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Outputs (65)

Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers (2018)
Journal Article

Despite the potential negative impact of facial palsy, major gaps in understanding persist surrounding the treatment and care of those affected. This collaborative three-round Delphi process aimed to identify priorities for future facial palsy resear... Read More about Commentary – consensus research priorities for facial palsy: A delphi survey of patients, carers, clinicians and researchers.

“It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects (2018)
Journal Article

© 2018 Elsevier Inc. Background: Often researchers use only one interview method within a single study. However, it is increasingly common for a variety of interview methods to be employed within a project. Providing choice to participants may facili... Read More about “It's just more personal”: Using multiple methods of qualitative data collection to facilitate participation in research focusing on sensitive subjects.

Challenges of recruiting adolescents for appearance-related research in a specialist tertiary hospital (2018)
Journal Article

Aim: To discuss the experiences and specific challenges of recruiting adolescents with appearance-altering conditions or injuries for qualitative interviews exploring appearance worry and an acceptability study testing a new online intervention desig... Read More about Challenges of recruiting adolescents for appearance-related research in a specialist tertiary hospital.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2018)
Journal Article

© 2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article). All rights reserved. Objective Valid measures of appearance concern are needed in systemic sclerosis (SSc), a rare, disfiguring autoimmune disease. Th... Read More about Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals (2018)
Journal Article

© 2018 The Authors Appearance-related concerns resulting from disfigurement or pressure to conform to beauty ideals, indiscriminately affect patients’ mental and physical health. Healthcare professionals face the challenge of addressing patients’ sup... Read More about Supporting patients with body dissatisfaction: A survey of the experiences and training needs of european multi-disciplinary healthcare professionals.

An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour (2018)
Journal Article

Introduction: This evaluation aimed to assess the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.
Methods: Young people completed the Perceived Stigmatisation Questio... Read More about An evaluation of the impact of a burn camp on children and young people’s concerns about social situations, satisfaction with appearance and behaviour.

Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children (2018)
Journal Article

Introduction: Burn injuries can be traumatic and distressing for the affected child and family, with a prolonged period of recovery. This research explores parents’ experiences of support following their child’s injury and their thoughts on peer supp... Read More about Parent-perceived isolation and barriers to psychosocial support: A qualitative study to investigate how peer support might help parents of burn-injured children.

Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences (2017)
Journal Article

© Cambridge University Press 2017. Background: Qualitative research methods embedded within feasibility trials are of significant value as they can provide important information for a definitive trial, often unable to be fulfilled by quantitative met... Read More about Recruiting young people with a visible difference to the YP Face IT feasibility trial: A qualitative exploration of primary care staff experiences.