'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1
(2014)
Journal Article
Barke, J., Harcourt, D., & Coad, J. (2014). 'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1. Journal of Advanced Nursing, 70(7), 1594-1603. https://doi.org/10.1111/jan.12319
Aims: To explore the day-to-day experience of young people living with neurofibromatosis type 1 in the UK, focusing on the role that appearance plays in this experience. Background: neurofibromatosis type 1 is a genetic condition, which is highly var... Read More about 'It's like a bag of pick and mix - you don't know what you are going to get': Young people's experience of neurofibromatosis Type 1.