Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues (2024)
Journal Article
Keeling, M., Harcourt, D., Williams, V., Kiff, J., & Williamson, H. (in press). Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues. Military Behavioral Health, https://doi.org/10.1080/21635781.2024.2342267

Combat-related physical injuries not only affect the individual but also close family members. Emerging evidence indicates that injuries that change appearance, such as limb loss and physical scarring, may create additional psychosocial challenges fo... Read More about Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues.

Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article
Guest, E., Williamson, H., & Harcourt, D. (2024). Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition. Body Image, 48, Article 101656. https://doi.org/10.1016/j.bodyim.2023.101656

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.

Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article
Guest, E., Williamson, H., & Harcourt, D. (2024). Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition. Body Image, 48, Article 101656. https://doi.org/10.1016/j.bodyim.2023.101656

Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.

‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary (2023)
Journal Article
Mathews, A., Costa, B., Mikkola, A., & Harcourt, D. (2023). ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary. Scars, Burns & Healing, 9, https://doi.org/10.1177/20595131231205398

Introduction Those with an altered appearance as a result of injury, health condition or treatment can face stigma, which may contribute to adverse psychosocial outcomes. However, current research tends to focus on supporting individuals themselve... Read More about ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary.

Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects (2022)
Journal Article
Ivanova, A., Rodríguez-Cano, R., Lundin Kvalem, I., Harcourt, D., E. Kiserud, C. E., & D. Amdal, C. (2023). Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects. Journal of Cancer Survivorship, 17(2), 526-534. https://doi.org/10.1007/s11764-022-01311-y

Purpose: Head and neck cancer (HNC) patients are at risk of long-term body image distress (BID). We aimed to investigate the severity of BID in long-term HNC survivors and to explore the associations between sociodemographic and clinical factors, pat... Read More about Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects.

What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review (2022)
Journal Article
Falconer, L., Harcourt, D., & Hendricks, E. (2022). What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review. Journal of Endometriosis and Pelvic Pain Disorders, 14(4), 206-216. https://doi.org/10.1177/22840265221139909

Aim: To identify and review the success of non-pharmaceutical, non-surgical biopsychosocial interventions in individuals with endometriosis, in managing pain and improving body image. Methods: Cochrane, EBSCO, IBSS, NICE, Open Grey, OVID, Proquest, S... Read More about What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article
Guest, E., Zucchelli, F., Costa, B., Bhatia, R., Halliwell, E., & Harcourt, D. (2022). A systematic review of interventions aiming to promote positive body image in children and adolescents. Body Image, 42, 58-74. https://doi.org/10.1016/j.bodyim.2022.04.009

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study (2022)
Journal Article
Herring, B., Lewis-Smith, H., Paraskeva, N., & Harcourt, D. (2022). Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study. Supportive Care in Cancer, 30, 6669–6676. https://doi.org/10.1007/s00520-022-07095-2

Purpose: The provision of practical and emotional support for men who have been diagnosed with breast cancer in the UK falls primarily on their partners, close family members or friends. However, informal carers’ experiences are omitted from the rese... Read More about Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2022). The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury. European Burn Journal, 3(1), 211-233. https://doi.org/10.3390/ebj3010019

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article
Griffiths, C., Tollow, P., Cox, D., White, P., Pickles, T., & Harcourt, D. (2021). Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers. European Burn Journal, 2(4), 249-280

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (in press). “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction. European Journal of Cancer Care, Article e13464. https://doi.org/10.1111/ecc.13464

Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.

Oncoplastic breast surgery: A guide to good practice (2021)
Journal Article
Gilmour, A., Cutress, R., Gandhi, A., Harcourt, D., Little, K., Mansell, J., …Martin, L. (2021). Oncoplastic breast surgery: A guide to good practice. EJSO - European Journal of Surgical Oncology, 47(9), 2272-2285. https://doi.org/10.1016/j.ejso.2021.05.006

Oncoplastic Breast Surgery has become standard of care in the management of Breast. Cancer Patents. These guidelines written by an Expert Advisory Group; convened by the Association of Breast Surgery (ABS) and the British Association of Plastic, Reco... Read More about Oncoplastic breast surgery: A guide to good practice.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article
Thornton, M., Harcourt, D., Deave, T., Kiff, J., & Williamson, H. (2021). "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury. Developmental Neurorehabilitation, 24(6), 418-428. https://doi.org/10.1080/17518423.2021.1901150

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article
Lahdenperä, N., Repo, J. P., Aartolahti, E., Tollow, P., Griffiths, C., Harcourt, D., …Lindford, A. (2021). The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish. Burns, 47(8), 1922-1928. https://doi.org/10.1016/j.burns.2021.02.017

Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.

‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
Stock, N. M., Sharratt, N. D., Treneman-Evans, G., Montgomery, K., Denman, R., Harcourt, D., & at the Centre for Appearance Research, T. V. R. T. (2022). ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss. Psychology, Health and Medicine, 27(7), 1431-1442. https://doi.org/10.1080/13548506.2021.1883688

The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.

Challenges and reflections from a multi-centre trial of a psycho-oncology intervention to support shared decision-making in breast reconstruction (2020)
Journal Article
Tollow, P., Paraskeva, N., Clarke, A., White, P., Powell, J., Cox, D., & Harcourt, D. (2021). Challenges and reflections from a multi-centre trial of a psycho-oncology intervention to support shared decision-making in breast reconstruction. European Journal of Cancer Care, 30(2), Article e13384. https://doi.org/10.1111/ecc.13384

Physical appearance and well-being in adults with incurable cancer: A thematic analysis (2020)
Journal Article
Tollow, P., Ogden, J., McCabe, C. S., & Harcourt, D. (2023). Physical appearance and well-being in adults with incurable cancer: A thematic analysis. BMJ Supportive and Palliative Care, 13(e1), e163-e169. https://doi.org/10.1136/bmjspcare-2020-002632

Objectives: Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance... Read More about Physical appearance and well-being in adults with incurable cancer: A thematic analysis.

The role of body image in treatment decision-making and post-treatment regret following prostatectomy (2020)
Journal Article
Shiridzinomwa, C., Harding, S., & Harcourt, D. (2020). The role of body image in treatment decision-making and post-treatment regret following prostatectomy. British Journal of Nursing, 29(18), S8-S16. https://doi.org/10.12968/bjon.2020.29.18.S8

Three main treatments are offered to men with localised prostate cancer: active monitoring, radiotherapy and prostatectomy. The aim of this research was to explore the role of body image in treatment decision-making and post-treatment regret followin... Read More about The role of body image in treatment decision-making and post-treatment regret following prostatectomy.

The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury (2020)
Journal Article
Griffiths, C., Guest, E., Pickles, T., Hollèn, L., Grzeda, M., Tollow, P., & Harcourt, D. (2021). The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury. Quality of Life Research, 30, 239–250. https://doi.org/10.1007/s11136-020-02627-x

Purpose: Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality o... Read More about The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.

PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction (2020)
Journal Article
Clarke, A., Paraskeva, N., White, P., Tollow, P., Hansen, E., & Harcourt, D. (2020). PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction. Journal of Cancer Education, https://doi.org/10.1007/s13187-019-01656-6

© 2020, The Author(s). Studies have found varying levels of satisfaction after breast reconstruction surgery with a substantial group of patients reporting some level of regret about their decision. The variable outcomes reported by women undergoing... Read More about PEGASUS: the Design of an Intervention to Facilitate Shared Decision-making in Breast Reconstruction.