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Challenges of recruiting adolescents for appearance-related research in a specialist tertiary hospital

Gee, Caroline; Williamson, Heidi; Maskell, Jessica; Kimble, Roy; Newcombe, Peter

Authors

Caroline Gee

Jessica Maskell

Roy Kimble

Peter Newcombe



Abstract

Aim: To discuss the experiences and specific challenges of recruiting adolescents with appearance-altering conditions or injuries for qualitative interviews exploring appearance worry and an acceptability study testing a new online intervention designed to target appearance-related distress.
Methods: Between August 2016 and January 2017, 88 families were invited to take part in the studies. Patients were approached in outpatient consultations at Australia’s largest paediatric tertiary hospital. A final 25 participants were recruited to at least one of the studies.
Results: Successfully recruiting adolescents for research that explored appearance worry was challenging. Environmental barriers in the clinic environment and reluctance discussing appearance-related subject matter impacted clinical staff involvement and participant engagement. Misconceptions about resolving and managing appearance distress also influenced consent.
Conclusions: This paper illustrates the complexities of recruiting young people for appearance-based research in a paediatric tertiary hospital and important considerations for successful recruitment. Recommendations highlight the important of early participant involvement, maximising the support of clinicians with study-specific training, being mindful of first impressions and adopting novel, non-traditional methodology and advertising strategies. Knowledge gained from this paper aims to assist future researchers conduct more successful appearance-based research in paediatric tertiary centres.

Journal Article Type Note
Publication Date Nov 1, 2018
Journal Journal of Paediatrics and Child Health
Print ISSN 1034-4810
Electronic ISSN 1440-1754
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 54
Issue 11
Pages 1176-1179
APA6 Citation Gee, C., Williamson, H., Maskell, J., Kimble, R., & Newcombe, P. (2018). Challenges of recruiting adolescents for appearance-related research in a specialist tertiary hospital. Journal of Paediatrics and Child Health, 54(11), 1176-1179. https://doi.org/10.1111/jpc.13942
DOI https://doi.org/10.1111/jpc.13942
Keywords visible difference, young people, children, recruitment
Publisher URL https://doi.org/10.1111/jpc.13942
Additional Information Additional Information : This is the peer reviewed version of the following article: Gee, C., Williamson, H., Maskell, J., Kimble, R. and Newcombe, P. (2018) The challenges of recruiting adolescents for appearance-related research in a specialist tertiary hospital. Journal of Paediatrics and Child Health, which has been published in final form at https://doi.org/10.1111/jpc.13942. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.

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