, migrant workers often fill undesirable, low-skil... Read More about Migration and "low-skilled" workers in destination countries.

Early stroke discharge team: A participatory evaluation (2011)
Journal Article
Moule, P., & Young, P. (2011). Early stroke discharge team: A participatory evaluation. International Journal of Therapy and Rehabilitation, 18(6), 319-328

Aims: International evaluation of Early Stroke Discharge (ESD) has concentrated on measuring the impact of service provision. This research aimed to address the question, ‘How did the ESD team members and external stakeholders experience the service... Read More about Early stroke discharge team: A participatory evaluation.

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2011). The psychosocial impact of Epidermolysis bullosa. Qualitative Health Research, 21(6), 771-782. https://doi.org/10.1177/1049732311400431

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries (2011)
Journal Article
Zangi, H. A., Vliet Vlieland, T. P., Ndosi, M., Tennant, A., Bergsten, U., Kukkurainen, M. L., …Hill, J. (2011). Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries. BMC Musculoskeletal Disorders, 12(1), https://doi.org/10.1186/1471-2474-12-110

Background: The Educational Needs Assessment Tool (the ENAT) is a 39-item patient questionnaire originally developed in the UK to assess educational needs of patients with rheumatoid arthritis (RA). The objective of this study was to assess the cross... Read More about Cross-cultural validation of the Educational Needs Assessment Tool in RA in 7 European countries.

Health visitors' experiences of child health promotion policy reform in England (2011)
Journal Article
Condon, L. (2011). Health visitors' experiences of child health promotion policy reform in England. Community Practitioner, 84(6), 25-28

Abstract Child health promotion services for children in England have been revolutionised in the last decade, with a shift from a low-threshold universal service to a more highly targeted programme. This has impacted upon health visitors’ preventive... Read More about Health visitors' experiences of child health promotion policy reform in England.

The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review (2011)
Journal Article
Ndosi, M., Vinall, K., Hale, C., Bird, H., & Hill, J. (2011). The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review. International Journal of Nursing Studies, 48(5), 642-654. https://doi.org/10.1016/j.ijnurstu.2011.02.007

Objectives: The objective of this systematic review was to determine the effectiveness of nurse-led care in rheumatoid arthritis. Design: Systematic review of effectiveness. Data sources: Electronic databases (AMED, CENTRAL, CINAHL, EMBASE, HMIC, HTA... Read More about The effectiveness of nurse-led care in people with rheumatoid arthritis: A systematic review.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article
Hewlett, S., Glüsing, B., Bijlsma, J. W., De Wit, M. P., De Witt, M., Berlo, S. E., …Abma, T. A. (2011). European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Annals of the Rheumatic Diseases, 70(5), 722-726. https://doi.org/10.1136/ard.2010.135129

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2011). Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health and Illness, 33(4), 618-633. https://doi.org/10.1111/j.1467-9566.2010.01305.x

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.