Outputs (86)

Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program (2023)
Journal Article
Stock, N. M., Crerand, C. E., Johns, A. L., McKinney, C. M., Koudstaal, M. J., Drake, A. F., & Heike, C. L. (in press). Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231176904

Objective: Craniofacial microsomia (CFM) is a broad clinical term used to describe a congenital condition most commonly involving the underdevelopment of the external ear, mandible, soft tissues, and facial nerve. Despite medical advances, understand... Read More about Establishing an international interdisciplinary research network in craniofacial microsomia: The CARE Program.

Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions (2023)
Journal Article
Fladeboe, K., Stock, N. M., Heike, C., Evans, K., Junkins, C., Stueckle, L., …Yi-Frazier, J. (in press). Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions. Cleft Palate-Craniofacial Journal, https://doi.org/10.1177/10556656231157449

Objectives: Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children wit... Read More about Feasibility and acceptability of the promoting resilience in stress management-parent (PRISM-P) intervention for caregivers of children with craniofacial conditions.

Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences? (2022)
Journal Article
McWilliams, D., Thornton, M., Hotton, M., Swan, M., & Stock, N. M. (in press). Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?. Psychology, Health and Medicine, https://doi.org/10.1080/13548506.2022.2124291

Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Individuals born with CL/P will embark on a long-term treatment pathway throughout childhood and often into adulthood. As they grow older, young people become m... Read More about Transitioning from child to adult cleft lip and palate services in the United Kingdom: Are the NICE Guidelines reflected in young adults’ experiences?.

Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care (2022)
Journal Article
Stock, N. M., Zucchelli, F., Hammond, V., Hudson, N., & Sell, D. (2022). Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care. British Journal of Healthcare Management, 28(8), 1-10. https://doi.org/10.12968/bjhc.2021.0051

Background/Aims Despite published standards of care, inequities and variations in specialist care delivery in the UK have been identified. Using cleft lip and palate services as an example, this study aims to identify potential facilitators and commo... Read More about Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care.

Raising a child with Craniosynostosis: Psychosocial adjustment in parents (2022)
Journal Article
Costa, B., Edwards, W., Culshaw, L., Wilkinson-Bell, K., & Stock, N. M. (in press). Raising a child with Craniosynostosis: Psychosocial adjustment in parents. Cleft Palate-Craniofacial Journal, 105566562211020. https://doi.org/10.1177/10556656221102043

Objective: While knowledge of the psychosocial impact of craniofacial conditions is growing, literature regarding the impact on parents remains limited. Parents of children born with a health condition may be at risk of experiencing a range of psycho... Read More about Raising a child with Craniosynostosis: Psychosocial adjustment in parents.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article
Tollow, P., Stock, N., & Harcourt, D. (2022). Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study. Scars, Burns & Healing, 8, 20595131221098526. https://doi.org/10.1177/20595131221098526

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades (2022)
Journal Article
L Johns, A., Stock, N. M., Costa, B., B Feragen, K., & E Crerand, C. (2023). Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades. Cleft Palate-Craniofacial Journal, 60(9), 1090-1112. https://doi.org/10.1177/10556656221091699

Objective: This paper describes 20 years of microtia and craniofacial microsomia (CFM) psychosocial and healthcare studies and suggests directions for clinical care and research. Design: A narrative review of papers January 2000 to July 2021 related... Read More about Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades.

The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives (2022)
Journal Article
McWilliams, D., Costa, B., Blighe, S., Swan, M. C., Hotton, M., Hudson, N., & Stock, N. M. (2023). The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives. Cleft Palate-Craniofacial Journal, 60(5), 551-561. https://doi.org/10.1177/10556656221074870

Objectives Professionals in the United Kingdom providing care to new families affected by cleft lip and/or palate (CL/P) had to adapt to ensure families’ needs were met during a time of uncertainty due to Covid-19. The aims of this study were to exp... Read More about The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article
Stock, N. M., Costa, B., Wilkinson-Bell, K., Culshaw, L., Kearney, A., & Edwards, W. (2023). Psychological and physical health outcomes in adults with craniosynostosis. Cleft Palate-Craniofacial Journal, 60(3), 257-267. https://doi.org/10.1177/10556656211059966

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic (2021)
Journal Article
Costa, B., McWilliams, D., Blighe, S., Hudson, N., Hotton, M., Swan, M. C., & Stock, N. M. (2023). Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic. Cleft Palate-Craniofacial Journal, 60(1), 82-92. https://doi.org/10.1177/10556656211055006

Objectives: Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Furthe... Read More about Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic.