All Outputs (8)

Stroke frequency, associated factors, and clinical features in primary systemic vasculitis: A multicentric observational study (2024)
Journal Article
Geraldes, R., Robson, J. C., Santos, M., Ponte, C., Craven, A., Barra, L., …Luqmani, R. A. (in press). Stroke frequency, associated factors, and clinical features in primary systemic vasculitis: A multicentric observational study. Journal of Neurology, https://doi.org/10.1007/s00415-024-12251-1

Objectives: The cerebral vessels may be affected in primary systemic vasculitis (PSV), but little is known about cerebrovascular events (CVEs) in this population. This study aimed to determine the frequency of CVEs at the time of diagnosis of PSV, to... Read More about Stroke frequency, associated factors, and clinical features in primary systemic vasculitis: A multicentric observational study.

Shared decision making between physicians and patients (2024)
Journal Article
Robson, J., Diaz Encarnacion, M. M., Verhoeven, P., Olivenza Anton, R., Balcells-Oliver, M., Popov, T., …Kronbichler, A. (in press). Shared decision making between physicians and patients. Annals of the Rheumatic Diseases,

No abstract as this is a letter to the editor

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article
Sweeney, A. M. T., Flurey, C. A., McCabe, C. S., Robson, J. C., Richards, P., & Ndosi, M. (2023). Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis. Musculoskeletal Care, 21(4), 1651-1661. https://doi.org/10.1002/msc.1844

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Relapse after cessation of weekly tocilizumab for giant cell arteritis: A multicentre service evaluation in England (2023)
Journal Article
Quick, V., Abusalameh, M., Ahmed, S., Alkoky, H., Bukhari, M., Carter, S., …Mackie, S. L. (in press). Relapse after cessation of weekly tocilizumab for giant cell arteritis: A multicentre service evaluation in England. Rheumatology, https://doi.org/10.1093/rheumatology/kead604

Objectives: The National Health Service in England funds 12 months of weekly subcutaneous tocilizumab (qwTCZ) for patients with relapsing or refractory giant cell arteritis (GCA). During the COVID-19 pandemic, some patients were allowed longer treatm... Read More about Relapse after cessation of weekly tocilizumab for giant cell arteritis: A multicentre service evaluation in England.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2024). Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO). Annals of the Rheumatic Diseases, 83(3), 394-400. https://doi.org/10.1136/ard-2023-224946

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset (2023)
Journal Article
Lim, J., Dures, E., Bailey, L. F., Almeida, C., Ruediger, C., Hill, C., …MacKie, S. L. (2024). Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset. Rheumatology Advances in Practice, 8(1), Article rkad082. https://doi.org/10.1093/rap/rkad082

Objective: Jaw symptoms can be a vital clue to the diagnosis of GCA. Guidelines recommend more intensive treatment if jaw claudication is present. We sought to explore how patients with GCA described their jaw symptoms. Methods: We carried out a seco... Read More about Jaw claudication and jaw stiffness in giant cell arteritis: Secondary analysis of a qualitative research dataset.

Association of the AAV-PRO questionnaire with established outcome measures in AAV (2023)
Journal Article
Maunz, A., Jacoby, J., Henes, J., Robson, J. C., Hellmich, B., & Löffler, C. (2024). Association of the AAV-PRO questionnaire with established outcome measures in AAV. Rheumatology, 63(1), 174-180. https://doi.org/10.1093/rheumatology/kead199

OBJECTIVES: The ANCA-associated vasculitis (AAV) patient-reported outcome (AAV-PRO) questionnaire was developed to capture the impact of AAV and its treatment. We investigated the association of specific AAV-PRO domains with disease activity and exte... Read More about Association of the AAV-PRO questionnaire with established outcome measures in AAV.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Journal Article
Bridgewater, S., Ndosi, M., Dawson, J., Richards, P., Silverthorne, C., Dures, E., …Robson, J. C. (2023). E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models. Rheumatology, 62(Supplement_2), ii143. https://doi.org/10.1093/rheumatology/kead104.287

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.