Outputs (33)

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2022). The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury. European Burn Journal, 3(1), 211-233. https://doi.org/10.3390/ebj3010019

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2021). Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers. European Burn Journal, 2(4), 249-280

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article
Lahdenperä, N., Repo, J. P., Aartolahti, E., Tollow, P., Griffiths, C., Harcourt, D., …Lindford, A. (2021). The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish. Burns, 47(8), 1922-1928. https://doi.org/10.1016/j.burns.2021.02.017

Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.

The nature and importance of women's goals for immediate and delayed breast reconstruction (2021)
Journal Article
Guest, E., Paraskeva, N., Griffiths, C., Hansen, E., Clarke, A., Baker, E., & Harcourt, D. (2021). The nature and importance of women's goals for immediate and delayed breast reconstruction. Journal of Plastic, Reconstructive and Aesthetic Surgery, 74(9), 2169-2175. https://doi.org/10.1016/j.bjps.2020.12.085

Objectives: Increasingly, women undergo breast reconstruction (BR) surgery to restore health-related and psychosocial quality of life after mastectomy. Most research focuses on BR outcomes rather than women's pre-surgical expectations of, and goals f... Read More about The nature and importance of women's goals for immediate and delayed breast reconstruction.

The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury (2020)
Journal Article
Griffiths, C., Guest, E., Pickles, T., Hollèn, L., Grzeda, M., Tollow, P., & Harcourt, D. (2021). The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury. Quality of Life Research, 30, 239–250. https://doi.org/10.1007/s11136-020-02627-x

Purpose: Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality o... Read More about The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.

The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury (2019)
Journal Article
Griffiths, C., Guest, E., Pickles, T., Hollén, L., Grzeda, M., White, P., …Harcourt, D. (2019). The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury. Journal of Burn Care and Research, 40(3), 312-326. https://doi.org/10.1093/jbcr/irz021

Introduction: Patient Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale - Adult Form: a PROM that assesses quality of... Read More about The development and validation of the CARe Burn Scale - Adult Form: A Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury.

The development and validation of the CARe Burn Scales: A portfolio of patient reported outcome measures (PROMs) for use in paediatric and adult burn care (2018)
Presentation / Conference
Griffiths, C., Guest, E., Pickles, T., Hollen, L., Grzeda, M., & Harcourt, D. (2018, June). The development and validation of the CARe Burn Scales: A portfolio of patient reported outcome measures (PROMs) for use in paediatric and adult burn care. Presented at Appearance Matters 8, Bath, England

.

A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services (2018)
Journal Article
Guest, E., Griffiths, C., & Harcourt, D. (2018). A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services. Scars, Burns & Healing, 4, 1-10. https://doi.org/10.1177/2059513118764881

Introduction: A burn can have a significant and long-lasting psychosocial impact on a patient and their family. The National Burn Care Standards (2013) recommend psychosocial support should be available in all U.K. burn services, however little is kn... Read More about A qualitative exploration of psychosocial specialists’ experiences of providing support in U.K. burn care services.

Developing patient reported outcome measures for use in NHS Burn Care: Project Update (2017)
Presentation / Conference
Griffiths, C., Guest, E., & Harcourt, D. (2017, October). Developing patient reported outcome measures for use in NHS Burn Care: Project Update. Presented at Restore Scientific Committee Meeting, Aylesbury, England

.

Discussing appearance concerns and support needs in burn care (2017)
Presentation / Conference
Griffiths, C., Guest, E., & Harcourt, D. (2017, September). Discussing appearance concerns and support needs in burn care. Presented at Division of Health Psychology Annual Conference, Mercure Cardiff Holland House Hotel & Spa, Cardiff, Wales

.