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All Outputs (4)

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2011). The psychosocial impact of Epidermolysis bullosa. Qualitative Health Research, 21(6), 771-782. https://doi.org/10.1177/1049732311400431

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article
Dures, E., Morris, M., Gleeson, K., & Rumsey, N. (2010). 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa. Chronic Illness, 6(3), 215-227. https://doi.org/10.1177/1742395310377006

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.