All Outputs (5)

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article
Ndosi, M., Almeida, C., Dawson, J., Dures, E., Greenwood, R., Bromhead, A., …Robson, J. C. (2024). Validation of a patient-reported outcome measure for giant cell arteritis. Rheumatology, 63(1), 181-189. https://doi.org/10.1093/rheumatology/kead201

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure (2023)
Journal Article
Bridgewater, S., Shepherd, M. A., Dawson, J., Richards, P., Silverthorne, C., Ndosi, M., …Robson, J. C. (2023). Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure. Rheumatology, 62(11), 3565–3575. https://doi.org/10.1093/rheumatology/kead081

OBJECTIVES: Glucocorticoids (GCs) ('steroids') are used to treat rheumatic diseases but adverse effects are common. We aimed to explore the impact of GC therapy on health-related quality of life (HRQoL), to inform the development of a treatment-speci... Read More about Measuring the impact of steroid therapy on health-related quality of life in patients with rheumatic diseases: International development of a glucocorticoid treatment-specific patient-reported outcome measure.

Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation (2022)
Journal Article
Bennett, S. E., Almeida, C., Bachmair, E., Gray, S. R., Lovell, K., Paul, L., …Dures, E. (2022). Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation. Rheumatology Advances in Practice, 6(3), Article rkac083. https://doi.org/10.1093/rap/rkac083

Objective: Fatigue is a challenging feature of all inflammatory rheumatic diseases. LIFT (Lessening the Impact of Fatigue in inflammatory rheumatic diseases: a randomized Trial) included remotely delivered personalized exercise programme (PEP) or cog... Read More about Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation.

Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation (2022)
Journal Article
Bennett, S. E., Almeida, C., Bachmair, E. M., Gray, S. R., Lovell, K., Paul, L., …Dures, E. (2022). Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation. Rheumatology Advances in Practice, 6(2), Article rkac051. https://doi.org/10.1093/rap/rkac051

Objectives: Fatigue can be a disabling symptom of inflammatory rheumatic diseases. LIFT (Lessening the Impact of Fatigue in inflammatory rheumatic diseases: a randomized Trial) is a randomized trial of remotely delivered cognitive-behavioural approac... Read More about Remotely delivered cognitive-behavioural and personalized exercise interventions to lessen the impact of fatigue: A qualitative evaluation.

Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article
Austin, K., Dures, E., Almeida, C., Cramp, F., Guly, C. M., Hill, C. L., …Robson, J. C. (2022). Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data. Arthritis Care and Research, 74(1), 99-106. https://doi.org/10.1002/acr.24800

Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.