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Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health

Milman, Nataliya; McConville, Eilish; Robson, Joanna C.; Boonen, Annelies; Tugwell, Peter; Wells, George A.; Chaudhuri, Dipayan; Dawson, Jill; Tomasson, Gunnar; Ashdown, Susan; Gebhart, Don; Lanier, Georgia; Peck, Jacqueline; McAlear, Carol A.; Kellom, Katherine S.; Cronholm, Peter F.; Merkel, Peter A.

Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health Thumbnail


Authors

Nataliya Milman

Eilish McConville

Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology

Annelies Boonen

Peter Tugwell

George A. Wells

Dipayan Chaudhuri

Jill Dawson

Gunnar Tomasson

Susan Ashdown

Don Gebhart

Georgia Lanier

Jacqueline Peck

Carol A. McAlear

Katherine S. Kellom

Peter F. Cronholm

Peter A. Merkel



Abstract

Objective: Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods: Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results: Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion: Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.

Citation

Milman, N., McConville, E., Robson, J. C., Boonen, A., Tugwell, P., Wells, G. A., …Merkel, P. A. (2019). Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health. Journal of Rheumatology, 46(10), 1415-1420. https://doi.org/10.3899/jrheum.181073

Journal Article Type Article
Acceptance Date Jan 1, 2019
Online Publication Date Feb 1, 2019
Publication Date Oct 1, 2019
Deposit Date Apr 16, 2019
Publicly Available Date Mar 28, 2024
Journal Journal of Rheumatology
Print ISSN 0315-162X
Electronic ISSN 1499-2752
Publisher Journal of Rheumatology
Peer Reviewed Peer Reviewed
Volume 46
Issue 10
Pages 1415-1420
DOI https://doi.org/10.3899/jrheum.181073
Keywords ICF framework, ANCA associated vasculitis, patient
Public URL https://uwe-repository.worktribe.com/output/852643
Publisher URL https://doi.org/10.3899/jrheum.181073
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181073.

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