Nataliya Milman
Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health
Milman, Nataliya; McConville, Eilish; Robson, Joanna C.; Boonen, Annelies; Tugwell, Peter; Wells, George A.; Chaudhuri, Dipayan; Dawson, Jill; Tomasson, Gunnar; Ashdown, Susan; Gebhart, Don; Lanier, Georgia; Peck, Jacqueline; McAlear, Carol A.; Kellom, Katherine S.; Cronholm, Peter F.; Merkel, Peter A.
Authors
Eilish McConville
Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology
Annelies Boonen
Peter Tugwell
George A. Wells
Dipayan Chaudhuri
Jill Dawson
Gunnar Tomasson
Susan Ashdown
Don Gebhart
Georgia Lanier
Jacqueline Peck
Carol A. McAlear
Katherine S. Kellom
Peter F. Cronholm
Peter A. Merkel
Abstract
Objective: Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods: Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results: Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion: Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.
Citation
Milman, N., McConville, E., Robson, J. C., Boonen, A., Tugwell, P., Wells, G. A., …Merkel, P. A. (2019). Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health. Journal of Rheumatology, 46(10), 1415-1420. https://doi.org/10.3899/jrheum.181073
Journal Article Type | Article |
---|---|
Acceptance Date | Jan 1, 2019 |
Online Publication Date | Feb 1, 2019 |
Publication Date | Oct 1, 2019 |
Deposit Date | Apr 16, 2019 |
Journal | Journal of Rheumatology |
Print ISSN | 0315-162X |
Electronic ISSN | 1499-2752 |
Publisher | Journal of Rheumatology |
Peer Reviewed | Peer Reviewed |
Volume | 46 |
Issue | 10 |
Pages | 1415-1420 |
DOI | https://doi.org/10.3899/jrheum.181073 |
Keywords | ICF framework, ANCA associated vasculitis, patient |
Public URL | https://uwe-repository.worktribe.com/output/852643 |
Publisher URL | https://doi.org/10.3899/jrheum.181073 |
Additional Information | Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181073. |
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