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The ED-EQoL: The development of a new quality of life measure for patients with erectile dysfunction

Pontin, D.; Porter, T.; MacDonagh, Ruaraidh; Ewings, Paul

Authors

D. Pontin

T. Porter

Ruaraidh MacDonagh

Paul Ewings



Abstract

Purpose; To identify the important issues which have an impact on the quality of life (QoL) of men suffering from erectile dysfunction (ED) and to generate a new ED-specific QoL questionnaire ready to undergo further psychometric testing. Methods: QoL issues relating to ED were generated through in-depth quali-tative interviews of 29 patients, literature review and consultation with other healthcare professionals. The issues were formulated into a questionnaire, which was piloted using 40 patients with ED and subsequently refined using well-established principles of questionnaire development. Results: The qualitative interviews revealed numerous psychosocial problems associated with ED, which were operationalised into a 40-item questionnaire. Pilot testing allowed the questionnaire to be reduced to a manageable 15-item final questionnaire while maintaining face and content validity and the potential to discriminate between men with varying degrees of affected QoL. This questionnaire had a Cronbach's α of 0.94. Conclusions: A new ED-specific QoL measure has been developed using appropriate methodology. Qualitative techniques identified a range of psychosocial morbidity in men with ED, leading to a simple but robust instrument with face and content validity. This questionnaire, Erectile Dysfunction - Effect on quality of life (ED-EQoL), has now undergone psychometric testing for validity and reliability.

Citation

Porter, T., Pontin, D., MacDonagh, R., & Ewings, P. (2004). The ED-EQoL: The development of a new quality of life measure for patients with erectile dysfunction. Quality of Life Research, 13(2), 361-368. https://doi.org/10.1023/B%3AQURE.0000018471.04066.4c

Journal Article Type Review
Publication Date Mar 1, 2004
Journal Quality of Life Research
Print ISSN 0962-9343
Publisher Springer Verlag
Peer Reviewed Peer Reviewed
Volume 13
Issue 2
Pages 361-368
DOI https://doi.org/10.1023/B%3AQURE.0000018471.04066.4c
Keywords erectile dysfunction, quality of life, qualitative research
Public URL https://uwe-repository.worktribe.com/output/1061833
Publisher URL http://dx.doi.org/10.1023/B:QURE.0000018471.04066.4c




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