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Systemic vasculitis and patient-reported outcomes: How the assessment of patient preferences and perspectives could improve outcomes

Robson, JC; Jayne, D; Merkel, PA; Dawson, J

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Authors

Jo Robson Jo.Robson@uwe.ac.uk
Consultant Associate Professor in Rheumatology

D Jayne

PA Merkel

J Dawson



Abstract

The systemic vasculitides are a group of multisystem diseases, which can be life and organ threatening. High-dose immunosuppressants are required to control inflammation in vital organs, such as the kidneys, lungs, skin, joints, and eyes. Patients report a range of impacts on their health-related quality of life due to symptoms, irreversible damage, and the adverse effects of medications. The measurement of patient perspectives within clinical studies in vasculitis is essential to capture outcomes of greatest importance to patients. Validated generic, disease-specific and symptom-specific patient-reported outcomes available for use in patients with systemic vasculitis are reviewed here.

Citation

Robson, J., Jayne, D., Merkel, P., & Dawson, J. (2019). Systemic vasculitis and patient-reported outcomes: How the assessment of patient preferences and perspectives could improve outcomes. Patient Related Outcome Measures, 10, 37-42. https://doi.org/10.2147/PROM.S163601

Journal Article Type Article
Acceptance Date Jan 1, 2019
Publication Date Feb 8, 2019
Deposit Date Apr 16, 2019
Publicly Available Date Apr 16, 2019
Journal Patient Related Outcome Measures
Publisher Dove Medical Press
Peer Reviewed Peer Reviewed
Volume 10
Pages 37-42
DOI https://doi.org/10.2147/PROM.S163601
Keywords patient reported outcomes, vasculitis, AAVPRO
Public URL https://uwe-repository.worktribe.com/output/852425
Publisher URL http://dx.doi.org/10.2147/PROM.S163601

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