Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health

Milman, Nataliya; McConville, Eilish; Robson, Joanna C.; Boonen, Annelies; Tugwell, Peter; Wells, George A.; Chaudhuri, Dipayan; Dawson, Jill; Tomasson, Gunnar; Ashdown, Susan; Gebhart, Don; Lanier, Georgia; Peck, Jacqueline; McAlear, Carol A.; Kellom, Katherine S.; Cronholm, Peter F.; Merkel, Peter A.

doi:10.3899/jrheum.181073

Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health

Milman, Nataliya; McConville, Eilish; Robson, Joanna C.; Boonen, Annelies; Tugwell, Peter; Wells, George A.; Chaudhuri, Dipayan; Dawson, Jill; Tomasson, Gunnar; Ashdown, Susan; Gebhart, Don; Lanier, Georgia; Peck, Jacqueline; McAlear, Carol A.; Kellom, Katherine S.; Cronholm, Peter F.; Merkel, Peter A.

Authors

Nataliya Milman

Eilish McConville

Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology

Annelies Boonen

Peter Tugwell

George A. Wells

Dipayan Chaudhuri

Jill Dawson

Gunnar Tomasson

Susan Ashdown

Don Gebhart

Georgia Lanier

Jacqueline Peck

Carol A. McAlear

Katherine S. Kellom

Peter F. Cronholm

Peter A. Merkel

Abstract

Objective: Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods: Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results: Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion: Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.

Citation

Milman, N., McConville, E., Robson, J. C., Boonen, A., Tugwell, P., Wells, G. A., …Merkel, P. A. (2019). Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health. Journal of Rheumatology, 46(10), 1415-1420. https://doi.org/10.3899/jrheum.181073

Journal Article Type	Article
Acceptance Date	Jan 1, 2019
Online Publication Date	Feb 1, 2019
Publication Date	Oct 1, 2019
Deposit Date	Apr 16, 2019
Journal	Journal of Rheumatology
Print ISSN	0315-162X
Electronic ISSN	1499-2752
Publisher	Journal of Rheumatology
Peer Reviewed	Peer Reviewed
Volume	46
Issue	10
Pages	1415-1420
DOI	https://doi.org/10.3899/jrheum.181073
Keywords	ICF framework, ANCA associated vasculitis, patient
Public URL	https://uwe-repository.worktribe.com/output/852643
Publisher URL	https://doi.org/10.3899/jrheum.181073
Additional Information	Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181073.