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Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study (2007)
Journal Article
Wallace, M., Harcourt, D., & Rumsey, N. (2007). Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study. Developmental Neurorehabilitation, 10(2), 125-132. https://doi.org/10.1080/13638490701217313

Statement of purpose: Meningococcal Septicaemia (ms) is an acute, life-threatening illness characterized by rapid progression and if not treated swiftly can result in death within hours. Those who survive may require skin grafting or amputation of di... Read More about Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: A qualitative study.

Measuring the quality of life of youth with facial differences (2007)
Journal Article
Patrick, D. L., Topolski, T. D., Edwards, T. C., Aspinall, C. L., Kapp-Simon, K. A., Rumsey, N., …Thomas, C. R. (2007). Measuring the quality of life of youth with facial differences. Cleft Palate-Craniofacial Journal, 44(5), 538-547. https://doi.org/10.1597/06-072.1

Objective: To describe the Facial Differences Module of the Youth Quality of Life Instruments (YQOL-FD) and present results evaluating domain structure, internal consistency, reproducibility, validity, and respondent burden. Design: A multisite obser... Read More about Measuring the quality of life of youth with facial differences.

Doing synchronous online focus groups with young people: Methodological reflections (2007)
Journal Article
Fox, F. E., Morris, M., & Rumsey, N. (2007). Doing synchronous online focus groups with young people: Methodological reflections. Qualitative Health Research, 17(4), 539-547. https://doi.org/10.1177/1049732306298754

Although online focus groups are emerging as a worthwhile methodological approach for qualitative researchers, reporting has been constrained in several ways. The majority of studies report asynchronous groups, whereas others employ synchronous excha... Read More about Doing synchronous online focus groups with young people: Methodological reflections.

Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice (2007)
Journal Article
Morris, P., Bradley, A., Doyal, L., Earley, M., Hagen, P., Milling, M., & Rumsey, N. (2007). Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice. Transplantation, 83(2), 109-128. https://doi.org/10.1097/01.tp.0000254201.89012.ae

Three years ago, the Working Party on Facial Transplantation concluded that until there was more information available about risks any potential patient would be exposed to, it would be unwise to proceed with transplantation of the human face. Over t... Read More about Face transplantation: A review of the technical, immunological, psychological and clinical issues with recommendations for good practice.

The psychosocial benefits of corrective surgery for adults with strabismus (2006)
Journal Article
Morris, M., Jackson, S., Harrad, R. A., & Rumsey, N. (2006). The psychosocial benefits of corrective surgery for adults with strabismus. British Journal of Ophthalmology, 90(7), 883-888. https://doi.org/10.1136/bjo.2005.089516

Background: Few papers have addressed the psychological impact of strabismus in adults, with none comparing preoperative and postoperative data using standardised questionnaires relating surgical results and psychosocial outcomes. Methods: 46 partici... Read More about The psychosocial benefits of corrective surgery for adults with strabismus.

Ignoring it doesn't make it stop: Adolescents, appearance, and bullying (2005)
Journal Article
Lovegrove, E., & Rumsey, N. (2005). Ignoring it doesn't make it stop: Adolescents, appearance, and bullying. Cleft Palate-Craniofacial Journal, 42(1), 33-44. https://doi.org/10.1597/03-097.5.1

Objective: To investigate levels of appearance-related concern in a normative population of adolescents. Design: Action research methodology was used to help adolescents develop a questionnaire that elicited peer views on appearance (Part 1) and to f... Read More about Ignoring it doesn't make it stop: Adolescents, appearance, and bullying.

The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience (2005)
Journal Article
Semb, G., Brattström, V., Mølsted, K., Prahl-Andersen, B., Rumsey, N., & Shaw, W. C. (2005). The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience. Cleft Palate-Craniofacial Journal, 42(1), 64-68. https://doi.org/10.1597/02-119.1.1

Objective: To calculate the amount of treatment and associated travel experienced by five groups of patients treated at different centers. (This data is related to outcomes and patient/parent satisfaction in subsequent papers in this series). Design:... Read More about The Eurocleft study: Intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 1: Introduction and treatment experience.

Psychological aspects of face transplantation: Read the small print carefully (2004)
Journal Article
Rumsey, N. (2004). Psychological aspects of face transplantation: Read the small print carefully. American Journal of Bioethics, 4(3), 22-25. https://doi.org/10.1080/15265160490496903

As a member of the Working Party set up by the Royal College of Surgeons (RCS) in England to consider the technical, psychological, medical, and ethical aspects of face transplantation in 2003, I welcome the chance to comment on the article by the p... Read More about Psychological aspects of face transplantation: Read the small print carefully.

Altered body image: Appearance-related concerns of people with visible disfigurement (2004)
Journal Article
Garlick, W., Wyn-Williams, M., Rumsey, N., Clarke, A., & White, P. (2004). Altered body image: Appearance-related concerns of people with visible disfigurement. Journal of Advanced Nursing, 48(5), 443-453. https://doi.org/10.1111/j.1365-2648.2004.03227.x

Aim. The aim of this paper is to report a study to establish the extent and type of psychosocial needs of outpatients attending for treatment of a wide range of disfiguring conditions. Background. Visible disfigurements can be associated with extensi... Read More about Altered body image: Appearance-related concerns of people with visible disfigurement.

Facial transplantation: a working party report from the Royal College of Surgeons of England (2004)
Journal Article
Morris, P. J., Bradley, J., Doyal, L., Earley, M., Hadan, P., Milling, M., & Rumsey, N. (2004). Facial transplantation: a working party report from the Royal College of Surgeons of England. Transplantation, 77(3), 330-338

We are publishing this working party report on facial transplantation from the Royal College of Surgeons, England, in order to get opinions from the transplant community as to whether it is appropriate or not to perform this procedure at this point i... Read More about Facial transplantation: a working party report from the Royal College of Surgeons of England.

Mastectomy patients' decision-making for or against immediate breast reconstruction (2004)
Journal Article
Harcourt, D., & Rumsey, N. (2004). Mastectomy patients' decision-making for or against immediate breast reconstruction. Psycho-Oncology, 13(2), 106-115. https://doi.org/10.1002/pon.711

This multi-centred study examined how 93 women due to undergo mastectomy had elected for (n = 37) or against (n = 56) immediate breast reconstruction. Initial semi-structured interviews were conducted prior to undergoing surgery whilst follow-up inte... Read More about Mastectomy patients' decision-making for or against immediate breast reconstruction.

Body image and disfigurement: Issues and interventions (2004)
Journal Article
Rumsey, N., & Harcourt, D. (2004). Body image and disfigurement: Issues and interventions. Body Image, 1(1), 83-97. https://doi.org/10.1016/S1740-1445%2803%2900005-6

Whether present at birth, congenital or acquired later in life, a visible disfigurement can have a profound psychological impact upon the individual concerned. Difficulties include adverse effects on body image, quality of life, and self-esteem. In a... Read More about Body image and disfigurement: Issues and interventions.

Exploring the psychosocial concerns of out-patients with disfiguring conditions (2003)
Journal Article
Rumsey, N., Clarke, A., & White, P. (2003). Exploring the psychosocial concerns of out-patients with disfiguring conditions. Journal of Wound Care, 12(7), 247-252

Objective: This study was undertaken to establish the extent and type of psychosocial need in outpatients attending for treatment for a variety of disfiguring conditions. Method: A total of 220 outpatients receiving treatment for burns, skin condit... Read More about Exploring the psychosocial concerns of out-patients with disfiguring conditions.

Skin scarring: new insights may make adjustment easier (2003)
Journal Article
Partridge, J., & Rumsey, N. (2003). Skin scarring: new insights may make adjustment easier. BMJ, 326(7392), 765a. https://doi.org/10.1136/bmj.326.7392.765/a

Skin scarring is a clinical problem that can cause many psychological and social difficulties—some as a result of the cause of the scarring (for example, trauma), some related to the effects (for example, itching), and many to the appearance of the s... Read More about Skin scarring: new insights may make adjustment easier.

The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study (2003)
Journal Article
Harcourt, D., Rumsey, N., Ambler, N. R., Cawthorn, S. J., Reid, C. D., Madox, P. R., …Umpleby, H. C. (2003). The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study. Plastic and Reconstructive Surgery, 111(3), 1060-1068

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: a prospective, multi-centred study.

The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study (2003)
Journal Article
Harcourt, D., Rumsey, N., Ambler, N. R., Cawthorn, S. J., Reid, C. D., Maddox, P. R., …Umpleby, H. C. (2003). The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study. Plastic and Reconstructive Surgery, 111(3), 1060-1068. https://doi.org/10.1097/01.PRS.0000046249.33122.76

A multicenter, prospective study (n = 103) examined the psychological implications of women's decisions for or against breast reconstruction. Recognized measures of anxiety, depression, body image, and quality of life were completed before the operat... Read More about The psychological effect of mastectomy with or without breast reconstruction: A prospective, multicenter study.