Public contributor and stakeholder research priority setting for cancer survivors with chronic cancer-related pain Figure 1: Development of clinical recommendations

Armoogum, Julie; Llewellyn, Alison; Cramp, Fiona; Berry, Alice; Harcourt, Diana; Foster, Claire; McCabe, Candy

Abstract

Introduction: Chronic pain is a common side effect of cancer treatment. To better support people with chronic cancer-related pain, a set of evidence-based clinical recommendations have been generated. These are summarised as: PAINS: Prepare and inform, Assess, acknowledge and listen, Increase healthcare professional knowledge, Name and diagnose, and Services and supported self-management interventions. To help drive the focus of future research, the recommendations need to be prioritised.
Methods: Recommendations were prioritised in four nominal group technique (NGT) workshops and four one-to-one discussions with 21 stakeholders, including 12 public contributors with lived experience of chronic cancer-related pain and nine stakeholders (healthcare professionals, researchers and educators). Participants were sent the recommendations in advance. During the workshop they were asked to rank recommendations in order of research priority from most important to least important, firstly in an ‘ideal’ world (with no budgetary or system restrictions) and secondly in the ‘real’ world in which the NHS operates. Scores were calculated from all participants combined and two sub-groups 1) public contributors and 2) stakeholders.
Results: Priority order for an ‘ideal’ world for all participants combined was 1) Increase healthcare professional knowledge 2) Assess, acknowledge and listen 3) Services and supported self-management 4) Prepare and inform 5) Name and Diagnose. Top priority for public contributors was ‘Increase healthcare professional knowledge’ and for stakeholders was ‘Services and supported self-management interventions’. Combined priority order for a ‘real’ world was 1) Increase Healthcare professional knowledge 2) Assess, acknowledge and listen 3) Prepare and inform 4) Services and supported self-management and 5) Name and diagnose. Both public contributors and stakeholders ranked ‘increase healthcare professional knowledge’ as top priority in the ‘real’ world.
Conclusions: Increasing healthcare professional knowledge appears to be the top priority for both people with lived experience and stakeholders. It would be valuable to the extend exercise to include more public contributors and stakeholders.

• Presentation Conference Type: Poster
• Conference Name: Multinational Association of Supportive Care in Cancer (MASCC)
• Start Date: Jun 26, 2025
• End Date: Jun 28, 2025
• Acceptance Date: Apr 7, 2025
• Deposit Date: Jun 11, 2025
• Peer Reviewed: Peer Reviewed
• Public URL: https://uwe-repository.worktribe.com/output/14556611