All Outputs (127)

Implementation of a hospice community service redesign: Qualitative research identifying lessons learned (2025)
Journal Article

Background:
The need to improve equity of access to palliative care is well recognized; however, much less is known about how new models of hospice community services can be successfully introduced.
Aim:We aimed to capture learning from the impleme... Read More about Implementation of a hospice community service redesign: Qualitative research identifying lessons learned.

Provision of multidisciplinary specialist pain services for people with chronic cancer-related late effects pain across England (2025)
Presentation / Conference Contribution

Introduction: Pain can be a significant problem for cancer survivors. The provision of pain services in England for people with cancer-related late effects pain, and the epidemiology of service users, is poorly understood.(1–3)
Aim: To identify th... Read More about Provision of multidisciplinary specialist pain services for people with chronic cancer-related late effects pain across England.

Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment. To better support people with chronic cancer-related pain, a set of evidence-based clinical recommendations have been generated. These are summarised as: PAINS: Prepare and inf... Read More about Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations.

Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment (2025)
Presentation / Conference Contribution

Introduction: Chronic pain is a common side effect of cancer treatment and is frequently cited as a top concern and unmet need for cancer survivors with wide ranging impacts. To better support people with chronic pain as a long-term or late side ef... Read More about Research prioritisation of clinical recommendations for cancer survivors living with chronic pain post cancer treatment.

A malevolent force: A qualitative exploration of perceptions of changes in bodily function and sensations in complex regional pain syndrome (2025)
Journal Article

Research has established that people with complex regional pain syndrome (CRPS) experience profound changes in bodily function and sensations. However, the subjective perceptions of these changes to bodily function and sensations h... Read More about A malevolent force: A qualitative exploration of perceptions of changes in bodily function and sensations in complex regional pain syndrome.

Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey (2024)
Journal Article

Introduction: Healthcare professionals are vital in preparing people living with and beyond cancer about the risks of chronic pain after cancer treatment. To do so, healthcare professionals need to be knowledgeable and confident about chronic pain af... Read More about Healthcare professionals' knowledge, understanding and confidence to manage chronic pain after cancer treatment: A UK survey.

Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis (2023)
Journal Article

Aims: To develop an understanding of what comprises nurse-led care in early rheumatoid arthritis from the perspective of rheumatology nurse specialists in England. Design: Qualitative study. Methods: Semi-structured telephone interviews with rheumato... Read More about Nurse‐led care for people with early rheumatoid arthritis: Interview study with thematic analysis.

Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain (2023)
Presentation / Conference Contribution

Background. Patient and Public Involvement (PPI) can help shape research. It is important to capture the impacts that PPI have on cancer nursing doctoral research.
Methods: Two Public Contributors, who were cancer survivors living with chronic post... Read More about Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain.

Chronic post cancer treatment pain – how can we increase unity across pathways? (2023)
Presentation / Conference Contribution

Background: Chronic post cancer treatment pain is pain that persists or recurs for longer than three months and is caused by surgery, chemotherapy and/or radiotherapy . It can occur months or years after cancer treatment has finished. Limited knowl... Read More about Chronic post cancer treatment pain – how can we increase unity across pathways?.

Is there a role for citizen science in death and dying research? (2023)
Journal Article

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of... Read More about Is there a role for citizen science in death and dying research?.

The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer (2023)
Presentation / Conference Contribution

Title: The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer
Objectives/purpose: Development of clinical recommendations to improve experiences of chronic... Read More about The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer.

The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research (2023)
Journal Article

We present a framework for the study of states of chronic pain and transitions between those states. We capture in the framework the dynamic nature of pain: people live with pain that changes over time. First, we offer definitions of both acute and c... Read More about The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Hospital practitioner views on the benefits of continence education and best ways to provide training (2023)
Journal Article

Aim: The aim of the study was to explore practitioners' experiences and perspectives on continence training, in order to understand its relevance to practice and how take-up of, and engagement with, such training may be improved. Design: 27 qualitati... Read More about Hospital practitioner views on the benefits of continence education and best ways to provide training.

What do people with osteoarthritis think about using a digital behaviour change intervention to support physical activity? (2022)
Presentation / Conference Contribution

Background
Osteoarthritis (OA) affects 8.75 million people in the UK. Physical activity (PA) is recommended as a core treatment, yet nearly half of people with OA are inactive. Accessible and user-friendly interventions are needed to motivate people... Read More about What do people with osteoarthritis think about using a digital behaviour change intervention to support physical activity?.

Prognostic factors for persistent pain after a distal radius fracture: A systematic review (2022)
Journal Article

Introduction: The aim of this systematic review was to synthesize the evidence regarding prognostic factors for persistent pain, including Complex Regional Pain Syndrome (CRPS), after a distal radius fracture (DRF), a common condition after which per... Read More about Prognostic factors for persistent pain after a distal radius fracture: A systematic review.

The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives (2022)
Presentation / Conference Contribution

Background and Aims
Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition which usually occurs following limb trauma[1] and causes significant burden to individuals and society. The UK has a small number of specialist CRPS centres... Read More about The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.