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All Outputs (175)

'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis (2011)
Journal Article
Waldron, N., Brown, S., Hewlett, S., Elliott, B., McHugh, N., & McCabe, C. (2011). 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis. Musculoskeletal Care, 9(4), 228-238. https://doi.org/10.1002/msc.221

Objectives: To identify the information needs of patients newly diagnosed with systemic lupus erythematosus (lupus), to inform the design of a future education package. Methods: Focus groups were conducted in seven rheumatology centres in the UK with... Read More about 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article
Hewlett, S., Dures, E., & Almeida, C. (2011). Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-. Arthritis and Rheumatism, 63(SUPPL. 11), S263-S286. https://doi.org/10.1002/acr.20579

Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop (2011)
Journal Article
Woodworth, T. G., Strand, V., Sanderson, T. C., Pohl, C., Montie, P., May, J. E., …Hewlett, S. (2011). Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop. Journal of Rheumatology, 38(8), 1751-1758. https://doi.org/10.3899/jrheum.110401

Background. While disease flares in rheumatoid arthritis (RA) are a recognized aspect of the disease process, there is limited formative research to describe them. Methods. The Outcome Measures in Rheumatology Clinical Trials (OMERACT) RA Flare Defin... Read More about Identifying preliminary domains to detect and measure rheumatoid arthritis flares: Report of the OMERACT 10 RA Flare Workshop.

OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health (2011)
Journal Article
Dworkin, R. H., Furst, D. E., Singh, J. A., Wells, G. A., Harrison, M. J., Boonen, A., …Hewlett, S. (2011). OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health. Journal of Rheumatology, 38(8), 1728-1734. https://doi.org/10.3899/jrheum.110393

This workshop reviewed progress in a number of areas related to patient perspective outcomes that were not specifically included within other areas of the program. A substantial review of the work of the valuing health outcomes group (the "QALY" work... Read More about OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health.

Patient perspective: Choosing or developing instruments (2011)
Journal Article
Osborne, R. H., Kirwan, J. R., Fries, J. F., & Hewlett, S. (2011). Patient perspective: Choosing or developing instruments. Journal of Rheumatology, 38(8), 1716-1719. https://doi.org/10.3899/jrheum.110390

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approache... Read More about Patient perspective: Choosing or developing instruments.

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Journal Article
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy (2011)
Journal Article
Hewlett, S., Ambler, N., Almeida, C., Cliss, A., Hammond, A., Kitchen, K., …Pollock, J. (2011). Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy. Annals of the Rheumatic Diseases, 70(6), 1060-1067. https://doi.org/10.1136/ard.2010.144691

Objectives To investigate the effect of group cognitive behavioural therapy (CBT) for fatigue self-management, compared with groups receiving fatigue information alone, on fatigue impact among people with rheumatoid arthritis (RA). Methods Two-arm, p... Read More about Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy.

Men's experiences of rheumatoid arthritis: An inductive thematic analysis (2011)
Journal Article
Noddings, R., Lack, S., & Hewlett, S. (2011). Men's experiences of rheumatoid arthritis: An inductive thematic analysis. Musculoskeletal Care, 9(2), 102-112. https://doi.org/10.1002/msc.203

Objectives. There is a lack of evidence for understanding the clinical needs of men with rheumatoid arthritis (RA). This study investigated the psychosocial experience of this group, to inform clinical practice and generate further research. Methods.... Read More about Men's experiences of rheumatoid arthritis: An inductive thematic analysis.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article
Hewlett, S., Glüsing, B., Bijlsma, J. W., De Wit, M. P., De Witt, M., Berlo, S. E., …Abma, T. A. (2011). European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Annals of the Rheumatic Diseases, 70(5), 722-726. https://doi.org/10.1136/ard.2010.135129

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2011). Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health and Illness, 33(4), 618-633. https://doi.org/10.1111/j.1467-9566.2010.01305.x

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article
Dieppe, P., Learmonth, I. D., Wylde, V., & Hewlett, S. (2011). Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants. PAIN, 152(3), 566-572. https://doi.org/10.1016/j.pain.2010.11.023

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article
Nicklin, J., Cramp, F., Kirwan, J. R., Urban, M., & Hewlett, S. (2010). Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care and Research, 62(11), 1552-1558. https://doi.org/10.1002/acr.20264

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article
Morris, M., Sanderson, T., Calnan, M., Richards, P., & Hewlett, S. (2010). 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis. Chronic Illness, 6(3), 228-240. https://doi.org/10.1177/1742395310377672

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes. Arthritis and Rheumatism, 62(5), 647-656. https://doi.org/10.1002/acr.20151

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article
Sanderson, T., Morris, M., Calnan, M., Richards, P., & Hewlett, S. (2010). What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis and Rheumatism, 62(5), 640-646. https://doi.org/10.1002/acr.20034

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article
Wylde, V., Livesey, C., Learmonth, I. D., Blom, A. W., & Hewlett, S. (2010). Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. Musculoskeletal Care, 8(2), 87-98. https://doi.org/10.1002/msc.170

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article
Harcourt, D., & Hewlett, S. (2010). Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care, 8(1), 46-54. https://doi.org/10.1002/msc.165

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.